topic Re: beauty junkie , I send my concern for you and the family. in Pet Lovers

beauty junkie , I send my concern for you and the family.

NAES1 — Sat, 20 Jun 2015 06:44:57 GMT

I'm sorry in being late getting back to you concerning your little fur baby and its arthritis, Cookie, your mother, Cindy devoted care giving to mom, and most important your apparent condition with (what sounds horrible) a rash on face and body..more like welts. You have more than most could handle..plus the heat there with high humidity.

I re- read your message and what jumped out at me was that 'it is so hard for Cindy with your failing mother'. That would be beyond stress after everything you have been through. I remember that you had some treatment on inj. ref: steroids not too long ago. I am certainly not in favor of any steroids after two to three. I know ( they help so much) that you have very little to choose from as far as meds are concerned but when steroids build up (not always) some people have horrible side effects to them. Can you explain what the spots /rash looks like? Is it more of a measle type appearance or large hives?

....I remember the Orencia being one of the lastmedication/ doctor's office DX/.

I agree __the new forum is somewhat a big change and I am trying to learn most of it, but actually it's more like a business format which my husband is used to so I learn from him. It is just not that important to me, other than sharing a few suggestions. I was not on that much with the other. I am pretty darn busy through the day so I am not missing much as I have read from others. BUT! I do ask questions. Have no idea if anyone ever read them...just do a few hit & miss as I see their name, depending on the topic.

Later on, we may take our discussions to Among Friends so the Pet Lover forum won't be tied up..whatever you think. I want to keep up with your progress. Have you thought about seeing a dermatologist?

One more question. Is Cindy working and also taking taking care of mom? I know she has a family. I'll get back after the week end.

I have no doubt that you must be miserable. As I have always mentioned, you have no caregiver, so your health issues are much more complexed, especially with your husband health being watched also. I do understand.

_Naes

Re: beauty junkie , I send my concern for you and the family.

beauty junkie — Sun, 21 Jun 2015 02:22:51 GMT

Hi Nas,

Thanks so much for caring about me and my family. I am happy that Cookie is taking her supplement for her arthritis and hope it helps her. Seeing my baby limp makes me so sad but she is doing better.

I am covered inhives right now. They come and go. I saw my dermatologist and he said htis is is not allergies and my rheumatologist has ot take care of me. There is no rhyme or reason as to whehn and why they come and go liek they do but I do know our extreme heat and humidity is not helping.I did the 2 weeks of the merdol pack and they went away but when finished they came back with a vengence.

I go to mr Dr on JUly 13th and will discuss what to do. he wants to try long term prednisone and personally I woukd rather have needles in my eyes,lol.

CIndy is working but applied ofr FMLA and when she needs to stay home with Mom she does. Really MOm is doing badly and basically trying to will herslef o death. I feel she would od better in a facility for ALazheimers but CIndy wants to wait.The entire situation is os sad. They want me to visit but I can't. I am such amess right now,I get hives and welts on my hands and feet. Some are small and round,pink,bright red and the welts look like raides huge mosquito bites. Pianfula nd itch like mad.

I hoep your family is oding well. I still pray for cream and Pal. I was talking to my cousin,a major animal lover about the not knowing what happened and she said that has to be utter he**.I hope they are in Heaven waiting for us.

Tkae care,

beauty junkie

Re: beauty junkie , I send my concern for you and the family.

Anonymous — Mon, 22 Jun 2015 02:17:59 GMT

This post has been removed by QVC because it contained personal information

Re: beauty junkie , I send my concern for you and the family.

Tissyanne — Tue, 23 Jun 2015 03:49:58 GMT

Is this removed? I still am able to view it and post.

Re: beauty junkie , I send my concern for you and the family.

NAES1 — Tue, 23 Jun 2015 05:00:44 GMT

HI Tissyanne,

.....I wanted to thank you for your recent reply about your Sugarbear fur baby, and will as always keep all of the pets with any health issues in my prayers. Smiles to you, dear.

I saw this yesterday very early where some 3rd part poster (who has been d. eleted) or taken to another form. 3rd poster apparently knew exactly what do do for this situation, so I left it alone. I thought I might be able to offer some suggestions, now, when I saw what you are reading.

I have absolutely no idea what happened to the "3rd" poster.

Clueless here!

I did or was able to actually know there was someone right after my post where I mentioned I would be back after the wk -end. This is a very unusual, though.

