topic Re: Tiny Baby update in Community Chat

Tiny Baby update

violann — Fri, 08 Apr 2016 17:30:45 GMT

Just wanted to send along lots of joyful hopes and wishes (and prayers) for all of the families who are awaiting complicated births and/or fragile Bundles of Joy!

We continue to have Hope!

Re: Tiny Baby update

NeNe1010 — Fri, 08 Apr 2016 13:29:46 GMT

Our daughter had twin boys in January. One has hyproplastic left heart syndrome. One surgery down and 2 more to go. We are all missing a part of our heart untill he gets to come home. Best wishes to you and the little one you are waiting for. It is so hard but it has also opened my eyes to how many truly good hearted people there are in this world.

Re: Tiny Baby update

september — Fri, 08 Apr 2016 14:06:12 GMT

Thanks, violann. Last week, I visited my tiny little twin granddaughters for a few days. They're in NICU and will be there for at least another month.

They're slowly making progress and having some of the tubes/monitoring devices taken away. The nurses and doctors caring for them are so dedicated. They're in good hands!

I don't know if there was a post from you about someone in your family having preemies? I didn't check this site while I was traveling.

Re: Tiny Baby update

september — Fri, 08 Apr 2016 14:08:54 GMT

ZenWen, your little grandson has been through so much. I wish him the best with his surgeries. Please update us from time to time

Re: Tiny Baby update

violann — Fri, 08 Apr 2016 17:30:09 GMT

Our sweet boy will be in the NICU too, but the doctors who will be taking care of him won't know until he arrives how long he'll have to stay.

Re: Tiny Baby update

september — Sat, 09 Apr 2016 01:00:36 GMT

@violann wrote:
Our sweet boy will be in the NICU too, but the doctors who will be taking care of him won't know until he arrives how long he'll have to stay.

When is his expected due date? Please keep us posted. I pray everything goes well and he is out of danger as soon as possible.

Re: Tiny Baby update

JDJ555 — Sat, 09 Apr 2016 04:42:58 GMT

Prayers for the babies.❤️

Re: Tiny Baby update

NeNe1010 — Wed, 13 Apr 2016 15:54:12 GMT

Jasper has had the most dangerous of the 3 surgeries used to reroute things in the heart for babies for hypoplastic left heart syndrome. It is called the Norwood. He is doing fine. Doctors are now working on weaning him off of the ventilator and off of the pain meds he is given. We fell blessed that he came thru it fine. In about 3 months he will have the Glenn surgery and at 3 to 4 years, the Fontanne. The next 2 surgeries are not nearly as risky. Hoping he gets to come home before the Glenn in 3 months. Hope all of your special angel babies are thriving and healing. Hugs to all of you!

Re: Tiny Baby update

september — Wed, 13 Apr 2016 23:10:20 GMT

ZenWen...it sounds like it's going to take time, but Jasper will do well now that the riskiest part of this is over.

My granddaughters have gained a few more ounces, and one has been moved to an open isolette. Her sister should graduate to that in a few days.

Re: Tiny Baby update

violann — Thu, 14 Apr 2016 13:15:51 GMT

"Our" baby will be born in mid-May, and will also begin surgeries as soon as his doctors deem advisable.

Can't wait to pinch his cheeks, hug him, and rock him to sleep.

With you all in spirit, Ladies! Every small victory is a joy!

Re: Tiny Baby update

NeNe1010 — Fri, 15 Apr 2016 14:59:10 GMT

@violann wrote:
"Our" baby will be born in mid-May, and will also begin surgeries as soon as his doctors deem advisable.

Can't wait to pinch his cheeks, hug him, and rock him to sleep.

With you all in spirit, Ladies! Every small victory is a joy!

Violann our grandson was diagnosed in utero with his heart defect and it sounds like you little angel has been also. My best wishes and hopes to you. It will be tough but it has changed me in a good way. I better know whats important now. Again, best wishes and hopes for your little one.

Re: Tiny Baby update

BitsyAnn — Fri, 15 Apr 2016 16:11:48 GMT

Hearts and hugs @NeNe1010, @september, @violann.

Re: Tiny Baby update

violann — Fri, 15 Apr 2016 18:30:01 GMT

@NeNe1010 wrote:
@violann wrote:
"Our" baby will be born in mid-May, and will also begin surgeries as soon as his doctors deem advisable.

Can't wait to pinch his cheeks, hug him, and rock him to sleep.

With you all in spirit, Ladies! Every small victory is a joy!
Violann our grandson was diagnosed in utero with his heart defect and it sounds like you little angel has been also. My best wishes and hopes to you. It will be tough but it has changed me in a good way. I better know whats important now. Again, best wishes and hopes for your little one.

Writing this with tears in my eyes @NeNe1010. What you say is SO TRUE! This young fellow has brought so much love into our lives already that I often tell people he is already paying his bill!

Re: Tiny Baby update

september — Sun, 01 May 2016 02:47:33 GMT

Here's my latest update. My little granddaughters, who came into this world the 3rd week of March, will likely be sent home from the hospital in another week...in time for Mother's Day!

They now weigh about 4.75 pounds, each! They're breathing and feeding well most of the time...they just want to be sure all is 100% well before they release them.