Bladder related problems? - Page 2

Trinity11 · ‎11-16-2014

@hoosieroriginal wrote:
@Trinity11 wrote:
@Gsmom wrote:
Please please please ladies research dmannose
It is a natural cure for UTIs as well as cystitis and I have had great success using it as well as my girlfriend
Very good at reducing bacterial infections but IC is not caused by bacteria. It is a disease that affects the lining of the bladder. Bacteria are not present in a culture with IC.

IC has nothing to do with the classic symptoms of a UTI cured by an antibiotic or preventative care such as dmannose.
@Trinity11 - may I ask what treatments you have had that have helped, medications, holistic remedies? Thanks in advance.

@hoosieroriginalI don't want to discourage you but nothing has really helped me long term. I watch how I eat but frequency and pain are always there to some degree. Holistic methods never worked and Elmiron didn't either. Instillations were of little help. It has been with me for years so I learned to adapt to it but a cure needs to be found..

hoosieroriginal · ‎03-04-2012

@Trinity11 wrote:
@hoosieroriginal wrote:
@Trinity11 wrote:
@Gsmom wrote:
Please please please ladies research dmannose
It is a natural cure for UTIs as well as cystitis and I have had great success using it as well as my girlfriend
Very good at reducing bacterial infections but IC is not caused by bacteria. It is a disease that affects the lining of the bladder. Bacteria are not present in a culture with IC.

IC has nothing to do with the classic symptoms of a UTI cured by an antibiotic or preventative care such as dmannose.
@Trinity11 - may I ask what treatments you have had that have helped, medications, holistic remedies? Thanks in advance.
@hoosieroriginalI don't want to discourage you but nothing has really helped me long term. I watch how I eat but frequency and pain are always there to some degree. Holistic methods never worked and Elmiron didn't either. Instillations were of little help. It has been with me for years so I learned to adapt to it but a cure needs to be found..

@Trinity11 - I tend to want to stay with something holistic. Definitely going to try some of the herbal medications the nurse mentioned in her book. Looking onlline, Amazon has good reviews for some of them. I'm definitely watching what I eat - sometimes it is food related, sometimes nerve related, sometimes pelvic floor related. I do have a large varicose vein in my pelvic region that my ob/gyn has noticed - she mentions that as a cause for symptoms in her book also. It's a very painful condition for sure. Thanks.

missy mouse · ‎03-10-2010

I have had IC for over 20 years. It took 7 urologists to get the diagnosis. Then I had to find a doctor that specifically dealt with IC. I take amitriptyline and Ararax. Both help. Diet is extremely important. Read labels. There are a lot of do not eat this stuff on labels. The last ingredient is usually citric acid. It's used as a preservative and it's a big trigger. Stress is also a big problem. Also I try to get any medications in white. Red or blue dyes can be an issue. Go to the ICA website. They can find a doctor for you. I've tried almost everything, but I find diet works best. There is a cookbook available. Lists of good and bad foods and try it foods. Best of luck.

Sansun · ‎08-25-2010

Thanks for the information. I'm currently going through tests for the same thing and this has been helpful.

Coquille · ‎07-20-2011

I started getting symptoms of UTI's almost every month, a little over a year ago. I was tested each time for an infection but never had one. I had a hysterectomy 16 years ago and the year after that, I had breast cancer. Needless to say, no estrogen for me. My oncologist won't let me use, even a touch. That would fix everything. I had been uncomfortable for the past year vaginally and also having urinary problems. I read up and then spoke to my gynecologist. She mentioned Thermiva. I thought about. It cost 3,000.00 for 3 sessions. I said no way. Then, I thought about my quality of life or lack of it because of all my discomfort, constantly. Well, I had my first session and already feel better. My second session will be in about a week or so. My life has totally changed since the procedure. Ladies, read up on it and truly consider having it done. I hope everyone feels better. Take care and Happy Mother's Day.

Happiness is not a destination, it is a way of life.

Poodlepet2 · ‎03-09-2010

Hello @hoosieroriginal. I have had bladder problems for years with symptoms that mimic cystitis. I've had several urethral limitations-there's always blood in my urine....incontinence has gotten very bad: I wear Depends 24/7 ( Always came out with new underwear that offers more protection IMO).

I am seeing a gynecologist and that's a marvelous idea. She has done several aerodynamic studies on me and it's not looking good. I have extensive nerve damage all over, but it hit my bladder as well.

I was getting up almost hourly-and when I realized that I stopped going to places where bathrooms might be far away, that's when I made the appointment.

There are so many medications I can't take because of medical issues.

It has been frustrating-and I felt humiliated 20 years ago.

