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03-17-2015 10:09 AM
03-17-2015 12:28 PM
(((amiracleneeded)))
I'm just now seeing this. I can't begin to imagine what you, your son, and your entire family are feeling. I want to offer my prayers. Life is so precious and so fleeting. I have faith you're in good hands, and in my belief system that means God's hands. Please remember to take good care of yourself, because you need to be strong and well, too.
As mom2twocutes said beautifully, "lifting you up."
03-17-2015 12:48 PM
Amiracleneeded: I am praying that you get just that, the miracle that you, your DS and your family need at this moment. If you could see all of the posters on this thread typing out their responses, I am sure you would be astounded at all of the tears that flow. Blessings to you today!!!
“You keep track of all my sorrows. You have collected all my tears in your bottle. You have recorded each one in your book.” Psalm 56:8 (NLT)
03-28-2015 07:21 PM
...........bumping up information.....beginning from AMIRACLENEEDED: her story as the Original Poster will be seen as anyone scrolls up^^.
From>March 10th, 2015
_Naes
03-28-2015 07:26 PM
Sending good wishes to you and your son. Hope you get good news soon.
03-28-2015 08:03 PM
An update on my son.
They have held off presenting his case to the lung transplant board for a couple of weeks. We had his regular doctor appointments with his pulmonary and cardiologist doctors. We were hit with him seeing a Nephrologist and getting tests for his kidneys.
He may have to have a kidney transplant added to the lung transplant list presented to the board.
His doctors feel the board will ask questions about past testing levels that have to do with his kidneys /liver (creatine, alkaline phosphatase, etc.) and they want to be ready to answer all questions. They keep saying his age is on his side and the board takes that into consideration.
I could see his face when they mentioned the possibility of a kidney transplant too. He bounces back with a positive attitude quick, but that is the face he shows us.
Please keep my son in your prayers.
*They didn't mention any thing more regarding the heart.
I hope the webmaster will allow me to keep updating on this thread.
03-28-2015 08:34 PM
03-28-2015 10:23 PM
Miracleneeded--Keep the faith, it's amazing what they can do with organ transplantation nowadays. It's almost like nothing's impossible. Also, keep in mind that if you run into roadblocks, other hospitals will do cases that have been turned down previously. Don't stop believing!
Goodday--Don't know if you went to Northwestern's 50th anniversary celebration (transplants). I met Dr. Levanthal who does kidney transplants. Can't remember how long he's been practicing at NW. Wonderful man. They are all miracle workers!
03-29-2015 12:24 AM
On 3/28/2015 Lucky charm said:Miracleneeded--Keep the faith, it's amazing what they can do with organ transplantation nowadays. It's almost like nothing's impossible. Also, keep in mind that if you run into roadblocks, other hospitals will do cases that have been turned down previously. Don't stop believing!
Goodday--Don't know if you went to Northwestern's 50th anniversary celebration (transplants). I met Dr. Levanthal who does kidney transplants. Can't remember how long he's been practicing at NW. Wonderful man. They are all miracle workers!
OMG! They are the best. Dr. Levanthal and Abecassis. DH now follows with Dr. Fiederwald on a yearly basis.
We were not in town. I do follow them on FB. They have another event coming up but at this time we are dealing with my elderly father who we are taking for multiple tests. He lost the site in his eye last November due to a slight stroke.
DH did a lot of research before he decided on Northwestern. Living in Chicago, he had many good options but Northwestern stood out with the highest success rate and the fact they do not use steroids unless absolutely necessary.
03-29-2015 12:42 AM
Just said a prayer- please dear Lord give this family strength and guidance through this process, and please dear Lord give
William life and happiness - In Jesus name I pray
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