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Regular Contributor
Posts: 156
Registered: ‎04-16-2013
Thank you for your words of encouragement! They help a lot. I am trying to be strongSmiley Happy. I will let you know how Tuesday goes. Thanks again!
Super Contributor
Posts: 1,354
Registered: ‎11-30-2011

Hi all! I'm the Melanoma ex-CancerChick who was posting with Cocoablue. I never knew you guys were here. Now I do.

Wagirl - I'm sending my best positive thoughts to your AZ friend's husband. I used to work with the AZ Office of Oral Health in various capacities (as an RDH), mainly in tobacco & oral cancer education to school children. I also did yearly screenings & follow-ups with the baseball teams during Spring Training. It was a tremendously interesting and rewarding adventure.

Respected Contributor
Posts: 2,070
Registered: ‎03-12-2010

I believe some of you on the Cancer forum posted about Turmeric, and that it is good to take if you have cancer. I read that Andrew Lessman from HSN is having a birthday sale on his vitamins (I did the Spin2Win, and have a 15% discount on orders $50+). Have any of you taken his vitamins? Do you think it would be okay for me to take, since I have CLL? It's also supposed to be good for arthritis and fibromyalgia. I have both also.

Super Contributor
Posts: 1,354
Registered: ‎11-30-2011
On 7/11/2014 Lyn08 said:

I believe some of you on the Cancer forum posted about Turmeric, and that it is good to take if you have cancer. I read that Andrew Lessman from HSN is having a birthday sale on his vitamins (I did the Spin2Win, and have a 15% discount on orders $50+). Have any of you taken his vitamins? Do you think it would be okay for me to take, since I have CLL? It's also supposed to be good for arthritis and fibromyalgia. I have both also.

I read up on Tumeric before my last treatment (as I glom on to anything that would have scientific/medical merit. WebMD has pretty good info - the good and bad. I can't post links via my Kindle so here's the deal.

http://www.webmd.com/vitamins-supplements/ingredientmono-662-TURMERIC.aspx?activeIngredientId=662&ac...

Super Contributor
Posts: 1,354
Registered: ‎11-30-2011

Has anyone here been treated with Yervoy for Melanoma? If so I'd be interested in your during and/or post tx side effects. Mine have been extensive yet bearable.

Respected Contributor
Posts: 2,070
Registered: ‎03-12-2010
On 7/12/2014 F1wild said:
On 7/11/2014 Lyn08 said:

I believe some of you on the Cancer forum posted about Turmeric, and that it is good to take if you have cancer. I read that Andrew Lessman from HSN is having a birthday sale on his vitamins (I did the Spin2Win, and have a 15% discount on orders $50+). Have any of you taken his vitamins? Do you think it would be okay for me to take, since I have CLL? It's also supposed to be good for arthritis and fibromyalgia. I have both also.

I read up on Tumeric before my last treatment (as I glom on to anything that would have scientific/medical merit. WebMD has pretty good info - the good and bad. I can't post links via my Kindle so here's the deal.

http://www.webmd.com/vitamins-supplements/ingredientmono-662-TURMERIC.aspx?activeIngredientId=662&ac...

Thanks so much for the info. I think I might try the Andrew Lessman Turmeric. If it doesn't help my cancer, at least it might help my arthritis and fibromyalgia.

I wish you the best of luck with your Melanoma treatments. I don't know much about Melanoma, but everyone on the forum has some type of cancer, and we all try to support one another.

I have Chronic Lymphocytic Leukemia (CLL). Currently, it's only being "watched", and I have not required treatment. When I was first diagnosed, I read all I could about it on-line, and I was scared stiff. Now, I try not to read all the bad stuff.

My cousin has esophageal cancer, that was diagnosed almost two years ago. He's doing well so far, but the tumor (inoperable) has slightly enlarged, so he's back to taking chemo every week, rather than once every 3 weeks.

Honored Contributor
Posts: 17,091
Registered: ‎03-09-2010
On 7/11/2014 F1wild said:

Hi all! I'm the Melanoma ex-CancerChick who was posting with Cocoablue. I never knew you guys were here. Now I do.

Wagirl - I'm sending my best positive thoughts to your AZ friend's husband. I used to work with the AZ Office of Oral Health in various capacities (as an RDH), mainly in tobacco & oral cancer education to school children. I also did yearly screenings & follow-ups with the baseball teams during Spring Training. It was a tremendously interesting and rewarding adventure.

