Community Chat

[Wsmom]

Ohmygosh, @gidgetgh , I am so very sorry to read all of this.  You and your DH will be in my prayers.  

[jubilant]

@gidgetgh 

I feel for you.  My Dad had almost all these same things going on at once and it was so exhausting and heartbreaking for our family.  I can't imagine how it would have been during this pandemic. It would have been so much worse.

I will say that it sometimes  takes days and weeks to regulate meds when they have both Parkinson's and mild dementia.  When that finally was figured out things did finally get better. The UTI's will have to be watched carefully so nothing else sets in.

I certainly will be keeping you both in my prayers during this very difficult time....and yes, in view of what our troubles can be....haircuts and nails do seem very minor.  God be with you both.

[Kalli]

@gidgetgh , I am sorry you are having to deal with this, especially at this difficult time with regard to the virus.  

My dad has gone through somewhat similar health situations. He's in a nursing home but we were very active in his care and in taking him out regularly, until the NH shuttered its doors to visitors in March.

Dad has dementia and recently started falling.  He did test as having a UTI and was treated but still his balance wasn't good.  He was sent to the hospital and they found his *sodium* level was low. We were told that this can be a source of several of his symptoms which were disorientation, loss of balance, weird behavior, etc. I mention this to you in case they didn't check your husband's sodium level, you may want to ask about that. Just a thought.  I never knew this was such an issue with dementia patients.

I'll say prayers for you and your husband.  And please take care of yourself.  

[Mominohio]

Even though you didn't ask for it, I will be praying for you both, and all the medical staff around him, that they have the insight and tools to see and do all they can for him. 

I understand your frustration and fear. I had to leave my mom in an ambulance and let her go to the er alone during this pandemic. I hated it. 

I know we can not do much, but just to be there, ask questions, get full reports face to face with the different providers in absolutely necessary, in my opinion when having someone in the hospital. I'm glad you will be getting in starting tomorrow and that should help this situation feel as normal as it ever can, and you should have more control and input. 

Please take care of you during this time. Ask for help, vent, whatever it takes to keep you strong during this time. 

Please keep us posted.

[dex]

@gidgetgh @You are beyond challenged at this time.I am so sorry to hear about your dh.I will pray that the doc will find what is going on and have a good treatment for it.

I hope that you can get some much needed rest in th3 mean time.I don't know why they couldn't allow you to stay with your dh at the hospital but good that you will be able to starting tomorrow.I am sending hugs and prayers to you.

[MoonieBaby]

@gidgetgh 

My heart breaks for both of you. Him for his suffering and pain, and you for helplessly unable to give him respite. The grief was palpable in your post. I'm truly sorry and have no realy words of comfort. 

I know prayers help (and yes, I will add you to mine) but they are of little solace when improvement or relief is not seen.

Continue to be strong for him and advocate as you have, make your time together as caring and safe as possible.

[Trinity11]

I am praying for you @gidgetgh .

Fifteen years ago I was the caretaker for my dad with dementia and Parkinson's. He, too, had an undetectable UTI and I pushed them not to go by the sample rather have it cultured. It took a couple more days but it was the reason he was disoriented. With proper antibiotic typing, he was discharged and it never happened again.

I do hope that since you will now be permitted to see him in the hospital, you will have better access to his treatment plan. Please take care of yourself during this most difficult time and know I am thinking of you.

[golding76]

Your nightmare of getting care and a cure for your dear husband's sudden onset of concerning symptoms and your not being able to remain with him while being examined or in the hospital tore at my heart.  As someone who is intimate with the destruction that Parkinson's brings to a cherished person, I felt your pain and frustration very deeply.

Starting tomorrow, when you are able to visit him, I hope you find things are better for him and that he is emerging from whatever disturbed his system.

I will pray for your husband and you.  Hope for the best.

[Bri369]

@gidgetgh  I'm sure your husband is being well taken care of. 

What's concerning is who is taking care of Gidget

[NicksmomESQ]

@gidgetgh   My heart truly hurts for you.I can't imagine what you're going through. I will keep both you & your DH in my thoughts. Please take care of yourself. You matter too. You can't take care of your husband if you don't take care of yourself.💐