You are following the right path to finding out what's going on, and I sincerely hope it isn't cystitis-but things like urethral strictures can mimic cystitis.....They were rough too: you feel like a hot poker is there when urinating. There were times I have bitten my fingers to keep from crying out.....

The good news is that after every facilitation, I had improvement for awhile.

I feel your pain!

Hugs,

Poodlepet2

hoosieroriginal · ‎03-04-2012

@Poodlepet2 wrote:
Hello @hoosieroriginal. I have had bladder problems for years with symptoms that mimic cystitis. I've had several urethral limitations-there's always blood in my urine....incontinence has gotten very bad: I wear Depends 24/7 ( Always came out with new underwear that offers more protection IMO).

I am seeing a gynecologist and that's a marvelous idea. She has done several aerodynamic studies on me and it's not looking good. I have extensive nerve damage all over, but it hit my bladder as well.

I was getting up almost hourly-and when I realized that I stopped going to places where bathrooms might be far away, that's when I made the appointment.

There are so many medications I can't take because of medical issues.

It has been frustrating-and I felt humiliated 20 years ago.

You are following the right path to finding out what's going on, and I sincerely hope it isn't cystitis-but things like urethral strictures can mimic cystitis.....They were rough too: you feel like a hot poker is there when urinating. There were times I have bitten my fingers to keep from crying out.....

The good news is that after every facilitation, I had improvement for awhile.
I feel your pain!
Hugs,
Poodlepet2

@Poodlepet2 - read reviews on pumpkin seed oil on Amazon - some people say after taking it they no longer need to get up in the middle of the night several times. I hear it thickens the lining of the bladder wall. Might help that part of your symptoms. If you try it and get some results, please let me know.

Poodlepet2 · ‎03-09-2010

I am on my iPad this morning and need to correct some things.

I am am seeing a urogynecologist-not just a gynecologist-and there is a difference.

I have had urodynamic studies: every aspect has been studied including nerve conduction (an EMG if you will- but it's nothing like the testing done for peripheral nerves.)

I have urethral strictures-scar tissue- and I have had dilitation to stretch it.

I am scheduled for a cystoscopy, but it can't be done in office because of the scar tissue. I need a light anesthetic.

A cystoscopy will enable my doctor to look at the lining of my bladder and she will be able to get a sample for histology which will allow a pathologist to examine cells and determine the presence of inflammation or any disease processes.

Years ago I tried the pumpkin extract: I'm not being negative, but it's not going to help me at all. I have extensive nerve damage-but I also have a lot of demyelination in my cortex. Nobody is willing to make a call as to what is going on-probably MS-but something is there.

The options have been payed out for me, and so far, the most palatable treatment is acupuncture-and urologists are being trained in it specifically for incontinence,but the stimulus is applied to an area above your ankle-thankfully, not into the bladder!

I am not comfortable with the medication being offered because it carries a risk of tardive dyskinesia and it would just be my luck...and spinal cord stimulation is out for a number of personal reasons-the chief one being it isn't MRI compatible.

The merciful thing for me is that I don't have pain on urination and I'm not doubled over and miserable.

I was put on a cystitis diet: it didn't do anything for me because the pain was from the strictures.

At any rate, you are aiming in the right direction, but I have suffered from pain that was thought to be cystitis, and I wouldn't wish that on anybody. My hopes for you is that it turns out to be something innocuous and treatable!

@hoosieroriginal, please let us know how your appointment goes.

Hugs,

Poodlepet2

Mj57 · ‎03-10-2010

I have ic have had for many years I do get uti's at times. I take elmiron and another pill I now have it under control most of the time. It's painful and unrelenting at times.

prelief is helpful But Be Careful I used to use it not a ton but here and there to take acid out of food. It made calcium flow into my blood it showed up on a blood test and I stopped using it and it went away. I don't use it anymore.So I urge people to watch for that and get a blood test.

Uribel is a numbing medication that is helpful also.i take hydroxyzine too.

there is help out there to help it get under control some people do well some really struggle. Muscle relaxers can help also. A med called Vaga - fem inserted can help too. It's a tiny bit of estrogen it really can help with pelvic floor disfuntion PFD

MaryJo Ut.

sfnative · ‎03-10-2010

@wonderfulworld wrote:
My sister, a nurse who consulted a urologist was told that if you are post meno the lack of estrogen causes lots of bladder related woes. Topical estrogen is very helpful. Something to ask your dr. about.

@wonderfulworld

Thank you for bringing this to everyone's attention. Many women in this age group often self diagnose UTI or IC, when indeed the issue is a hormonal one. I had this problem big time and have been using Estrace 2x/wk for several years (better than the inserted tablet). What a difference!