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07-30-2014 04:23 PM
I am posting here because it seems to be a bit selling point for WEN.
I had a discussion at my office today about whether inhaling gluten (like someone tossing grain in the air) can cause a reaction in someone gluten intolerant. Or is gluten intolerance primarily only if the gluten is ingested?
Or would it just cause a reaction if the person were also allergic to wheat?
Thank you in advance for your responses.
Michele
07-30-2014 04:34 PM
07-30-2014 04:44 PM
I have a first cousin with Celiac Disease and he must beware of gluten, which would include inhaling as you described it.
However, though I have gluten antigens and am on a gluten-free diet, this problems resides in my digestive system only.
Edited to add: I was very impressed with "Subway," when DH and I dropped by one day to grab a sandwich. I ordered my sandwich using their gluten-free roll and was very impressed with the training Subway had provided. This included a great many glove changings, including changing the tissue used under the roll, as well as cleaning out the little toaster oven they use, before he put my sandwich inside to warm it.
07-30-2014 05:31 PM
As with any allergen, how somebody reacts is based on each person's tolerance level of the allergen. For example: we all know that many people are allergic to peanuts. some people only react if they ingest something that has anything peanut in it but don't get a reaction to touching or simply being around anything with peanuts, while other people can't be around anything peanut related at all and get a reaction just by coming into a space where peanuts are or have been.
I work with doctors and this is how they explained to me the difference between intolerance and being truly allergic: If a person is intolerant to an allergen then they are not likely to have a serious reaction to the allergen and their symptoms don't require medical care. But a person who is truly allergic will have an allergic reaction to an allergen of which they likely would need medical attention for.
So, to make things very short: it's all dependent of the person who has the allergy/intolerance and what their tolerance level is of the allergen.
07-30-2014 05:35 PM
07-30-2014 05:40 PM
On 7/30/2014 jurby said:As with any allergen, how somebody reacts is based on each person's tolerance level of the allergen. For example: we all know that many people are allergic to peanuts. some people only react if they ingest something that has anything peanut in it but don't get a reaction to touching or simply being around anything with peanuts, while other people can't be around anything peanut related at all and get a reaction just by coming into a space where peanuts are or have been.
I work with doctors and this is how they explained to me the difference between intolerance and being truly allergic: If a person is intolerant to an allergen then they are not likely to have much of a reaction to the allergen. A person who is truly allergic will have an allergic reaction to an allergen of which they may or may not need medical attention for.
So, to make things very short: it's all dependent of the person who has the allergy/intolerance and what their tolerance level is of the allergen.
Well said!
07-30-2014 06:01 PM
Gluten intolerance isn't can't be clinically diagnosed, proven. It's totally subjective and interestingly, the doctor who invented the term and made a millions writing books and giving lectures has recently done a complete about face. He now says he got it wrong, he didn't do enough research and got it all wrong. He now says that gluten intolerance doesn't exist. A person either has Celiac Disease (which is verified by biopsy) or they do not. He says that most of the people who insist that their symptoms (which are subjective and anecdotal) improve when they eliminate wheat, actually have other conditions that go undiagnosed and untreated because they self diagnose and when the insist they are better, their let it go because there is no harm in a gluten free diet. But often the real condition these people have cannot be determined. So, my good friend who is a physician wrote him and asked a question that he hasn't answered yet. Her question was if gluten sensitivity doesn't exist and if patients who have symtoms that respond to a gluten free diet, if he believes that there is a "condition" but doesn't know what it is...why can't it be called "gluten sensititvity"?. At any rate, people who actually have Celiac Disease. Verified by biopsy. Those people can indeed "inhale" gluten. And it doesn't have to be tossed in the air or waved around. Breads etc have "spores" and if a person who has Celiac sits at a dinner table with someone who is eating bread or rolls, that person can breathe in the spores and it's like eating wheat. I would not have believed this if I just read it. But a dear friend was diagnosed with Celiac after 15 years of agony, at the time she had two teenage boys. She's an RN and was so over joyed to get the diagnosis that she was 100% compliant with the diet. But she continued to have symptoms. To jump to the end. The boys ate a regular diet and they ate many meals together as a family. Lot's of sandwhiches and pancakes, crackers and pizza dough in her kitchen and at the dinner table. When a nutritionist told her about the "spores", we all laughed. But she cleaned out her kitchen, started separating foods and no longer shared the dinner table with anyone who was eating a breads etc. And she improved 100% All of her symptoms when away and she's been healthy ever since. A bit lonely and isolated because so many social functions revolve around food. But healthy. As for people who are gluten sensitive, just like the condition itself. If they think that inhaled gluten or breathing in gluten "spores" is detrimental to them, then it is. Because for them, everything is subjective. They have to go by what their body tells them.
