topic Re: Another ER Episode in Handbags

Another ER Episode

asoutherngirl — Sun, 01 May 2016 17:28:05 GMT

Hello sisters. Had another exerience yesterday afternoon and had to go to ER. Was afraid I would have another hospital stay, but caught this one in time. Spent the night ER under observation and was realeased this morning. Among other health issues I have asthma, COPD (yes, both), and a Rare condition VCD, or in my case, "extreme vocal chord collapse" My Oxygen saturations have dropped so low, that 7 times I have been intubated and on machines to keep me alive. I ask for your prayers, but I especially ask that you keep my daughter in your prayers. She is 34 and was born an O2 loss to the brain. Her father bailed out on us when she was 2, because "I didnn't sign up for this." he has not seen her in 14 years and has no idea what a lovely, talented, and creative person she is. We have no family and my worst fear is when I die, she will have no home and we know whwt happens to children of certain disabilities. Please pray for us, especially my liitle daughter.

I knew I could come to my sisters.

Re: Another ER Episode

SoftRain — Sun, 01 May 2016 17:31:25 GMT

My prayers are with you! May God's loving arms surround you and your daughter in his protective embrace.

Re: Another ER Episode

BenthePup — Sun, 01 May 2016 17:37:32 GMT

So sorry you are going through this.

You have my prayers for you and your daughter.

God Bless..

Re: Another ER Episode

Bird mama — Sun, 01 May 2016 17:40:30 GMT

@asoutherngirl

I'm sorry you ended up in ER again and I can't even imagine how frightening it was for you or your daughter. Regarding your daughter, do you live in an area where there are programs or assistance available for special needs?

Re: Another ER Episode

Chrystaltree2 — Sun, 01 May 2016 17:56:37 GMT

My thoughts and prayers are with you and your daughter. You've been through a lot, so rest and relax; get better. When you are feeling stronger you really should work on a plan for your daughter's care when you are no longer here to care for her. None of us know how long we have. If you go to church, perhaps you can get some guidance from your pastor. Perhaps you can start with your city or state Social Services dept and find out what options are available. It seems like you have frequent hospitalizations, you might want to reach out to the Social Works at the hospital. You had the strength to provide and care for her for 34 years, now you need to summon up that strength again for your daughter.

Re: Another ER Episode

asoutherngirl — Sun, 01 May 2016 17:59:44 GMT

A good question, Birdmama. In our state the best that can be hoped for is a "group" home. As a special education teacher, I have seen how these children are handled. My beautiful. talented ddaughter would not be treated as per her expeiences. She speaks 2 languages almost fluently.. She understands the pirouttes and fouttes of ballet, but can not make change or understand a pun. God bless you for you concern.

Re: Another ER Episode

asoutherngirl — Sun, 01 May 2016 18:03:47 GMT

Thank you, Softrain.Thank you so much.

Re: Another ER Episode

asoutherngirl — Sun, 01 May 2016 18:05:54 GMT

Tank you, Cheri. thank you so much. Your prayer means so much.

Re: Another ER Episode

jaxs mom — Sun, 01 May 2016 18:51:00 GMT

I'm sorry you ended up in the hospital. I completely understand your concern for your daughters welfare when the times comes that you can't care for her anymore. I wish I had some helpful advice but I don't.

Re: Another ER Episode

3cupcakes — Sun, 01 May 2016 21:08:01 GMT

Such a frightening thing for you & your daughter, @asoutherngirl.

There are some good suggestions here; I hope one of them will direct you to your answer.

sending you healing thoughts & prayers for you both.

Re: Another ER Episode

EdithEllenLily — Sun, 01 May 2016 21:12:35 GMT

@asoutherngirl I'm sending postive healing thoughts for you and prayers for both you and your daughter. I agree it would be best to have a plan in place for your daughter and I hope the ideas in this thread help you do that when you recover from this recent scare. Take good care, EEL

Re: Another ER Episode

gramygram — Sun, 01 May 2016 22:46:25 GMT

asoutherngirl I'm sorry to hear about your recent hospitalization. Oh my gosh I'm sure you worry so much for your daughter. As others have said you need to have a plan in place for your daughter. I'm sure worrying about that uncertainty does not help your health issues. Sending prayers, hugs , and positive thoughts your way!

Re: Another ER Episode

Buckaroo2 — Sun, 01 May 2016 22:52:44 GMT

Sending my most heartfelt prayers to you, @asoutherngirl, and your precious daughter too.

Re: Another ER Episode

stevieb — Sun, 01 May 2016 23:15:47 GMT

Wishing you and your daughter the best @asoutherngirl...

Re: Another ER Episode

151949 — Tue, 10 May 2016 02:58:46 GMT

So I don't understand WHY you are ending up in the ER. Is your vocal cord collapse obstructing your airway. Do you sleep with a CPAP machine? If it is more than a CPAP could handle maybe you need something else like a tracheostomy so your airway would not occlude. If it isn't that but is actually your COPD then you need to sit down with your pulmonologist and discuss a plan of care.Is this mostly happening when you fall asleep?Sometimes people sleep on a ventilator via a trach. Perhaps you and your daughter need to consider a different living arrangement where you aren't alone like an assisted living place where there is staff available when needed at the push of a button.