Thank you for asking. I have absolutely no idea but hope beauty junkie's little Cookie is having much better days. _Naes

Re: beauty junkie , I send my concern for you and the family.

beastielove — Tue, 23 Jun 2015 12:22:10 GMT

Good Morning NAES and beauty..

Just wanted to send two of my dearest friends lots of hugs and wishes for a very pleasant and peaceful day. :-)

(((((((((((NAES & BEAUTY)))))))))

--------------------------------------------

All of my children have paws =^..^=

Re: beauty junkie , I send my concern for you and the family.

Tissyanne — Tue, 23 Jun 2015 19:40:05 GMT

NAES, When I first read the post from QVC, I thought they were saying they had removed the entire thread. I could still see it, so was confused. I see now after reading your reply to me that someone 3rd party had replied. That post is what was removed. Silly me, I just got all mixed up. 💜💚

Re: beauty junkie , I send my concern for you and the family.

NAES1 — Tue, 23 Jun 2015 20:22:04 GMT

Hi Tissyanne,

.....on my out to the shopping center when I came to pc room and check'd on personal emails, then came here for many notifications...seeing yours~ thank you so much for being as confused (to a degree) for this -WHATEVER- {???}

I actually had seen the P's name with some jumbled addy, then I read where 'b' anwered back innocently, something like this->

"I will take any info for my situation from anyone..I need some relief".

Then I waited and thought `maybe it's someone who knows` this formum and the posters better than I.

I believe it was a ha kER. I have no idea what the wording was since I closed off. Very early in the am and bedtime.

Strange? I wished ( hindsight) that the complete mess. was something I could write down then call mod. squad. I do not know exactly when that was taken off. Again I am very cautious. Can happen at any time on any "F".

Re: beauty junkie , I send my concern for you and the family.

beauty junkie — Wed, 24 Jun 2015 05:15:03 GMT

Hi Tissyanne,beastie and Naes,

The post that was removed was from a poster named blankette. She gave me her email address so thats why it was removed but I got her address before they removed it.

I am not in a good way right now. I had to go to my rheumatologist as an emergency today. My body was covered in welts and hives from the neck down and I was in a lot of pain. I am on prednisone again,10 mgs for a week,then 7 1/2 mgs for a week then 5 mgs for 2 weeks. He isn't sure that just a month is going to do it. He actually took pictures of my body as they are that bad. Said I have the antibodies for lupus,RA and scllerderma.I just want some relief as the intesne itching and pain was maddening today but now come the side effects. Headache and hunger.

I think my worrying about Cookie and her limping isn't helping my health any either. My poor baby limps.Her appetite is great and and she can even run but when she gets up she limps. The cosaquin will take at least a month to kick in but I am hopeful it will give my girl relief.

Thank you all so much for asking about my baby girl and me.I'll survive as I always do but I would like to look human again,lol.

Re: beauty junkie , I send my concern for you and the family.

Tissyanne — Wed, 24 Jun 2015 06:07:44 GMT

beauty, oh my, I am so saddened to read about your health issues. Please know that I am praying for you and Cookie. I had hives one time that were as big as golf balls, and they were in my chest too. Very scary, and miserable. I believe mine were stress related because I had just had a root canal, and it made me very nervous. I will be watching for updates from you. 💜💙

Re: beauty junkie , I send my concern for you and the family.

Silver Lining — Wed, 24 Jun 2015 11:24:52 GMT

Beauty, i'm just now seeing this and your other recent posts and cannot even begin to tell you how very sorry I am that you are so sick and knowing Cookie is also having problems. Tears came to my eyes. I want you to know that I immediately said a prayer for you and will continue to do so. I've thought about Pal and I actually miss him. I pray for NAES's Cream and the sittuations of others and all animals. Please know you are sincerely and fondly in the thoughts of your friends here.

Re: beauty junkie , I send my concern for you and the family.

NAES1 — Wed, 24 Jun 2015 19:12:52 GMT

My first thought, beauty 'j'... if I had not waited to understand ->i.e., the 3rd party/ coming on again...I would have told you to go to the hosp.'s ER. {Trying to wait and know for sure}.

I knew this was becoming much worse and by July's app't time was too long for waiting. I have seen some weird allergic cases but this, to me, is apparently quite systemic. Could be a viral infection-(??)