F1--so glad you came over to the cancer zombie side{#emotions_dlg.laugh} . Would love to hear any of your thoughts about all this.I will pass along the good juju to my friend. They live in Sun City. I'll also ask if they go to that place for any reason too. Small world!!

Honored Contributor
Posts: 17,091
Registered: ‎03-09-2010
On 7/12/2014 Lyn08 said:
On 7/12/2014 F1wild said:
On 7/11/2014 Lyn08 said:

I believe some of you on the Cancer forum posted about Turmeric, and that it is good to take if you have cancer. I read that Andrew Lessman from HSN is having a birthday sale on his vitamins (I did the Spin2Win, and have a 15% discount on orders $50+). Have any of you taken his vitamins? Do you think it would be okay for me to take, since I have CLL? It's also supposed to be good for arthritis and fibromyalgia. I have both also.

I read up on Tumeric before my last treatment (as I glom on to anything that would have scientific/medical merit. WebMD has pretty good info - the good and bad. I can't post links via my Kindle so here's the deal.

http://www.webmd.com/vitamins-supplements/ingredientmono-662-TURMERIC.aspx?activeIngredientId=662&ac...

Thanks so much for the info. I think I might try the Andrew Lessman Turmeric. If it doesn't help my cancer, at least it might help my arthritis and fibromyalgia.

I wish you the best of luck with your Melanoma treatments. I don't know much about Melanoma, but everyone on the forum has some type of cancer, and we all try to support one another.

I have Chronic Lymphocytic Leukemia (CLL). Currently, it's only being "watched", and I have not required treatment. When I was first diagnosed, I read all I could about it on-line, and I was scared stiff. Now, I try not to read all the bad stuff.

My cousin has esophageal cancer, that was diagnosed almost two years ago. He's doing well so far, but the tumor (inoperable) has slightly enlarged, so he's back to taking chemo every week, rather than once every 3 weeks.

HI Lyn--I'd read up on the turmeric to get the right dosage. I take 1/2 tsp of powdered turmeric as that is what I have at the moment, but its the curcumin that is the thing you want to take. And I think black pepper is something that is added to help with the effectiveness of it. You can get it in capsule form. Great anti inflammatory

Respected Contributor
Posts: 2,664
Registered: ‎03-13-2010

Lyn - Pam is correct as always!! She is a good researcher.

One of the things my Naturopathic dr has me on is Turmeric. For the first 3 months it was with Boswellia and now it is just the Turmeric. I use Andrew Lessman's Turmeric-400 and take one capsule a day for maintenance.

An excellent source to find out about these supplements/herbs is on the Memorial Sloan Kettering Cancer Center website.

It is awesome - just put "herbs" in the search and they have them all from A-Z. Just click on the letter the herb starts with, click on the herb and it will bring up a wealth of information from it's scientific name, to it's purported uses, how it works, any drug interactions it may have and studies that have been done, plus much more. They of course have a disclaimer you have to agree to before you go into the information.

Take care everyone, I will be going to my son's on Monday to be with him at his first chemo on Tues.

Lannie

Contributor
Posts: 29
Registered: ‎03-16-2013

I've had melanoma (1992), thyroid cancer (2005), and breast cancer (2007). Just finished Femara this spring. No diagnosed mets or recurrence but the area around my breast hurts like the dickens. There is the feeling like a hand of pain around my ribcage. Chemo sucked all the juice out of my joints and I have terrible osteoarthritis now.

My current major stress is that my mammogram last fall showed uncertain changes on the diseased side, and I had a breast MRI and I cannot get the insurance company and the hospital to communicate and pay the freakin' bill. I was supposed to have another one as a 6 month follow-up because they don't know what's going on, but I'm not going to until the bill is paid. I can't afford over $4k every 6 months! So lots of free floating anxiety about what's really going on in there.

OK that sounds whiny but I really am happy day to day and accept whatever God has in store for me, good or bad. I am grateful to be above ground and vertical. I have outsurvived my mom (she died of BrCa mets 3 years after diagnosis) and Imust be superwoman for beating three primary cancers. So there's that!

May God's blessings be upon us all, no matter what the results.

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