Community Chat

[butterfly123]

@Twins Mom 

I was hoping @lolakimono may have some information for your daughter. 

[butterfly123]

@Twins Mom 

Does your daughter have the “find me gluten free” app?

[Mindy D]

There’s a big difference between having celiac disease and gluten intolerance. 

“We use “wheat intolerance syndrome” when referring to the entire category of gluten issues: celiac disease, non-celiac gluten sensitivity and wheat allergy. Celiac disease is an inherited autoimmune disorder that affects the digestive process of the small intestine. “Non-celiac gluten sensitivity” (what many call “gluten intolerance”) causes the body to mount a stress response (often GI symptoms) different from the immunological response that occurs in those who have celiac disease (which most often causes intestinal tissue damage). As with most allergies, a wheat allergy causes the immune system to respond to a food protein because it considers it dangerous to the body when it actually isn’t. This immune response is often time-limited and does not cause lasting harm to body tissues. June, 2016”

from https://www.cureceliacdisease.org/faq/what-is-the-difference-between-gluten-intolerance-gluten-sensi...

[Twins Mom]

@Mindy D
Thanks for your bountiful information. Lots to digest and learn.

[Mindy D]

I suggest that you find out, through testing, or from referring to previous medical records, whether your daughter had celiac disease, gluten intolerance or wheat allergy. You can call gastro office for clarification. Ask to speak with the nurse and ask the nurse to ask the doctor to check. Ask nurse to call you back or you call nurse back. You could make a follow up appointment to get dietary advice based on the diagnosis. This should be your first step.

[Mindy D]

Listings of gluten free restaurants on The National Celiac Association website
https://nationalceliac.org/gluten-free-restaurants/

[Mindy D]

More information on gluten illness, including gluten ataxia, here
https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/gluten-free-diet/...