Community Chat

[LilacTree]

On 4/12/2015 HisElk said:

On 4/12/2015 MidNight said:

Well well Survivedone is back with all her know it allness and chastising posters AGAIN.

Just ignore her Ford.

I agree; her last post made me shake my head. Ford, save your fingers and time from typing anymore responses to this one. That's my opinion.

Already decided that. She's a new one to me, never heard of her.

[MidNight]

On 4/12/2015 Ford1224 said:

On 4/12/2015 MidNight said:

Well well Survivedone is back with all her know it allness and chastising posters AGAIN.

Just ignore her Ford.

I never heard of her. I have already decided to ignore her. She makes no sense anyway.

I want to keep everyone posted on the mold issue, so I hope this thread is not poofed because of one troublemaker.

Thanks, MidNight.

She was on the beauty board last yr chastising others on using there Tria laser wrong.She thought she was a expert on using it and was very condescending to other posters.Take care and wish you and your family the best!Btw,has your DD researched eating organic only fruits and veggies?...Roundup is whats used on conventional and is very toxic and can add much stress to the immune system

eta she thought.

[LilacTree]

On 4/12/2015 MidNight said:

On 4/12/2015 Ford1224 said:

On 4/12/2015 MidNight said:

Well well Survivedone is back with all her know it allness and chastising posters AGAIN.

Just ignore her Ford.

I never heard of her. I have already decided to ignore her. She makes no sense anyway.

I want to keep everyone posted on the mold issue, so I hope this thread is not poofed because of one troublemaker.

Thanks, MidNight.

She was on the beauty board last yr chastising others on using there Tria laser wrong.She was a expert on using it and was very condescending to other posters.Take care and wish you and your family the best!Btw,has your DD researched eating organic only fruits and veggies?...Roundup is whats used on conventional and is very toxic and can add much stress to the immune system.

Oh yes, she shops every day for her day's meals. Fortunately, we are located in a very good area for all kinds of food stores, so it's easy for her to find the natural and organic foods she needs. She did go off for a few weeks during the move which is probably why her Lyme doc told her she made no progress. She's back on track now and, other than yesterday, is resting a lot.

[ROMARY]

OMGosh..........I just tuned back in. Hopefully there will be good news early next week, O/P. Try to have a good, restful afternoon/evening.

[HisElk]

On 4/12/2015 ROMARY 1 said:

OMGosh..........I just tuned back in. Hopefully there will be good news early next week, O/P. Try to have a good, restful afternoon/evening.

Realizing my post is off topic, I just wanted to say, Romary 1, IMO, your posts are very well said and kind. It is refreshing to read them.

[Toppers]

On 4/12/2015 SurvivedOne said:

On 4/12/2015 finch said: "Erin did go to the Lyme doc yesterday and he told her she has made no progress. She cannot go to the "next level," whatever that means. So I expect her to stay in bed most of the time for now. She probably overdid too much and didn't stick to her diet. We are both pretty depressed." Ford, I am not a regular poster on this board, but I have read about your daughter having Lyme. Most of my family has had Lyme or one of its confections. The doctor needs to explain what he means by going to the "next level". I have never heard this. I wish I could give you the name of a very good doctor that treats Lyme patients successfully. She is in north jersey, but worth the trip. Spends lots of time with her patients.

ITA with what this poster wrote. Have read much of what OP has written in the past. Having been diagnosed with Lyme Disease myself, alot of what has been written by the OP I don't understand. I have been my own advocate, made it my job to seek out all the resources, professionals I possibly could. As well as liase with those who are going through exactly what I am. That has been my drive, my mission. It is my body, my life. My mother is wonderful, my support but she is not the one with this disease...I am. It is an uphill, ongoing process, journey. As is for those who have a slew of diseases that are beyond debilitating. I don't know what the "next level" means either. I have wonderful care...my own physician, those of whom I have been referred. Proper nutrition, doing whatever necessary, what I have been taught to boost my immune system and is crucial. Those who I have been referred to prior and did not help, they were gone. I have a computer, a telephone, a brain...and means of transportation. Those who will offer transportation if/when I am not able. No one has stolen my mind. We have all gone through a slew of trauma in our lives, no one is unscathed. But we are grown women now and whatever has happened in our past, we must deal with what is in our present. In order to become well, to move forward. To thrive when we are able. I have no space now for any drama whatsoever so refuse to allow such. If I lived in a rental at this stage, any issues with mold, I would move heaven and earth to be out of there. The possibility of my immune system being compromised whatsoever, would never allow to happen. Whatever the cost.