I still contribute the inj. causing most of the on set.

I failed to ask if your tongue/throat had any swelling.

Usually any allergen (with scleroderma) has to have high dose antihistamine ( rx), then that alone is not always effective. You did the correct thing and more important the best decision. Any stress, yes, would offset the hives, but with the inj. (and we don't know if it was something you have not had before + the former stress that you are still dealing with, adding on love concern of Cookie would DO IT. Right now, I am not thinking of scleroderma unless the 'spots' have turned to a form of scales. Hair loss or spots around & down the neck.

***Yes the predn. will phase out 80% of the intense hives but now I understand why the Dr. took photos. There is a treatment called intense LIGHT that he may have to resort to..ask him about it (after the last of meds are taken), then you will know how this lupus has no mercy. I am here again thinking (have seen) of a condition called [erythema nodosum ]-associated when medication is given to any patient has "any" type of autoimmune syndromes. Stay out of the light due to photosensitivity. That worsen the condition. I will check back on progress. I am so glad to know that the (maddening discomfort, as you said) prescription is now counteracting the cause temporarily. Always my best to you. Tissyanne and Beastie have been so cordial in their concern. I know all of the pet L. posters are really very hurt that you have being going through so much. I certainly do. And I do understand what you may look like having this reaction . _Naes

6-25-'15

Re: beauty junkie , I send my concern for you and the family.

beastielove — Thu, 25 Jun 2015 00:30:24 GMT

Hi beauty...

Just checking in to see how you're doing and pray that the meds are helping to alleviate the pain.

Sending you tons of Get Well Soon hugs and also hope that your beloved Cookie is feline better.

((((((((((((BEAUTY))))))))))

-------------------------------------------

All of my children have paws =^..^=

Re: beauty junkie , I send my concern for you and the family.

beauty junkie — Thu, 25 Jun 2015 04:51:56 GMT

Wow thank you all so very much.

Silver Lining its so good to hear from youa nd thank you so much for posting and asking about Cookie and myself. We are both doing ok,could be better but doing alright.

Naes wow you sure have some experience here. I have not had sweeling int he thorat at all,its all the body. I was so grateful that it wasn't on my face,they were brutal but already since starting the prednisone I am 90% better. They are almost all goone,fading and the intense itching and pain has subsided.I am afraid though when I stop in a month if they come back what we will do as I can't live on prednisone. Its making me very hyoer and just has so many die effects but right now extremelt grateful to feel so much better.

My rheumy wants me ot have the heart and lungs checked out and I will when I am over this. I know that the intense heat lately is getting ot me and ths un whoa its been brutal. I had been in remission with the lupus for a long time. Its no fun having Ra too so its joints,tissue,nerves,all of it.

I think I will be ok,hoping. Thanks so much for all your expertise,wow I am so imopressed by all your knowledge.

Hope youa re oding ok. I still pray that for your Cream and that he is with my Pal. I am sill devastaded by his disappearance and now with my Cookie having arthritis it does make me worry abit more but truthfully I don't think thats the reason for my relapse. I have had way more stressfult hinsg happen in my life.I was just due I gyess.

Tissyanne hope your Sugarbear is oding well,thakns for the prayers.

beastie thank you for thinking about me and Cookie. My baby is doing ok,hoping she will stop limping when she is on the cosequin long enough..I'd much rather have all the pain then have her hurt at all.

Thanks everyone,

beauty junkie

Re: beauty junkie , I send my concern for you and the family.

Tissyanne — Thu, 25 Jun 2015 11:14:45 GMT

Hi beauty,

I am very glad to read your latest post, and you are much better. Yay! I know prednisone is a miracle drug with tough side effects taken long term. Thank goodness it has made you better already. My son took it, and ate everything in sight. I have taken it twice myself for short periods, but did not get hungry. I guess that I was not on it long enough for that. My daddy took it one time, and he was so happy, and also sure ate while taking it. Powerful drug, but does help in so many situations. Rest easy, and give Cookie a treat from me. 😄😄😄

Re: beauty junkie , I send my concern for you and the family.

NAES1 — Fri, 26 Jun 2015 04:09:17 GMT

Thank you, beauty 'j'......

....there is a comfortable relief, for me, in knowing `that you must be` feeling so OH SO Better. I really do understand what you said about Cookie. So beautiful in what you had said when you would take pain or discomfort rather than see your little pet going through limping You are such a sweet-sweet caregiver. You would have been a wonderful caring mother. I can sense that already. All of the pet care lovers are special people. Some are human mothers, others are not..so those fur babies are loved very much.

