I worked as a volunteer thru my former company at Ronald MacDonald House in NYC. I volunteer now with gravely ill children as a result of that experience
It was heart breaking but so rewarding. The thing that impressed me most were the children themselves. So brave and educated re their disease and chemo. We often did BBQs & special meals for the parents & of course the kids. The smallest child seemed to take care of their parents thru a terrible journey. The parents get free room & board while the children go for cancer treatments but must prepare meals so it was a much appreciated break for these emotionally spent & exhausted parents.
The first time I did the menu, I ordered a lot of ice cream & cookies. But, all the children wanted greens & protein. I offered a little one an ice cream cone & she politely told me that she had to eat nourishing food as she had chemo in the morning & milk products made her throw up. The mother told her that maybe just a mouthful ( to make me feel better I think) & she said “no mom you know how I get” but the child herself said she could eat sherbet so off I went to Dags to get her some.
I relay this story because every child & parent I met were so brave & so appreciative of anything you do for them. The little ones would encourage their parents to rest while we were there & I assured parents their child was safe. I was also a nurse but learned so much about very sick children & their families who faced grave illnesses thru that experience. It really broke my heart when I went back the next week & a child had died & a surviving child relayed their story. These little ones often sat with a dying child as they form strong bonds. It’s really a very special community they form because they live together thru it all
I don’t think it’s disgraceful for parents to solicit funding because they believe in the cause and know it’s important that St Jude continue important work to save & help other children & their families. Every ending isn’t a happy one but St Jude gives children & their families hope & extra time with the sick child. It isn’t easy for these parents to do the commercials.