Among Friends

[SleeplessinSD]

[SleeplessinSD]

[SleeplessinSD]

[Puddles]

[butterfly123]

Hello friends, 

The only new information I have is we spoke to a vascular surgeon’s assistant/nurse and she wasn’t given all the necessary information from the doctor. She hasn’t heard of the diagnosis, not a huge surprise. She called and received all the current imaging and reports and called us yesterday and the surgeon was in emergency surgery. She was hopeful he would call today or early next week. He didn’t call today.

She doesn’t know if he is able to perform the surgery but assured us he would find a qualified surgeon if he isn’t the one.

The doctor who has researched the disease and saw patients at Johns Hopkins has accepted a chancellor position at Washington University in Saint Louis. I left a message with someone there and haven’t heard back. 

There are three places in the world that have researched or are continuing researching this disease. 

I remind my husband we are searching for a needle in a haystack.

 Thank you @Puddles for starting the other thread with beautifulness and wonderfulness like you. I appreciate you.

I hope everyone is well. 

You continue to be in my thoughts and prayers. 

🦋

[butterfly123]

[hellie jo]

@butterfly123  I am so sorry you have to go through this.My thoughts are with you and your DH.I will continue to pray for you.Take care and God bless.

[Puddles]

@butterfly123  Keeping you close in thought and prayer during this time. Much love coming your way too.

[Puddles]

[Puddles]