I thought, if possible, this would be a safe bet to go visit with mom, since you said she was failing in health so rapidly. Isn't it wonderful that your sister, even though it it a very difficult task, to care for an ailing parent~~~~

The heat (humidity) there would be the deciding factor for any travels. I have been in Fl. and know how powerful the sun is relentless- esp,,,, now through Sept. August was when I was there and ended up with the worse sunburn I ever had.

My husband had to set me in a chair and smear sunburn cream all over my body. Having no knowledge of Fl's sun I thought the wind, from the ocean, would not be as hurtful as the water. Did I ever learn a lesson!

There was a patient who had/ has severe arthritis from the C1 to L4, stenosis of the spine and he has to maintain a regular treatment of cortisone inj. for his pain. He's been doing this for about 3+ years and cannot function without this type of maintenance. He would be (probably) in his 60s. This trauma was from a car incident when he was 30, so now this combined with the aging process is a miracle for him. I have known and see many arthritics going through the same same. Yes, I know the effect from long term prednisone will not be the answer. Sometimes (most of the times) the pred. can ruin the soft tissues surround the spine altogether. Short term is a wonderful solution for someone like yourself. Starting out higher then LO is giving you back some THINK time for the next health step. I know each day the comfortable feeling is something to savor. Sending happy thoughts. As always I will check back. A whole month! We had a neighbor who had shingles. Her treatment, like yours, made her appetite very hardy. Some do- some do not. Happy for you at your relief!.

NAES .....catvery-happy:

Re: beauty junkie , I send my concern for you and the family.

beauty junkie — Fri, 26 Jun 2015 05:00:04 GMT

Hi Tissyanne,

So glad you didn't have the bad side effetcs when you took prednisone.The appetite is just one big pain but the insomnia,they extreme flushing of the face,hyperness,Ugh, I hope I own't be on this for too long bud sadly today my hives came back bad.I don't know whats oging to happen.But thank you so much for your kindness and concern.

NAES you brought me ot tears with what you said about me being a good Mother,thank you so much. I am Cookie's Mom and would for sure take any pain and or disease to keep her healthy. I just hope I can get her to stop limping soon.

Unfortunately my hives came back quite bad. I hope as as the days go by they go away but I am so fearful that when I stop the steroids they will never go away. I go back to my rheumatologist July 13th and will see whats next.I was hoping I could see my Mother but theres no way I can travel not knowing from one day to the next what I wil have and also my Dr is concerned about my heart and lungs and insists I see both specialists. I am doing nothing till these darn hives go away.

You are so right about the Fl sun and humidity,its brutal and its only June so I have months too go before relief unless we hit the lottery then I am moving to Vermont,lol.

Do you know of any other meds that can help these things as the prednisone gives me palpitations,awful insomina and if I don't stop myself I will eat everything in the house including Cookie's kibble,lol.Thank you for all your help and being so very kind.Pet Lovers are the kindest most caring people ever and I am beyond grateful for this forum.

Re: beauty junkie , I send my concern for you and the family.

NAES1 — Sat, 27 Jun 2015 03:08:41 GMT

Did you call the doctor about your palpitations? I will try to think of something in a lotion.

Do you have any idea if you can have an earlier app't?

Let us know how you are doing today, BETTER? Foods: make a diary.

Re: beauty junkie , I send my concern for you and the family.

NAES1 — Sat, 27 Jun 2015 05:06:47 GMT

Hi beauty 'j',

I did not want you to think I did not understand your question. I did. I could not.

...... the pharm. for suggestions. Probably will be the same as N's.

Have you ever hear of an allergist? a derm/ for quick appt's?

How about giving details back to your d? I said this once and stand steadfast on ERs.

Think about immediately. Still the 17th? No,,,,

Hows your little cat, Cookie doing, now? I think we all feel your discomfort with hives.

NAES

Re: beauty junkie , I send my concern for you and the family.

Tissyanne — Sat, 27 Jun 2015 05:45:36 GMT

Hi beauty,

I hope this finds you and Cookie feeling better today. I noticed you asked about something for hives besides prednisone. What about Benadryl? There is also Benadryl lotion. I am praying for you and your 😸. 💜