topic Re: Struggling To Keep Up ... in Community Chat

Struggling To Keep Up ...

SandySparkles — Sun, 03 Nov 2024 01:04:17 GMT

With posting! I went to post my Halloween costume pics on another thread this afternoon and got confused as to the process, though I have done so MANY times. It is a stark reminder my cognition issues are slowly getting worse! I look like the picture of health, unless I have a flare-up of another med issue!😐

I recently lost a COMPUTER that I STILL have yet to find, misplace things throughout the day, and can no longer cook when no one is home as I have left the stove on SEVERAL times! Comprehending measurements when baking is a bit of challenge most of the time!😔 When I travel, family members ALWAYS make certain I am checked in!

I am taking a break from frequent postings for a bit, but will be reading mostly because it is starting to require agreat deal of time and mental energy trying to monitor threads😊

I went in search of my old forum friend again on the other board site and it was a topic of discussion there.They simply do not know what it is like living with the fear, knowing that one day, things will likely be much worse if the questionable diagnosis is correct! I HOPE they never do! I am still praying it is related to another med issue I have.

🙏

6:02 p.m.-ETA

My apologies for the confusion with the wording.❤️ I have a diagnosis and take medication nightly, but I stay somewhat in denial hoping and praying it is wrong, and another reason is found for the worsening issues. That is why I call it questionable.😐

