Community Chat

[Mermaid22]

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@Laura14 wrote:

@ellaphant  That is actually incorrect based on what I have previously posted especially with Alzheimers. 

I am done posting in this thread since I've made my point and it's becoming off topic. 

This is a subject I am well versed in and it's tough to watch misinformation being put out there when the right information could actually help someone or someone's loved ones.

It's one thing to disagree.  It's another to sneer at even the possibility of there being a better, scientifically studied way.   When we are posting that anything that increases blood flow is good, actual patients who have high blood pressure or the experience of a stroke will tell you differently. 

We all remain ignorant and far worse off if we do not keep learning and adusting our knowledge base from time to time when science says we should.   

@Mermaid22  If you have any questions about the experience of testing and the protocols that are currently recommended for carriers, I'll be happy to answer them as per your original topic. 

My apologies for getting involved in other things for a topic that is beyond personal when you really go through it.  I know it's tough when a positive test result comes back for anything, expected or not.  I hope you have a negative result and this can be a true non-issue for you.   

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Thank you so much for your advice. As a I stated in my original post, I am only interested in people who have taken the test and sharing their experiences. I appreciate your candor. Your answers have been most helpful! People mean well , but I’m only interested in responses that have gone through the process.

[Laura14]

@Mermaid22  That's a good site.  I found it very informative when I was first starting out.  

[Laura14]

@Mermaid22  I will tell you from my own experience, if it comes back positive, take the time you need to do whatever you need to do for yourself emotionally.  For as long as you need to do it. 

And then you do have to get into a mindset of you can't change it, science is learning more every day, there are protocols today that are working if it does develop, and there is something you can proactively do to prevent it now. 

And then you get to doing it!  

The best book I found if you do decide to really delve into the current gold standard protocol is "The End of Alzheimers" by Dr. Dale Bredesen.  You can skip the science and he flat out tells you that and then just read the different protocols (supplements, daily activities, nutrition) that are working for him and others. He has about 3-4 different categories of Alzheimers that he recognizes and what he focuses on for each.  

It is an easy read and I had my outline and plan in hand very quickly.  He also explains it on youtube which you can just listen and take notes.  I think most of the videos are about an hour or less  Dr. Steve Gundry is also very helpful in his talks on youtube too.    

ETA:  Dr. Amen is also another good resource.  He is a brain man by trade and I think he lost his father to Alzheimers.  He is not a specialist in the Alzheimers field but he is a psychologist who has been mapping the brain forever and has clinics around the country so his brain healthy tips and training are also very worthwhile and accessible.  You can sometimes catch his programs on your local PBS.  

[Teddie]

Really great advice, @Laura14.  I appreciate your contributions. 

[Drythe]

@Mermaid22

Please, contact an MD you respect and trust regarding any results about which you are concerned.

I have had this testing done.

Best wishes to you.

[chrystaltree]

This is what is wrong with those for profit, money making DNA sites.   

[Mermaid22]

@Laura14. Thank you so so much for your advice! 

[seaBreeze]

@Laura14

Thank you for your informative insight on the OP's medical question.  And please do not stop posting because of a few poster's nonsense.   

My medical advice comes from a bio-chemist, Ted Broer, and Dr. Jordan Rubin who substantiate their books via empirical evidence on nutrition for improving our minds and body.  Most posters here are not physicians, but ignorance is not an excuse for attacking others who forward knowledge to those in need.  

 @ellaphant

[Laura14]

@seaBreeze Thank you.  To say what we eat doesn't affect our health is like saying water doesn't quench your thirst and make you feel better.  It's just not correct. 

And I knew what I was getting into responding to that post.  I just felt it was too important to really get the right info out.   I was hoping a sincere request for a different and validated point of view would help us finally have a respectful conversation.  I now know it's not ever a possibility and I won't be bothering my pulse with any part of it anymore.  

Intelligent people read this board.  Those interested in anything you or I said here can Google or ask Siri.  It's all right there for them from reputable sources and researchers.

My sincerest hope is that this isn't even an issue for anyone here and everyone is blessed to never have it touch your life.

[Mindy D]

Early onset Alzheimer’s is a genetic disorder. The description you give of your mother’s onset appears to have been late in life. This type of onset is not characteristic of early onset Alzheimer’s and a genetic test will only show if you carry or are positive for the early onset form of the disorder.