Community Chat

[SurvivedOne]

On 4/12/2015 SugarNSpice said:

On 4/12/2015 SurvivedOne said:

If your daughter has received a medical diagnosis of Lyme Disease, nothing whatsoever to do with what you "have not done or am not doing". Your daughter has to be the one to fight, to want to fight. For herself. No one on this planet can do that for her.

People who have someone there to fight with them, have a better chance and a better outlook of wining that fight.

Sometimes they need someone fighting for them. They may be feeling down from their illness, they may not have the strength to research for new treatments, hospitals or more knowledgeable specialist. Sometimes they need someone to tell them it's time to get up and get out of bed.

People who care about you, who love you, who are your support system are exactly that. There to support, to be there, to kick you in the a**, to love you through it all. But they cannot fight the fight FOR you. If those who love you could, imagine all the less suffering there would be in the world.

[LilacTree]

On 4/12/2015 SugarNSpice said:

On 4/12/2015 SurvivedOne said:

If your daughter has received a medical diagnosis of Lyme Disease, nothing whatsoever to do with what you "have not done or am not doing". Your daughter has to be the one to fight, to want to fight. For herself. No one on this planet can do that for her.

People who have someone there to fight with them, have a better chance and a better outlook of wining that fight.

Sometimes they need someone fighting for them. They may be feeling down from their illness, they may not have the strength to research for new treatments, hospitals or more knowledgeable specialist. Sometimes they need someone to tell them it's time to get up and get out of bed.

SurvivedOne

You have no idea how hard my daughter has fought. She has never put this on any of us but herself. She takes herself to the doctor, she has done hundreds of hours of research and probably knows more about Lyme Disease than anyone I know. She is intelligent, brave, and proactive in her quest to get better.

She doesn't just have a case of Lyme, she has had chronic ongoing Lyme for 30 years that has affected her brain and nervous system. She is no neophyte to this disease and I resent your implications that she is using this for "drama." You have no right to criticize her.

And she is just as involved in this mold issue as I am. I have no idea where you came from, but please go back.

[LilacTree]

On 4/12/2015 SurvivedOne said:

On 4/12/2015 Lila Belle said:

Gee, give the lady and her daughter a break !

You're not walking in her shoes or privy to private medical info.

Excuse me, but I AM in her daughter's shoes. Assuming she has received the same medical diagnosis as I. I do not want to be privy to anyone's medical info, nor anyone to be privy to mine. I take with a grain of salt the degree of personal information of one's self, family members, constant drama anyone chooses to put out on the internet. I offered my own personal medical diagnosis only as a means of possibly helping this woman who posts continuous and ongoing very personal and detailed scenarios. Do you know for a fact if any or all of it to be 100% true? No one does. I offered a perspective based on my own diagnosis. What I have gotten in return is not asking for help, information, perspective, etc. based on such. But rather defensiveness instead. The need for constant attention from complete strangers seems to far surpass any sense of actual reality. Won't make the mistake of sharing something so personal again.

What "diagnosis" have you offered? And why would I ask you for help? You sound very familiar and I take you with a pound of salt.

I will probably always talk about my personal issues. It's your problem if you read it and don't like it. It's easy just to bypass my posts. You will never influence what I write.

[LilacTree]

On 4/12/2015 Lucibee said: You are welcome. My son is 24 and was diagnosed at 18 and a senior in high school with Crohn's disease. The diagnosis was since changed to ulcerative colitis. He has had more colonoscopies in the last few years than I have had in my life. I am not complaining but I understand. It's always something. You do the best you can do and take one day at a time.

I hope he has not had to have surgery, Lucibee. Is he on prednisone or something similar? My gastro doc prescribes Humira (a biologic) for Crohn's, not sure about ulcerative colitis.

I am so sorry to hear that someone so young has to deal with this. And you, as his mom, have every right to be as involved as you can to support him.

My sincere thoughts go out to both of you.

[SurvivedOne]

On 4/12/2015 Ford1224 said:

On 4/12/2015 SurvivedOne said:

On 4/12/2015 Lila Belle said:

Gee, give the lady and her daughter a break !

You're not walking in her shoes or privy to private medical info.

Excuse me, but I AM in her daughter's shoes. Assuming she has received the same medical diagnosis as I. I do not want to be privy to anyone's medical info, nor anyone to be privy to mine. I take with a grain of salt the degree of personal information of one's self, family members, constant drama anyone chooses to put out on the internet. I offered my own personal medical diagnosis only as a means of possibly helping this woman who posts continuous and ongoing very personal and detailed scenarios. Do you know for a fact if any or all of it to be 100% true? No one does. I offered a perspective based on my own diagnosis. What I have gotten in return is not asking for help, information, perspective, etc. based on such. But rather defensiveness instead. The need for constant attention from complete strangers seems to far surpass any sense of actual reality. Won't make the mistake of sharing something so personal again.

What "diagnosis" have you offered? And why would I ask you for help? You sound very familiar and I take you with a pound of salt.

I will probably always talk about my personal issues. It's your problem if you read it and don't like it. It's easy just to bypass my posts. You will never influence what I write.

Lyme. Lyme Disease. That is MY medical diagnosis! You can do whatever you wish pertaining to "talking about your personal issues". However, as a mother who is so shattered by her daughter's illness, your desire to liase with whomever is going through same as she...would be only beyond thrilled to come across anyone and everyone who is going through exact same. However, you are not which says everything. Carry on instead with what matters most to you here. Ongoing attention for yourself.

[MidNight]

Well well Survivedone is back with all her know it allness and chastising posters AGAIN.

Just ignore her Ford.

[HisElk]

On 4/12/2015 MidNight said:

Well well Survivedone is back with all her know it allness and chastising posters AGAIN.

Just ignore her Ford.

I agree; her last post made me shake my head. Ford, save your fingers and time from typing anymore responses to this one. That's my opinion.

[LucyGoose]

I have mold in my house, but I don't think it's the black kind..... or I'd surely be sick by now.

Ford1224, I hope yours is just something minor and easy to fix, like mildew. I think that's easy to clean up and get rid of.

[LilacTree]

On 4/12/2015 MidNight said:

Well well Survivedone is back with all her know it allness and chastising posters AGAIN.

Just ignore her Ford.

I never heard of her. I have already decided to ignore her. She makes no sense anyway.

I want to keep everyone posted on the mold issue, so I hope this thread is not poofed because of one troublemaker.

Thanks, MidNight.

[LilacTree]

On 4/12/2015 LucyGoose said:

I have mold in my house, but I don't think it's the black kind..... or I'd surely be sick by now.

Ford1224, I hope yours is just something minor and easy to fix, like mildew. I think that's easy to clean up and get rid of.

I am hoping so too, Lucy. Believe me, I am hoping this is minor. I hate the waiting.