07-30-2014 06:20 PM
On 7/30/2014 chrystaltree said:I guess some specialists may have different views on the Celiac subject we have never heard of the bread spore theory. My nephew has no issue sitting at the supper table with loafs of bread or buns. Smelling bread is not even an issue, it is only when ingested through his mouth that gluten will cause a reaction in a Celiac patient. It is the proteins found in the wheat or grains that are improperly absorbed by the stomach that causes a immune response, Celiac. Sniffing brownies, or home baked buns will not do anything. Being in the kitchen while baking and having a huge cloud of flour in the air and ingesting it via the mouth not the nose, can cause a reaction. The wheat or grain proteins have to make it to the stomach to cause a reaction.Gluten intolerance isn't can't be clinically diagnosed, proven. It's totally subjective and interestingly, the doctor who invented the term and made a millions writing books and giving lectures has recently done a complete about face. He now says he got it wrong, he didn't do enough research and got it all wrong. He now says that gluten intolerance doesn't exist. A person either has Celiac Disease (which is verified by biopsy) or they do not. He says that most of the people who insist that their symptoms (which are subjective and anecdotal) improve when they eliminate wheat, actually have other conditions that go undiagnosed and untreated because they self diagnose and when the insist they are better, their let it go because there is no harm in a gluten free diet. But often the real condition these people have cannot be determined. So, my good friend who is a physician wrote him and asked a question that he hasn't answered yet. Her question was if gluten sensitivity doesn't exist and if patients who have symtoms that respond to a gluten free diet, if he believes that there is a "condition" but doesn't know what it is...why can't it be called "gluten sensititvity"?. At any rate, people who actually have Celiac Disease. Verified by biopsy. Those people can indeed "inhale" gluten. And it doesn't have to be tossed in the air or waved around. Breads etc have "spores" and if a person who has Celiac sits at a dinner table with someone who is eating bread or rolls, that person can breathe in the spores and it's like eating wheat. I would not have believed this if I just read it. But a dear friend was diagnosed with Celiac after 15 years of agony, at the time she had two teenage boys. She's an RN and was so over joyed to get the diagnosis that she was 100% compliant with the diet. But she continued to have symptoms. To jump to the end. The boys ate a regular diet and they ate many meals together as a family. Lot's of sandwhiches and pancakes, crackers and pizza dough in her kitchen and at the dinner table. When a nutritionist told her about the "spores", we all laughed. But she cleaned out her kitchen, started separating foods and no longer shared the dinner table with anyone who was eating a breads etc. And she improved 100% All of her symptoms when away and she's been healthy ever since. A bit lonely and isolated because so many social functions revolve around food. But healthy. As for people who are gluten sensitive, just like the condition itself. If they think that inhaled gluten or breathing in gluten "spores" is detrimental to them, then it is. Because for them, everything is subjective. They have to go by what their body tells them.
07-30-2014 06:58 PM
My nephew has a wheat allergy, so almost gluten free, and my sister has been doing it as well and have found that neither of them have constipation as they did before and don't have to take the loads of fiber they did take. I will be trying it as well, since my blood was tested and found negative, but will still explore due to my inability to absorb B12 well. Any advice?
07-30-2014 07:18 PM
On 7/30/2014 tigriss said:I will be trying it as well, since my blood was tested and found negative, but will still explore due to my inability to absorb B12 well. Any advice?
I was tested by blood twice, and both were negative. Biopsy (through colonoscopy) is how it's confirmed.
If you go gluten free, read the labels on EVERYTHING. It's in lots of things that you wouldn't imagine.
Also, when dining out, ask for a gluten free menu. Many restaurants have these now. If they don't, make sure that what you eat doesn't have a sauce or gravy because many of these are made with flour.
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