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Esteemed Contributor
Posts: 5,296
Registered: ‎09-18-2010

Bless you @Plaid Pants2. I'm so sorry, I truly hope things get better for you. I wish there was help available to you and your dad.

Respected Contributor
Posts: 4,159
Registered: ‎03-28-2010

My Mom is 78 and lives with my sister.  She has several medical issues, type 2 diabetes, COPD, one kidney, A-Fib and she is a breast cancer survivor.  Right now it's the A-Fib that has been front and center.  When she was first diagnosised with it, she went on a blood thinner (Pradaxa).  Ended up with internal bleeding and almost died.  Her doctor wanted her back on a different blood thinner but she refused.  She eventually got a pacemaker.  But now she's in A-Fib 100% of the time and she still won't take a blood thinner.  Doctor told her to consider the watchman procedure.  She says she'll think about it but I believe she really has no intention to do it.  My sister just found out she stopped taking her cancer drug and her pill for diabetes.  I just think my Mom is just saying to herself that she's had enough and is giving up.

To OP, I'm so sorry for what you're going thru.  It's so difficult and life changing when the roles are reversed.  Just remember, you got to take care of yourself first before you can take care of anyone else.

Respected Contributor
Posts: 2,613
Registered: ‎12-27-2010

@Plaid Pants2 wrote:

Today was a bad day for me.

 

 

I won't bore you with the details, other than to say that my dad and I got into an argument, and he physically came after me and was shoving me.

 

I swear, if I could afford to put him in a home, I would.

 

He's never been physically violent before.

 

My heart is broken.

 

It's like something inside of me died today.

 

I want to give up, throw in the towel, walk away, but I can't.

 

 

Being a caregiver is the hardest job in the world, and at times, I hate it.

 

 

Sorry to dump.Woman Sad

 

I'm sorry you are going through this. A counselor asked me once "What would have to happen for you to consider changing the situation?"  I am thinking that perhaps it is time to find out what is your turning point. Are you sure you can wait until more severe harm is done to you? You say you can't do anything right now. Are you sure you can wait until the situation is worse? I hope you can find caregivers support. They may have solutions...hard decisions but solutions nonetheless.

 


Honored Contributor
Posts: 15,605
Registered: ‎09-01-2010

@Plaid Pants2,

Sending you my thoughts, continued strength and prayers as you process this new sign in your fathers failing mental health.   Watching our parents decline mentally is such a horrible experience, as we see them age into people we don’t “know” or connect with anymore.    

 

My own mother was diagnosed with cognitive decline several months ago, and I highly suspect she is closer to an actual dementia diagnosis.   I never know what’s going to come out of her mouth next.   I cannot get my extended family to understand they have to stop calling my mom with their news updates, as mom “fixates” on things and just cannot let it go.   2 days after a cousin shared some unpleasant news with mom, my mom called her back, and gave her a piece of her mind, blaming the cousin for the entire situation.   Needless to say this cousin is now mad at my mom.   I sincerely hope she’s mad enough to stop calling my mom, period.  

 

It has been my experience with those I have known personally, that the argumentative nature appears in the earlier stages of dementia, and physical violence shows itself in the latter stages.    Last summer my mother argued with me over the origin of my grandmother’s “good dishes”; last week she claimed she’d never seen them before.   

 

I urge you to look further into placement facilities options for your father. 

 

 

Esteemed Contributor
Posts: 7,367
Registered: ‎02-22-2015

@Plaid Pants2  Are there other siblings to help? If so, they need to show up immediately and you need a vacation away from your dad. 

 

You also need to contact his PCP and have him diagnosed with specialists for dimentia. This will put you in contact with social workers who will help you with in-home care or placement in Assisted Living Care. Obviously, you are no longer able to care for him alone. You must face reality: for HIS safety, he needs someone who is calm and isn't going to loose it or burst into tears. He is not able, nor does he know what is happening to him. Your reaction does not help him at all. Rather, it creates more havoc in his already very confused mind. Do you have any idea how horrible that must be for him to have you take it personally? You must learn to adapt along with him . . . and your life will become so much easier. Trust me . . . I did it for 14 years. And I never "lost it" or felt close to tears.

 

To me, it was a gift to be able to help my mom through such a scary time. I wanted to be her best health-care advocate, always be a step ahead of her so she wouldn't ever be alone or frightened, and be so well read that I'd know what to expect before it happened. By arming myself with that education and knowledge, we walked the dimentia path together from the beginning to the end. Mom was pleasant (with the exception of a couple of times with owly nurses). Negative people bring out the aggression in dimensia patients. They are like small children and use negative behaviors to seek the attention they desperately need. They no longer have any other tools to work with. Very frustrating for them.

