glb613 I wanted to reply to what you said a thread yesterday but then the thread was deleted.
This was what you posted:
"That's what I did. When I was working full time, I had a housekeeper because I really needed the weekends to rest. But once I retired, I started doing everything around the house with the exception of mowing the grass. It was difficult at first and I had to pace myself. With time, I found I had significantly less pain doing more. I was skepical at first, my Rheumatologist kept telling me exercise would lessen the fibro pain, because most everything I did made me feel worse. Once my muscles got stronger and use the the exercise/activity, the awful pain did go away. I also haven't had any flares since I increased my activity and exercise.
The bottom line is, you aren't going to convince someone to do what they don't want to do. Only when their behavior doesn't work anymore will they change."
I can't explain how hard I pushed. I was exercising. Walking to the track from my house and walking around the track at least five days a week. Doing my best to try and keep my job, just ask my supervisors and doctor how I was in no condition to work when it came down to it and I had to take a medical leave. I was dieting too and losing weight. Trying to keep house and take care of my child but failing miserably. I had taken so much OTC tylenol, advil, aleve that I caused myself liver damage. AND still the pain worsened. It continues to worsen.
It is extremely depressing and gets frustrating and I hit times of giving up. Wanting to hide in a cave. If you are in pain while you are wake maybe being aleep is preferrable. Although I have been known to have pain in my sleep even. Dreaming in my sleep of pain. Dreaming of being tortured or varies scenarios of pain situations.
My mental health therapist wants me to get up early in the mornings around 7am instead of sleeping late. But if I have to nap during the day than that is ok. I try to do this. But I have never been a morning person.
So about pacing myself. I put some laundry in the washing machine and some in the dryer, maybe even fold some and than sit down to rest. Of course I have to rest my arms while doing it, in between folding a few towels at a time or hanging a shirt or two on a hanger because of the pain in my arms. But I do this little bit and sit down in the living room for a little bit and what happens? I fall asleep and even if I haven't had any strong pain meds to make me sleepy it doesn't matter, some days I will still fall asleep in the chair and be like I am in a coma for hours.
Fatigue is part of the fibromyalgia in itself I suppose but the pain is so exhuasting, more so than the medications from what I can tell from my experience.
I have also noticed that tramadol makes me more sleepy than oxycontin even though it is not a federally controlled narcotic. Go figure. It helps the pain better too though if it would just last longer.
And about my weight and losing weight helping the pain. I had one doctor at a pain clinic hounding me constantly about it but the rheumatologist said yes it would help with the pain in the lower part of your body but not your arms and shoulders. Which at that time was where the worse of the pain was. It started at the top and moved down. OK no Easter candy on my basket this year! My pants are feelin a little tight. I need to work on losing another size anyways. Ok, ok.
My pain is in every muscle of my body. Is not left one muscle out. The top of my head. The bottom of my feet. The top of my feet. My arm pits. My chest. My ribs. My stomach muscles. Along with IBS that started in my 20s. I have killer migraines since I was 10 years old and some silent migraines with those hallucination type auras and nausea and vomiting that are pure irritating too. I have horrible back pain in my upper middle and flank area. I saw someone post about pain in her kidney area and being scared her kidneys were going to fail. I can understand that feeling.
I had a pinched ulnar nerve in my left arm a couple of years ago. I had pain and numbness but didn't think anything of it until I noticed I started having trouble holding onto things. The Drs were totally freaked when I said I had only noticed it bothering me for 4-5 weeks. It was pinched really bad. How am I suppose to know when the pain is something to be concerned about it? As everyone throws in my face. I hurt all the time!
Well, anyway guess that thread struck a nerve when I hear people say stuff like fibromyalgia is all in someones head because I suffer so much. It affects all my muscles with a very intense ache, sometimes sharp pains, stabbing pains, burning pains that feel like 2nd burns, yes that much of a burning pain. My skin hurts. There are all kinds of weird sensations and numb tingly feelings too. Then the fibro fog.
I know this is long rant, whew...sorry about that. But yea,, After carrying on like this,,,,I am going to try to get more serious about diet and exercise again. It certainly won't hurt anything. Maybe help my blood pressure again.
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