Thank you for your support, and I will take your thoughtful suggestions into consideration regarding chatting!❤️

~~~All we need is LOVE💖

Re: Struggling To Keep Up ...

Tori3569 — Sat, 02 Nov 2024 23:48:52 GMT

I'm so sorry to read this post @SandySparkles . I hope and pray you will never get worse. You're a brave and wonderful person. 🩷

Re: Struggling To Keep Up ...

Kachina624 — Sat, 02 Nov 2024 23:48:56 GMT

@SandySparkles. I hope you have already or will soon discuss this issue with your doctor. The sooner, the better.

Re: Struggling To Keep Up ...

kitcat51 — Sat, 02 Nov 2024 23:51:19 GMT

Blessings ♥

Re: Struggling To Keep Up ...

tansy — Sat, 02 Nov 2024 23:53:19 GMT

@SandySparkles

Your posting shows no decline in mental abilities. Your verbal skills are good. You have the skill to change color and fonts.

If I were you, I would stop the lengthy responses to each poster and just indicate that you saw and liked the responses.

Re: Struggling To Keep Up ...

candys mine — Sun, 03 Nov 2024 00:10:40 GMT

@SandySparkles You need to take care of your self first and foremost.

I Marvel that you consistently responded to so many posts as you have! There would not be enough hours in a day for me to do what you do! Just to know you are there to share in the joy of responses as we ALL do with the occasional note and heart to let us know you're there will be great.

Please be as Well as you can be.

Re: Struggling To Keep Up ...

Puggywuggy — Sun, 03 Nov 2024 00:14:46 GMT

@SandySparkles

Your upbeat, cheerful posts will be greatly missed! Your posts do not indicate that you are having difficulties so don't be hard on yourself.

I do not know what your specific situation is but as someone who suffers with Lupus brain fog, I understand that struggling for the right words and focus are difficult at times. I am keeping you in my thoughts and prayers...remember to be as kind to yourself as you are to others! ❤️

Re: Struggling To Keep Up ...

Puppy Lips — Sun, 03 Nov 2024 00:36:04 GMT

I have enjoyed all your posts Sandy Sparkles and I hope you are okay and get better. That is the scariest thing about getting old, not knowing what medical issues are to come.

Re: Struggling To Keep Up ...

haddon9 — Sun, 03 Nov 2024 00:37:48 GMT

@SandySparkles Again, I'm sorry to hear of your health issues and struggles. I remember reading not long ago that you had some but didn't realize some had to do with mental clarity.

I noticed that you do tend to reply in detail to each poster. That in itself can be draining and not necessary. You can always acknowledge a post with a simple, "Thanks for your comment" and move on.

I hope and pray that it's just a phase of perhaps anxiety but not a serious health issue for you. I can say that I often forget or can easily find myself getting confused about some things when my mind isn't totally there or I'm feeling anxious about something.

Best wishes to you.

Re: Struggling To Keep Up ...

Goodie2shoes — Sun, 03 Nov 2024 00:42:23 GMT

@ SandySparkles. Your health is your first concern. Your posts are wonderful and I for one as many others look forward to your next one. However as I said, your health comes first and if you and/or your family feels it necessary to consult with your physician please do so. Take a break and just check in with your forum friends on occasion to let us know how you are doing. God Bless !

Re: Struggling To Keep Up ...

SouthernBee — Sun, 03 Nov 2024 00:56:06 GMT

@SandySparkles : Totally agree and understand. Please take care of yourself. I always enjoy your positive and thoughtful post. You will be in my thoughts and prayers.🤗❤🙏🙏🙏🙏

Re: Struggling To Keep Up ...

Franklinbell — Sun, 03 Nov 2024 00:56:23 GMT

@SandySparkles @Sending you prayers! And love!

Re: Struggling To Keep Up ...

hopi — Sun, 03 Nov 2024 01:03:56 GMT

Dear @SandySparkles you have always been a beam of light, kindness and positivity on these boards. The unknown is always so frightening but praying your strength, joy, faith and doctors will get you through this difficult time. God Bless you.

Re: Struggling To Keep Up ...

Zhills — Sun, 03 Nov 2024 01:05:00 GMT

Take care @SandySparkles 🙏

Re: Struggling To Keep Up ...

PhilaLady1 — Sun, 03 Nov 2024 01:07:01 GMT

@SandySparkles

Life is so difficult sometimes, and so scary. I truly hope and pray that you will be okay.

Re: Struggling To Keep Up ...

RedTop — Sun, 03 Nov 2024 01:08:27 GMT

@tansy

Understanding OPs diagnosis, her acknowledgment and reply to each poster is a self help way of trying to hold onto her cognitive function skills as long as possible.

My mother was about 7 years into her vascular dementia before her symptoms were quite noticeable at the levels OP has accurately described in this post. This is when the Dr. put a name on it in moms medical record. I bought children's workbooks, multiple types of puzzles, a notebook that I urged her to leave on the kitchen table so she could scribble whatever ran thru her mind, draw, make notes, write numbers in sequence, write down anything to maintain brain to hand coordination/function, period. Did she do it? NO, and immediately her mental decline was more noticeable.

@SandySparkles, I urge you to keep reading, writing, and staying in touch with others as long as you can. It is extremely important for you to keep pushing. Write post it notes with instructions, and stick them throughout your house. Mom forgot how to turn a light switch on and off, forgot how to use the washer, and after multiple scares with the electric stove, my brother turned it off at the breaker.

I sincerely wish you the best with this health issue!

Re: Struggling To Keep Up ...

GingerHead — Sun, 03 Nov 2024 01:12:33 GMT

@SandySparkles

Sorry to hear of your struggles. Take a break and take care of yourself and if you do post, as others have said, just save yourself some hardship and heart the responses, it's just too much work to reply to every single post like you do but bless your heart for doing it. We'll all understand!

Now sending you pink sparkly hugs!

Re: Struggling To Keep Up ...

smoochy — Sun, 03 Nov 2024 01:11:39 GMT

love to you and my prayers are for your peace and a healing miracle.

Re: Struggling To Keep Up ...

tansy — Sun, 03 Nov 2024 01:14:27 GMT

I appreciate your response, @RedTop. My experience with my mother, MIL and another family member has been quite different than yours.

Re: Struggling To Keep Up ...

Terrywu — Sun, 03 Nov 2024 01:23:11 GMT

Sending good thoughts and prayers your way. Take care.