Wellness

[sphynxlvr]

I was diagnosed with ms 20 yrs ago. I went blind in each of my eyes twice due to retrobulbar neuritis. I did regain my sight, thank God! The next thing to happen was the whole left side of my body went numb. That was special! I am still numb in my left leg and hand. I am unsteady on my feet. I do get dizzy. I also get killer cramps. I have a very very very supportive family. My husband is fabulous! My daughter is wonderful. My son lives out of state but I know he would help if he lived closer. I did take Avonex for 3 yrs. I stopped b/c of the cost and b/c of the side effects. Thankfully I can work. I work part time 3 days a week. I hardly drive anymore. I just do not know when the dizzies will strike and I would HATE to hurt anybody!!!!! All in all, I am doing good!

I know how crazy and unpredictable this disease can be. I also know my life is not my own! Like namealreadytaken, I am trusting in the Lord. Hardest think I have ever done in my life but.......the best thing I have ever done! He does sustain me..

My family, friends and I all participate in the yearly ms walk. I know there are awful diseases that afflict our bodies, ms being one of them. I would like a cure for all of them!!!!!!

May God bless each and everyone of you. May He send might angels your way to protect you and your body. May your spirits be lifted daily. I pray your mind and bodies are renewed and refreshed everyday!

I will keep you all in my prayers.

[chi5925]

On 1/10/2015 Reever said: Tissyanne, do we know how these diseases are transmitted? Is it genetic or environmental? I worry about living so close to high voltage electrical lines. I asked my doctor about it but he was not aware of any danger involved. I think it could be a breakdown in our food supply. These diseases seem to be increasing and much more commonplace now compared to the 50s and 60s.

Both MS and ALS are caused by genetic mutations but neither is hereditary. The medical and scientific community still does not know what causes MS and ALS.

I don't know if these diseases are increasing. Back in the 50s and 60s the population was less and one had to rely on newspapers or TV for the news so we - ordinary citizens - did not have access to the reported percentages for these diseases based on population count. The medical and scientific community probably had that information.

Now, with better communication and the internet, for example, we can just google that information.

[Thrive]

God Bless kushii. You have a great attitude.

[adoreqvc]

On 1/10/2015 Furry said:

My neurologist prescribes vit.D for me.

Furry,

I take 4 vitamin D caps 50000.

That is 1 vitamin D pill every week for 4 weeks.

With the higher vitamin D dosage, I really feel the difference.

[Thrive]

I hope the vit.D helps me too.

[Helen Bach]

I have MS and it's horrible. I'm not going to sugar coat it. Both ALS and MS absolutely CAN be hereditary. ALS is worse, as it's terminal. MS is not. Also, Vit D won't hurt but it's no cure. By the time a person is diagnosed, it's really too late. MS cluster states are notoriously dark, damp, long winters. It's exhausting to constantly pretend to be healthy all the time

[Reba055]

God Bless all of you dealing with this

[poregirl]

I saw this this week. I'm not sure if it will help any of you.Its a Ted talk on a Dr who cured herself of MS

https://www.youtube.com/watch?v=KLjgBLwH3Wc

[Nonametoday]

On 1/10/2015 Tissyanne said:

On 1/10/2015 Reever said: Is MS worse than ALS? My dear friend was mentioning the other day she thinks she may have ALS. She is experiencing muscle flinches in her legs. The doctor has sent her to a neurologist for a thorough work up. My prayers to all those battling these horrific diseases.

I would say ALS (Lou Gerhig's) sp? is likely much worse.

So would I and I have MS and my BIL died of ALS. I think that is one of the most horrible diseases. But don't speculate on what someone has or might have. That can be awful.

[dooBdoo]

My heart goes out to all of you. I wanted to share a resource you might not know about:

Please take a look at "Patients Like Me." It's a community discussing over 1,000 different conditions, treatments, up-to-date research findings, etc. People can talk with each other, learn about symptoms, share personal experiences, communicate with medical professionals, and much more. They even help you find clinical trials in your locale for your specific needs.

“Our brother Stephen was living with ALS and we thought, ‘there has to be a better way.’ There is. By sharing our experiences, we can all contribute new data that can accelerate research and help create better treatments. Our experiences can actually change medicine… for good.”

Jamie & Ben Heywood
Co-founders, PatientsLikeMe

http://www.patientslikeme.com/

Here's just one page for those with Multiple Sclerosis (over 40,000 forum members):

http://www.patientslikeme.com/conditions/1-multiple-sclerosis