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08-25-2014 01:27 AM
I've seen that video and it's so tragic. I hope the next generation of ALS patients will get to take advantage of a cure because of what this generation did to raise awareness.
08-25-2014 01:37 AM
I saw that on facebook. That says it all, very touching.
08-25-2014 04:44 PM
Gee wiz what a sad video made me tear up.I was reading a lot of the comments there were a few saying something about Lyme disease being the culprit any one know about this?I think i am going to google more info.I find this disease to be the worst anyone can have.Like someone said they can spend billions going into space but can't or won't do anything for ALS.
08-25-2014 05:03 PM
That's a powerful video, thanks for posting. People need to see this, as little was known about ALS until the Ice Challenge took off.
08-25-2014 05:07 PM
As a friend of a person diagnosed with ALS last fall I am glad this young man made this touching video. He and so many others like him are the reason we are doing the Ice Bucket Challenge, and who better than someone who is living it day by day can be the best advocate to get the word out. My friend researched his family background and there are no known relatives who were diagnosed with ALS. It doesn't run just in families. It can hit anyone at anytime. I am pleased this challenge has placed so much focus on ALS.
08-25-2014 05:45 PM
I saw this video on Ellen's (DeGeneres) Facebook page. She said she would take his challenge if he came on her season opener on 9/8...I hope he does, I would like to see more of him and hear more of his story.
He said that only 30k have ALS, is that correct? The reason I ask is because I personally know 2 people, and that seems odd that I would know 2 out of 30k.
2, 30k, who cares...1 is too many as far as I am concerned.
Horrible disease. Horrible.
08-25-2014 11:01 PM
Here's to those making a difference !
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