Community Chat

[Spurt]

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@on the bay wrote:

@Ms tyrion2-

I'm so glad they found something that works for you and what a wonderful attitude you have!

@Spurt-

Your post!

My mother had a bad attack of kidney stones when she was in I think it was Spain. Years ago! She said they gave her a pain medication that took away the pain but had no side effects like nausea, or feeling high, just took away the pain.

She never heard or saw of it here in the states. For years I wondered about that and what it was.

I remember researching this and finally coming across a  drug for pain that is used in Europe but not here. I've since forgotten the name of it.

As for cancer treatments, I think some are very fortunate and we don't know why others aren't. It seems we hear of some new treatments but then we don't. I know they are having some success with targeting the cancer cells with immunotherapy?

I do know my father who died while I held him in my arms, agreed with a friend that they would both not do radiation again.

We believe the radiation helped to contribute to his death. Not that he would have lived a tremendously long time.He had esophagael cancer, was treated and then had prostate cancer. He was the first to be treated with targeted radioactive seeds in his state.

We think they gave way too much radiation to his espohagus. So all these treatments are scary.

I don't know what I would do if faced with cancer. I guess none of us knows until we face it.

I'd like to hope that cures aren't surpressed because big pharmacy would lose money. Maybe there is often not enough money to fund new treatments. I don't know. It is scary to think about what the greed for money can

do.

I know in some way most all of us have been struck with cancer or have a loved one who has. It is hopeful to always read of new treatments but I guess like all treatments and drugs, they will not always cure nor help everyone. It seems to be something we all face and can't get away from. 

It will be wonderful if cancer is ever obliterated from our lives wouldn't it?! 

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@on the bay

So sorry to hear about your dad and his tough battle fighting cancer.....

Its a tough disease and you wonder if the treatments contribute to it spreading or if treatment side effects are just as deadly as the cancer.....

Yep genetics and immune therapy seemed to be the newest in treatments not only for cancer, but other diseases and ailments as well........... 

I am all for research and finding a way to put cancer in remission or find a cure.....We have a good UH that is involved in research, but I dont like CCA screening the cancer cases to scew the numbers to make it look like their better than anyone else.............

As for drug companies---just look what happened with the Epi-pen and the outrage, and later the CEO ended up in jail for fraud for something else, ....thats just the tip of the iceberg!!!.....

And if its not cancer, more than likely you have to deal with heart disease or kidney problems...etc

[on the bay]

@lulu1-

I know it must be so scary and unbelievable!

I hope your surgeon gives you confidence and reassurance and that it is a good visit (if an oncologist appt can ever be "good") I hope all will be well with you!

If I ever have to face this myself, I'm going to remember what @Ms tyrion2 said-I will wear my earrings and my lipstick!

I also like to wear very bright colors to cheer myself and others up when I'm going for a not fun appointment. Kind of defying the dread!

My thoughts will be with you as you go tomorrow!

[cherry]

Best of luck @lulu1  rememeber ,you can, if you think you can...I think you can ,God bless

[Spurt]

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@lulu1 wrote:

I've taken time out of my pity party to read every comment here.

Tomorrow I meet my oncology surgeon.  The last 3 weeks have been a blur of testing leading up to the words I dreaded hearing.

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@lulu1

Prayers and all the best for you....

[151949]

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@Vivian wrote:

I find those ads obnoxious and misleading. They try to portray their hospitals as able to work miracles, as if places like Sloan Kettering, for example, are inferior. It’s absurd but when people are desperate, they may be willing to believe anything that gives them hope. There are wonderful not-for-profit hospitals around the country. University hospitals in every state are engaged in research, clinical trials, and state-of-the-art treatment. I admit that I’m bothered by hospitals whose main goal is making money from cancer. As the O/P wrote, you are not allowed in the door unless and until your insurance checks out. Compare that to St. Jude’s, for example.

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Something bthat bothers me about ST Judes is right in the name --St Judes Childrens RESEARCH hospital. Are they giving the best drugs or are they giving what ever is on trial at the moment? Is your child getting a drug or a placebo? Do they know the perfect dose? I find that word RESEARCH unsettling.

[Spurt]

@on the bay

Im a sports fan and I was thinking how many of the professional athletes go to Europe for treatment for an injury when they can afford to go to the best doctors and hospitals in the U.S. ......that does make one pause...........

[trenet]

@Spurt

I’ve mainly read about professional athletes getting treatments in Europe for injuries and injury-related damage - some of which isn’t available here, or not available for the specific type of injury repair. 

Team doctors often won’t approve treatment that doesn’t conform to US medical standards and, even when not technically illegal, if it’s sort of an off-label use or experimental treatment, the teams won’t approve. Free agents have more leeway. (Some athletes are also willing to try other experimental treatments that have anecdotal but, not clinical, double-blind studies to back their usage.) 

Much of what athletes seem to be getting have been in the area of stem cell transplants and platelet-rich plasma therapy.  Unfortunately, sometimes the treatments don’t “take” - such as Peyton Manning’s stem cell transplant for his neck.   

[trenet]

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@lulu1 wrote:

I've taken time out of my pity party to read every comment here.

Tomorrow I meet my oncology surgeon.  The last 3 weeks have been a blur of testing leading up to the words I dreaded hearing.

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@lulu1

Thinking about you this morning. You will find strength you didn’t realize you had.   Laughter and a sense of humour always helps.  I have also found that little, beautiful things help too. For me, it’s often been afternoon tea with a beautiful flower on my tea tray.  

[Cakers3]

I don't have an opinion about the organization in of itself.

I do feel sad when they do not update the patients in the commercials.

The first one I remember is Dawn - and she did pass away.

It kind of leaves me wondering about the dad with colon cancer, too.

I realize the purpose is to promote the centers but for me I would hope for the best for the ones who are in those commercials.  And of course they are not going to say so-and-so died.

[lovesrecess]

There is no hospital or treatment facility that can 100% guarantee they can cure anyone who has cancer. I think the commercial infers they can. Every person with cancer is different and every cancer is different. Not a fan of this commercial. It implies false hope and it preys on a patients desperation if they are not doing well.