If you say that you have the same disease yourself, then you should know yourself that people can have the exact same autoimmune disease, but have the same disease affect them differently.

For someone that claims to have it, it appears to me that you are not showing any kind of empathy or kindness towards either Ford or her daughter, and that is what I would expect from someone who has any kind of autoimmune illness of any kind.

In my family, my husband helps me and advocates for me. That doesn't make me a "weak" person. It just means that he loves me and helps care for me, as a sign of his love for me. I am grateful for it.

[LilacTree]

On 4/12/2015 Justice4all said: F them Ford....this too shall pass

Are you sure you're not from Jersey?

[LilacTree]

On 4/12/2015 HisElk said:

On 4/12/2015 ROMARY 1 said:

OMGosh..........I just tuned back in. Hopefully there will be good news early next week, O/P. Try to have a good, restful afternoon/evening.

Realizing my post is off topic, I just wanted to say, Romary 1, IMO, your posts are very well said and kind. It is refreshing to read them.

I agree. I love Romary, she is always sweet and kind.

[LilacTree]

On 4/12/2015 ROMARY 1 said:

OMGosh..........I just tuned back in. Hopefully there will be good news early next week, O/P. Try to have a good, restful afternoon/evening.

I will, thanks Romary.

[LilacTree]

On 4/12/2015 northernlights said:

On 4/12/2015 SurvivedOne said:

On 4/12/2015 finch said: "Erin did go to the Lyme doc yesterday and he told her she has made no progress. She cannot go to the "next level," whatever that means. So I expect her to stay in bed most of the time for now. She probably overdid too much and didn't stick to her diet. We are both pretty depressed." Ford, I am not a regular poster on this board, but I have read about your daughter having Lyme. Most of my family has had Lyme or one of its confections. The doctor needs to explain what he means by going to the "next level". I have never heard this. I wish I could give you the name of a very good doctor that treats Lyme patients successfully. She is in north jersey, but worth the trip. Spends lots of time with her patients.

ITA with what this poster wrote. Have read much of what OP has written in the past. Having been diagnosed with Lyme Disease myself, alot of what has been written by the OP I don't understand. I have been my own advocate, made it my job to seek out all the resources, professionals I possibly could. As well as liase with those who are going through exactly what I am. That has been my drive, my mission. It is my body, my life. My mother is wonderful, my support but she is not the one with this disease...I am. It is an uphill, ongoing process, journey. As is for those who have a slew of diseases that are beyond debilitating. I don't know what the "next level" means either. I have wonderful care...my own physician, those of whom I have been referred. Proper nutrition, doing whatever necessary, what I have been taught to boost my immune system and is crucial. Those who I have been referred to prior and did not help, they were gone. I have a computer, a telephone, a brain...and means of transportation. Those who will offer transportation if/when I am not able. No one has stolen my mind. We have all gone through a slew of trauma in our lives, no one is unscathed. But we are grown women now and whatever has happened in our past, we must deal with what is in our present. In order to become well, to move forward. To thrive when we are able. I have no space now for any drama whatsoever so refuse to allow such. If I lived in a rental at this stage, any issues with mold, I would move heaven and earth to be out of there. The possibility of my immune system being compromised whatsoever, would never allow to happen. Whatever the cost.

If you say that you have the same disease yourself, then you should know yourself that people can have the exact same autoimmune disease, but have the same disease affect them differently.

For someone that claims to have it, it appears to me that you are not showing any kind of empathy or kindness towards either Ford or her daughter, and that is what I would expect from someone who has any kind of autoimmune illness of any kind.

In my family, my husband helps me and advocates for me. That doesn't make me a "weak" person. It just means that he loves me and helps care for me, as a sign of his love for me. I am grateful for it.

I don't think this person has it in her to understand love and caring. Perhaps she has no one to advocate for her and if that is so, I feel sorry for her.