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03-28-2022 04:42 PM
@Nicknack I have been wondering how you are feeling? I have seen you on various boards but couldn't find how you are.
03-28-2022 05:23 PM - edited 03-28-2022 05:26 PM
@m0rgan I appreciate your asking about me. I haven't been on my laptop as often since my kidney surgery. I've thought about posting an update though. @Dazlin I'm paging you, too, since you asked about my health in the hummingbird thread.
I have had a hard time recovering from my kidney surgery. It is a hard surgery in general, but I think it's been harder because of what I've found out about my health.
As I posted earlier, I thought I might have Lupus or another autoimmune disease and had an appointment with my PCP to discuss this and possibly ask for a referral to a Rheumatologist. I also wanted to discuss something else with her that I had noticed about my pulse rate.
I bought an Apple Watch in November primarily because of the health features. It has a hard fall detection where it will notify emergency services and also an emergency contact. It has a one line ECG which can detect afib. It also reads your pulse and Blood Oxygen. I had checked these things but hadn't gone back to look in detail at trends. I also hadn't realized some of the things that it could do.
Around the time of my surgery I just happened to notice that my pulse had gotten down to 40 one day. Then I looked up how to go back and check what my pulse had been since I got the watch in November. It has gone from 40 - 149 BPM since 11/3/21 when I got the watch. I hadn't had any idea.
Also, I started taking an ECG when I would feel strange, and it was often "Inconclusive." That means that you're not in Afib but something might be going on that the watch can't test for. The instructions say that if you get an inconclusive reading often to let your doctor know. When I felt fine and did an ECG it showed "Sinus Rhythm" which is normal.
When I made my appointment with my PCP I told the scheduler about my pulse. When I got there, the Medical Assistant took me back to the exam room and did an EKG and a type of blood pressure and pulse reading where she takes both when you’re sitting up, then lying down, then standing. She took everything to my doctor who looked over everything and then came in. My EKG showed Premature ventricular contractions (PVCs), which are extra heartbeats. They disrupt the regular heart rhythm, sometimes causing a sensation of a fluttering or a skipped beat in the chest.
This happened three times on the test. My doctor said the EKG only lasts for ten seconds, and for it to have happened three times is a lot. She showed me what my pulse readings were that the nurse took, and there was a big variance. She said it shouldn’t vary that much. She then said that I absolutely needed to see a cardiologist, and that she would put in an ASAP referral.
What is happening with my pulse is called brachy-tachy syndrome. It’s when your heartbeat goes from very low to very high in a short amount of time. I could also have Afib but she doesn’t know. She thinks the Cardiologist will have me wear a monitor or put in a loop monitor under my skin to see exactly what’s going on and how often. She said he may do a stress test, but she’s not sure that is a good idea with this condition. She wanted the cardiologist to make the decisions on the testing. She said I may need a pacemaker.
She thinks this is the cause of everything that’s been going on since I started feeling bad last summer, and I think she’s right. I am so glad I bought this watch. I still wouldn’t know about this if I hadn’t gotten the watch. I told her I’d been getting dizzy, too.
She told me that I could eventually start passing out if I didn’t get this taken care of. I’m also at risk of stroke, cardiac arrest and other things. I hope I can get into the cardiologist soon. I asked her why the echocardiogram didn’t show this, and she said it doesn’t check for electrical problems with your heart, which is what this is. She had done an EKG earlier that showed left bundle branch block but nothing else. The EKGs only last ten seconds and often whatever is wrong doesn't show up on them. I probably should have seen her right after my surgery, but my recovery was so hard that I changed my appt. with her.
I am so sorry that these posts about my health are always so long.
03-28-2022 05:57 PM
@NickNack Don't you ever apologize for your posts.
They are very informative and I know many of us appreciate YOU. You took the time to share a lot of information that might even benefit someone else. A good thing.
I am SO glad you are getting the thorough medical care that you need. You will be in my thoughts and I will say a prayer for you, hope that's ok.
Take care of yourself dear lady.
03-28-2022 05:57 PM
@NickNack Please don't apologize, that's why we are asking. I hope you get in to see the cardiologist soon. He or she can do the tests necessary and maybe give you some answers. I have been to a cardiologist, worn the monitor and did a stress test. They
didn't show much in my case and the cardiologist wanted to double my simvastatin and I chose not to. My cholestrol was 197 at the time and He wanted it lower. We parted ways since There wasn't much more he could do for me. I have been feeling pretty good since and would go back if necessary. Please take care as you are a valued member of these boards.
03-28-2022 06:06 PM
@NickNack Sounds like you've gotten your money's worth with the fancy watch....in spades. To think such a gadget could have saved your life! I hope all you need is a pace maker as that seems to be an easy fix, relatively speaking of course.
I've thought the fall notification feature on the Apple watch would be very sensible, however, I understand you need an Apple phone to go with it, the expense is just too much. I make one cell call every 2 weeks to tell Wal-Mart I've arrived for my groceries. A TracFone at $4/mo serves that purpose just fine.
In your case, the watch was a great investment.
03-28-2022 08:16 PM
DH had PVC's for a long time and ultimately went into Afib and congestive heart failure. He is fine now but it was a very long, scary road.
Your cardiologist will tell you they check for "plumbing" problems: narrowed arteries that are then helped with stents.
The other problem is " electrical " and I think more complicated. The Afib is an electrical occurrence ( PVC ) and they need to know where all the occurrences are happening. Then an ablation specialist can cauterize the areas. ( we were lucky that our ablation specialist was extremely thorough and got all the areas...it took 5 hours ).
Then a pacemaker / defibrillator was inserted.
They are extremely cautious before getting to the ablation point: they need to verify that there is no blood clot in the atrium triangle that sits atop the heart. They check this with a TEE test which is a 10-15 procedure done under anesthesia. DH's first one showed a clot and it was dissolved over a few months with medication; the second one showed it had been dissolved.
The cardiologist and his / her team needs to be aware of all that is happening with your vitals. It is truly amazing how much technology and meds have come in a short time.
We had to switch cardiologists within the same practice because the first one had poor communication behaviors.
Good Luck, be patient and work hand-in-glove with your cardiac team.
03-29-2022 01:25 AM
@NickNack, Don’t ever apologize for sharing your health information. You are a treasured person here.
I do believe you will find the right medical people to help you get through these challenges. Gee, you have been and are going through a scary stretch. Please know I am remembering you and will be praying for your health.
Best wishes and a hug to you, Sweetie.
03-29-2022 01:59 AM
I'm so sorry that you are going through all this and I'm sure you want to get it all resolved as soon as possible. I hope you can get into the cardiologist soon too.
And your sharing the details makes me and I'm sure many of us feel like we can go thru it with you in a way,
and send prayers for all the right answers.
I think surgeries are always harder than doctors tell you so I hope you will take it easy between appointments and let Henry and Ava give you extra love!
03-29-2022 08:23 AM
Thank you @Love my grandkids @Kachina624 @m0rgan. I do appreciate the prayers. Kachina624, I often think the watch may have saved my life. I could have had a crises when I was alone at home before I found out what was going on. I'm very thankful that I have it.
03-29-2022 08:26 AM
@jlkz Thank you so much for all of this information. I hope whatever I need is a simple procedure. My doctor said that a pacemaker would be a simple procedure. I can't stand the thought of another surgery.
I'm still recovering from the kidney surgery that I had seven weeks ago.
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