Community Chat

[LilacTree]

On 4/12/2015 finch said: "Erin did go to the Lyme doc yesterday and he told her she has made no progress. She cannot go to the "next level," whatever that means. So I expect her to stay in bed most of the time for now. She probably overdid too much and didn't stick to her diet. We are both pretty depressed." Ford, I am not a regular poster on this board, but I have read about your daughter having Lyme. Most of my family has had Lyme or one of its confections. The doctor needs to explain what he means by going to the "next level". I have never heard this. I wish I could give you the name of a very good doctor that treats Lyme patients successfully. She is in north jersey, but worth the trip. Spends lots of time with her patients.

The doctor she is seeing is a Lyme doctor, referred to my daughter by two other doctors, one of whom is a naturopath. They work together on her issues. We have heard of the woman in North Jersey and how good she is. I can't remember her name, but my daughter probably knows it. She is in bed right now and I don't want to disturb her. If we are discussing the same doctor, she is very expensive and extremely interested in becoming well known. Since she is also far away, my daughter decided not to call her.

If you will post her name, I will check with my daughter to find out if it's the same doctor.

Thanks for the information.

[SurvivedOne]

On 4/12/2015 finch said: "Erin did go to the Lyme doc yesterday and he told her she has made no progress. She cannot go to the "next level," whatever that means. So I expect her to stay in bed most of the time for now. She probably overdid too much and didn't stick to her diet. We are both pretty depressed." Ford, I am not a regular poster on this board, but I have read about your daughter having Lyme. Most of my family has had Lyme or one of its confections. The doctor needs to explain what he means by going to the "next level". I have never heard this. I wish I could give you the name of a very good doctor that treats Lyme patients successfully. She is in north jersey, but worth the trip. Spends lots of time with her patients.

ITA with what this poster wrote. Have read much of what OP has written in the past. Having been diagnosed with Lyme Disease myself, alot of what has been written by the OP I don't understand. I have been my own advocate, made it my job to seek out all the resources, professionals I possibly could. As well as liase with those who are going through exactly what I am. That has been my drive, my mission. It is my body, my life. My mother is wonderful, my support but she is not the one with this disease...I am. It is an uphill, ongoing process, journey. As is for those who have a slew of diseases that are beyond debilitating. I don't know what the "next level" means either. I have wonderful care...my own physician, those of whom I have been referred. Proper nutrition, doing whatever necessary, what I have been taught to boost my immune system and is crucial. Those who I have been referred to prior and did not help, they were gone. I have a computer, a telephone, a brain...and means of transportation. Those who will offer transportation if/when I am not able. No one has stolen my mind. We have all gone through a slew of trauma in our lives, no one is unscathed. But we are grown women now and whatever has happened in our past, we must deal with what is in our present. In order to become well, to move forward. To thrive when we are able. I have no space now for any drama whatsoever so refuse to allow such. If I lived in a rental at this stage, any issues with mold, I would move heaven and earth to be out of there. The possibility of my immune system being compromised whatsoever, would never allow to happen. Whatever the cost.

[Lucibee]

You are not useless Ford. You are a very proactive on the things that need to be done. In life ""it's always something"" as the saying goes.

[LilacTree]

On 4/12/2015 SurvivedOne said:

On 4/12/2015 finch said: "Erin did go to the Lyme doc yesterday and he told her she has made no progress. She cannot go to the "next level," whatever that means. So I expect her to stay in bed most of the time for now. She probably overdid too much and didn't stick to her diet. We are both pretty depressed." Ford, I am not a regular poster on this board, but I have read about your daughter having Lyme. Most of my family has had Lyme or one of its confections. The doctor needs to explain what he means by going to the "next level". I have never heard this. I wish I could give you the name of a very good doctor that treats Lyme patients successfully. She is in north jersey, but worth the trip. Spends lots of time with her patients.

ITA with what this poster wrote. Have read much of what OP has written in the past. Having been diagnosed with Lyme Disease myself, alot of what has been written by the OP I don't understand. I have been my own advocate, made it my job to seek out all the resources, professionals I possibly could. As well as liase with those who are going through exactly what I am. That has been my drive, my mission. It is my body, my life. My mother is wonderful, my support but she is not the one with this disease...I am. It is an uphill, ongoing process, journey. As is for those who have a slew of diseases that are beyond debilitating. I don't know what the "next level" means either. I have wonderful care...my own physician, those of whom I have been referred. Proper nutrition, doing whatever necessary, what I have been taught to boost my immune system and is crucial. Those who I have been referred to prior and did not help, they were gone. I have a computer, a telephone, a brain...and means of transportation. Those who will offer transportation if/when I am not able. No one has stolen my mind. We have all gone through a slew of trauma in our lives, no one is unscathed. But we are grown women now and whatever has happened in our past, we must deal with what is in our present. In order to become well, to move forward. To thrive when we are able. I have no space now for any drama whatsoever so refuse to allow such. If I lived in a rental at this stage, any issues with mold, I would move heaven and earth to be out of there. The possibility of my immune system being compromised whatsoever, would never allow to happen. Whatever the cost.

And what of this do you think I have not done or am not doing?

I am sorry, I do not understand your post.

[LilacTree]

On 4/12/2015 Lucibee said: You are not useless Ford. You are a very proactive on the things that need to be done. In life "it's always something" as the saying goes.

Thanks, Lucibee!

[SurvivedOne]

If your daughter has received a medical diagnosis of Lyme Disease, nothing whatsoever to do with what you "have not done or am not doing". Your daughter has to be the one to fight, to want to fight. For herself. No one on this planet can do that for her.

[Lucibee]

You are welcome. My son is 24 and was diagnosed at 18 and a senior in high school with Crohn's disease. The diagnosis was since changed to ulcerative colitis. He has had more colonoscopies in the last few years than I have had in my life. I am not complaining but I understand. It's always something. You do the best you can do and take one day at a time.

[Lila Belle]

Gee, give the lady and her daughter a break !

You're not walking in her shoes or privy to private medical info.

[SugarNSpice]

On 4/12/2015 SurvivedOne said:

If your daughter has received a medical diagnosis of Lyme Disease, nothing whatsoever to do with what you "have not done or am not doing". Your daughter has to be the one to fight, to want to fight. For herself. No one on this planet can do that for her.

People who have someone there to fight with them, have a better chance and a better outlook of wining that fight.

Sometimes they need someone fighting for them. They may be feeling down from their illness, they may not have the strength to research for new treatments, hospitals or more knowledgeable specialist. Sometimes they need someone to tell them it's time to get up and get out of bed.

[SurvivedOne]

On 4/12/2015 Lila Belle said:

Gee, give the lady and her daughter a break !

You're not walking in her shoes or privy to private medical info.

Excuse me, but I AM in her daughter's shoes. Assuming she has received the same medical diagnosis as I. I do not want to be privy to anyone's medical info, nor anyone to be privy to mine. I take with a grain of salt the degree of personal information of one's self, family members, constant drama anyone chooses to put out on the internet. I offered my own personal medical diagnosis only as a means of possibly helping this woman who posts continuous and ongoing very personal and detailed scenarios. Do you know for a fact if any or all of it to be 100% true? No one does. I offered a perspective based on my own diagnosis. What I have gotten in return is not asking for help, information, perspective, etc. based on such. But rather defensiveness instead. The need for constant attention from complete strangers seems to far surpass any sense of actual reality. Won't make the mistake of sharing something so personal again.