Beauty

[monicakm]

@twinny70 

Bless your heart.  I just asked Google about CIPD.  Yes, auto-immune (like MS and Fibro) and yes, demyelination of the spinal sheath.  

[monicakm]

@Katcat1 

I can't take anti-inflammatory drugs.  They make me swell horribly!  

"Go with the flow".  That's something my dad started telling me to do when I was in my early teens! LOL  He'd still be telling me that if he didn't have dementia

[haddon9]

I get tingly and numb fingers and hands once in a while.  I've also noticed it starting last fall. 

For me it's usually how I sleep.  I wake up with numb hands and have to shake them out then I'm fine.  I've noticed that if my head is elevated then my hands don't go numb.  I have a feeling that for me it's either arthritis or something going on with my spine.  

I mentioned it to my PCP over the winter and he suggested that I see a specialist but then the pandemic hit and I really haven't been to see a doctor in person yet.

[Katcat1]

@monicakm  So sorry to hear about your dad.  That can be very tough.  Take care.

[monicakm]

Well this has certainly been an eye opening conversation!   Thanks to ALL that opened up about your own battles.  It has a way of putting things into perspective.  

One other thing I'd like to share if I didn't already.  My daughter makes and sells CBD oil brownies.  She sources her own oil.  It has bits of what looks like leaves in it and gotta tell you, it's not the best tasting brownie she's ever made (she has her own cake/cookie/pastry business) but they DO HELP!  My knee is bone on bone and it's inevitable that I'll have to have surgery but her brownies have made a difference.  They are stupid expensive but the "baker's mom" (that's me) gets them free   This might be something you'd like to look into for help with chronic pain.  When I went to the Dr yesterday I had NO idea I'd limp out of the office having had a cortisone injection   I wish I had more (ANY) pain tolerance!  

[EatWell]

@monicakm 

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@monicakm wrote:

Does anyone here have numb fingertips from neuropathy (or anything else)?  I've been suffering with this since early last Fall.  FOUR Neurontins a day (sigh) keep them from hurting and tingling but they are still numb.  I was shocked at the degree this has affected everything I do with my hands.  Things like folding clothes aren't a problem but  finding and picking up my makeup products and holding on to them can be frustrating.  Driving a car is ok but typing on this keyboard is NOT.  A kindergartner

could type with more accuracy   False eyelashes...it's a challenge!  Takes me longer to get ready too.  I'm about ready to burn my bras...I'm not a sports bra gal

It could be very serious.
Have you been checked for diabetes?  
If you let it go too long you could end up having your  fingers amputated.

Same if you experience tingling on numbness in your feet/toes.

"Staying safe by staying home"

~Put food in front of me, and I will eat it.~

[vsm]

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@monicakm wrote:

@vsm 

I've been on Neurontin for years for nerve pain due to MS...2 400s/day.  It was my neuro that increased it to FIVE a day   I've never pushed it that much tho.  I feel like a blooming idiot with 4 per day.  Not nice to one's cognitive abilities.

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I understand, @monicakm , and I feel for you.  MS is really, really tough.  I was on neurontin for a different condition.  It wasn't strong enough, and I had to switch to Tegretol, which made me feel like a zombie, so I moved to Keppra, which was a godsend and greatly reduced the cognitive problems.  I've read that Keppra might also help with MS-related nerve pain.  I pray that you and your doctor find a way to manage the pain while eliminating the brain fog.  Wishing you the best.

[monicakm]

@vsm 

Thank you for the info about Keppra.  I will be talking to my dr about it as soon as possible.  I don't know what I'd do without Neurotin but I'm all for a medication that will help without the brain fog!

[wagirl]

@monicakm ----I have to admit that while chemo was rough, I am alive and kicking, numb figertips and all---that is a good thing!! but thanks for your kind words. 

Yes I think I have dropped and broken more dishes, mostly glasses, in the last few years than at any time before---I used to sew, and do crafty things that required small motor skills---not so much anymore. I have strength in my hands just not the dexterity=====but I do get out of a lot of dishwashing and drying!!!!  

[wagirl]

@Katcat1 -----yes I did have that numbness in my feet just after chemo and it took several months to actually get much better--felt like I was walking on small pebbles all the time. but for some reason that cleared up and my finger tips did not---so weird, ??!!!