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‎11-04-2014 01:19 AM
‎11-04-2014 01:36 AM
scottie: Thank you for posting this. A family member is consulting about this.
‎11-04-2014 01:47 AM
On 11/3/2014 Cakers1 said:scottie: Thank you for posting this. A family member is consulting about this.
I hope your family member gets in touch with www.bmtinfonet.org
Seriously, they are just the best organization. I have been affiliated with them for over 20 years and they are an amazing organization that will help you all the way. If I can answer any questions, please feel free to ask. My dd is 19 years post transplant.
‎11-04-2014 01:53 AM
scottie: Thank you for the link. This has been brought up recently in his treatment plan so we are hopeful. They were addressing using skin cells? I'm not sure if the marrow was brought up but I'll pass the info along.
So glad your dd is doing well. (((hugs)))
‎11-04-2014 01:55 AM
On 11/3/2014 Cakers1 said:scottie: Thank you for the link. This has been brought up recently in his treatment plan so we are hopeful. They were addressing using skin cells? I'm not sure if the marrow was brought up but I'll pass the info along.
So glad your dd is doing well. (((hugs)))
best wishes cakers. (((hugs back atcha))).
‎11-04-2014 01:56 AM
‎11-04-2014 12:22 PM
‎11-04-2014 12:22 PM
If anyone is thinking about registering perhaps this story will give you the nudge you need to do it:
Selected excerpts from http://www.wfaa.com/story/news/local/2014/10/29/boy-with-rare-blood-disease-needs-marrow-transplant/...
There's a five-year-old boy in Fort Worth who needs your help.
His name is Cline, and he has a very rare blood disorder.
He looks healthy, but Cline's illness has destroyed his immune system. A simple mosquito bite? That can send him to the hospital for weeks.
Cline needs a bone marrow transplant. But of the 11-million registered donors out there, there's still no match.
‎11-04-2014 01:31 PM
On 11/4/2014 Marp2 said:If anyone is thinking about registering perhaps this story will give you the nudge you need to do it:
Selected excerpts from http://www.wfaa.com/story/news/local/2014/10/29/boy-with-rare-blood-disease-needs-marrow-transplant/...
There's a five-year-old boy in Fort Worth who needs your help.
His name is Cline, and he has a very rare blood disorder.
He looks healthy, but Cline's illness has destroyed his immune system. A simple mosquito bite? That can send him to the hospital for weeks.
Cline needs a bone marrow transplant. But of the 11-million registered donors out there, there's still no match.
Thanks Marp. I wonder what his disorder is? It sounds like it might be Aplastic Anemia.
Also, I don't know if this is still the case, but people of African American descent and Asians have a hard time getting matches also.
‎11-04-2014 02:32 PM
On 11/3/2014 scotttie said:On 11/3/2014 Cakers1 said:scottie: Thank you for posting this. A family member is consulting about this.
I hope your family member gets in touch with www.bmtinfonet.orgSeriously, they are just the best organization. I have been affiliated with them for over 20 years and they are an amazing organization that will help you all the way. If I can answer any questions, please feel free to ask. My dd is 19 years post transplant.
Scottie, I'm so glad you posted the alert! ((((( You and your daughter )))))
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