Re: Brain Cancer Replaces Leukemia

jackiejenny · ‎10-23-2011

@Buck-i-Nana wrote:
@jackiejenny wrote:
@Buck-i-Nana wrote:
The change is due to the increasing successful treatment of childhood leukemia, thus reducing deaths.

In contrast, there has been little to no increase in the understanding of brain cancer or in treating it.

While I agree with most of your post, many neurologists believe children using cell phones at such a young age, combined with constant use, may have contributed to the increasing cases of brain cancer.

They're guessing. You'll find just as many that are attributing the increase in childhood cancers to the increase in use of pesticides and chemicals.

While I am in complete agreement that the widespread use of chemicals and pesticides have contributed greatly to cancers of all kind to both children and adults, one can't dismiss cellphones as a possible cause.

I was amazed at how liberally they were spraying that certain Zika virus area in Florida with pesticides. I thought, well, now that you think you have that tamped down, how many people will have cancer now?

Buck-i-Nana · ‎09-28-2010

@Brooklynny - Thank you and let me apologize for not acknowledging your loss in my previous reply.

Yes, it was the most heartbreaking experience of my life. Like you I was my husbands sole care-giver. The generous people I worked with all donated leave to me so I could stay with my husband from day 1.

I felt like we were battling a cruel vindictive intelligent demon. For every step we took to compensate for a loss of function, the joy would only last a day or two before not only did that change not work anymore, but he would take yet another step backwards. Add to that what I felt were the horrors of our medical system in that I found we could never leave him alone in the hospital, not even ICU. I came back to ICU after going home to shower to find every alarm in the room going off and nobody around....NOBODY. At that point, my children, dil and I made sure one of us was by his side every moment. The medical appliance company the insurance company required we deal with were criminally inept IMHO. When we finally gave up the fight and went with hospice our hospice nurse took one look at the hospital bed ARIA delivered to us and got right in their face and demanded they remove it and bring a specific bed that actually was large enough for my 6'4" husband. The only bright moment in the nightmare.

Physical changes and loss of function, combined with mental changes were horrifying.

I cannot wrap my mind around anyone having to deal with such horror with a child. I doubt I would have survived losing a child in such a manner.

Laura14 · ‎06-09-2014

I read a memoir a year or two ago by an actress who lost her little sister to brain cancer and it was just heartbreaking to read that part of the story. I can't even imagine and I just read a small bit of what life was like for them during that time.

Here's hoping St Jude and all the other organizations can start wiping out brain cancer just like they've done with most of the blood cancers.

Brooklynny · ‎07-08-2010

@Buck-i-Nana, thank you, but no need to apologize. It's OK. The only time my mother was hospitalized was when she first had the seizure that resulted in the diagnosis. Then I took her to the hospital every morning for six weeks for radiation treatments. She was at home for the duration. Chemo and surgery were not an option. Three months after radiation, she came down with a killer case of the shingles which debilitated her like the radiation treatments didn't. Then the behavioral and personality changes began and worsened, and her physical condition deteriorated until she died. I certainly was not trained to deal with this, and when I talked to her doctor, he would say "it's the progression of the disease." No other support or advice until I told him we couldn't take it anymore, and he began the hospice at home process. Even then, we had only four hours a day of an aide's assistance. We were in this on our own, and we did the best we could.

Buck-i-Nana · ‎09-28-2010

@Brooklynny - Sadly, your experience I believe is still the norm. It took me years to come to terms with what I had gone through and to forgive myself for praying that God would take my husband not just for his sake but for my own.

Sorry @jackiejenny for derailing your thread.

jackiejenny · ‎10-23-2011

@Buck-i-Nana wrote:
@Brooklynny - Sadly, your experience I believe is still the norm. It took me years to come to terms with what I had gone through and to forgive myself for praying that God would take my husband not just for his sake but for my own.

Sorry @jackiejenny for derailing your thread.

@Buck-i-Nana...No problem what so ever.

My sincere condolences for your loss and all you went through.