Anyway, my mom maintained her excellent manners throughout her entire lifetime. She refused to use paper napkins. Yes, I washed, ironed and supplied three napkins a day for her! Good morning, Please, Thank you, May I help you? and You make my life so much easier! were all in her vocabulary until her death in July at age 94. Of course, her memory was almost gone. She couldn't carry on a conversation, but she was pleasant. She WAS frustrated and confided in me about it. I tried to keep her brain active with word games, number games, PT exercises and rides on sunny days. Once she was confined to a wheelchair, we were unable to visit art galleries, parks, my home, favorite restaurants, a hot fudge sundae, and other places she had loved so much. But I would still push her wheelchair outside for long walks and my son has an SUV and was still able to take her for rides on sunny days. They must get outside for the Vit. D from the sun! 

 

Mom lived most of the time in Assisted Living and the last couple of years in Skilled Care. Yes, it was very expensive. However, there were many residents in both places were couldn't afford out-of-pocket payment. You need to contact some of those facilities and work with them. They will help you with the expenses. I have no idea how that works, but it IS very common. I would guess more people are helped financially than pay for their own monthly billing. We were fortunate. Check into it. You owe it to your dad to have him in a safe, secure place with a nursing staff who knows how to interact with him. He deserves a place to provide proper nutrition, hygiene and so much more. Check several out. Some are horrible; some are OK; a few are excellent. We found one or two worthy of placing mom in our opinion. And I visited almost each day. Shifts changes; some of the staff were amazing; others not so great. I caught bedsores, infections and colds before any of the RN's on staff. I made sure they bathed mom when she was supposed to have her whirlpool bathes; she loved them! (Have heard bathes and showers are skipped, especially for government paid residents.) What it he falls? Have you taken courses to care for a patient after a fall?  I doubt it. You simply are not prepared to handle him. There is far too much at issue for you to handle properly and safely. 

 

Sorry this jumped all over the place. I'm very tired and don't have the energy to edit it properly. Hope you get the "gist" of my message. I mean well; don't intend to appear harsh.

 

Don't let time idle. This is too important to let another day pass. Do it now. You will be able to look back on your dad's last months or years and remember them with love, joy and grateful that you were able to make his life so much better. Much better memories. Best wishes and Merry Christmas. 2018 WILL BE BETTER.  

Money screams; wealth whispers.
Honored Contributor
Posts: 10,620
Registered: ‎09-22-2010

@Plaid Pants2

 

My Mother lived with me.  In her late 80's she got difficult.  I found if I was trying to get her to do something she sometimes would get very stubborn and push back - if I let the subject drop and readdressed it in a couple of hours often she would be compliant.  Did he just not want to do something?

Esteemed Contributor
Posts: 6,454
Registered: ‎01-13-2013

@Dinaki   Look online for resources in your town. Go to your local police station and talk to them. Your husband doesn't have the right to abuse you but you have to be able to take care of yourself. Try to get a job. There are also women's shelters. Do you have any family or friends nearby?

Respected Contributor
Posts: 4,893
Registered: ‎12-02-2013

@Plaid Pants2

 

I have not read all the posts; however, the one from BirkiLady below is right on target.  I am so sorry that you are in this position.  Both my parents had dementia: mom for 7 years, dad for 0.5 years.  It doesn't get better with time for any one, be they family members or the individual with dementia.

 

Of particular concern ( based on my sister's experience with our mom) is your safety and health.  My sister tried to move my mom into a more comfortable position in bed.  She heard something "pop" in her shoulder.  Well, she ended up with a huge mass growing on her shoulder from that pop: the arthritis pushed her into a shoulder replacement.

 

Should your dad fall or fall on top of you, how would you get up or get him up...think deadweight.  If you're hurt or injured, who will care for you, for him ?

 

Please reread BirkiLady's lengthy post.  You cannot handle this yourself.  Don't be harsh in judging your feelings: they are normal and hopefully not long lasting.  Siblings needs to step up and share as best they can in caring for your dad.  Although I had difficulties with my sisters prior to the dementia episodes, they did participate in the caring given their situations.

 

I hope you can maintain your sanity and health as the situation progresses.  I wish you peace of heart and mind as you make this journey.

 

 

We make a living by what we get. We make a life by what we give.
Sir Winston Churchill
Esteemed Contributor
Posts: 6,475
Registered: ‎03-14-2015

I am an only child.

 

 

 

I hate feeling sorry for myself, but as Scarlett O'Hara said in "Gone With the Wind", tomorrow is another day.

Honored Contributor
Posts: 12,420
Registered: ‎03-09-2010

@Plaid Pants2....I am so sorry....I have never been your position but I can only imagine how you must feel.

 

I would assume that your dad did not mean to harm/hurt you...because of his dementia...he is not himself.

 

When my mom was ill, and I helped care for her it was emotionally and physically draining and she had all her facilities....you must take care of yourself.