topic Re: UPDATE ON HEADACHES, ETC in Community Chat

UPDATE ON HEADACHES, ETC

dennylilly — Wed, 26 Jun 2019 17:11:51 GMT

I had an MRI scheduled for yesterday and upon arriving I was told someone made a mistake and the person needed to do the type of MRI I need was gone for the day and they only do these type of MRI on Tuesdays, So I had to leave and have to wait till next week. This did not go over too well, but I am over it. LIving with a headache every day, (some days way better than others, but everyday I have it), is not easy mainly because I don't know what is wrong with me. Trying to live life in the meantime but with a vacation in a couple weeks and other things going on, I am frozen with fear alot of the time and clinging to God and His promises to get me through whatever I am facing. THanks for being there for me and if you are a praying person, please include me in yours.

The same day of my MRI I am also getting the sleep study my Dr wants. I stopped the Flonase because it can CAUSE headaches but I'm thinking I should maybe start it again. Have my annual eye appt tomorrow so maybe he will figure something out to do with my eyes. At this point and actually all along I am not able to pinpoint where it hurts. IT seems to move around and come and go. UGH!

Thanks for being there and giving me your thoughts and suggestions. I always appreciate it.

Re: UPDATE ON HEADACHES, ETC

vermint — Wed, 26 Jun 2019 17:16:30 GMT

@dennylilly You are in my prayers! Hope you find some answers soon.

Re: UPDATE ON HEADACHES, ETC

sligo — Wed, 26 Jun 2019 17:17:38 GMT

@dennylily, Waiting is horrible. Will remember you each day. I have an appt. in Oct. for which I worry each day. We'll remember each other daily. PROMISE!!

Re: UPDATE ON HEADACHES, ETC

Peaches McPhee — Wed, 26 Jun 2019 17:53:58 GMT

Oh, I feel for you. I always say that we do a horrible job of delivery of health care in this country. Our technology is exceptional, but we do a p*ss-poor job of scheduling it. Hope you get the relief you need, and soon.

Re: UPDATE ON HEADACHES, ETC

chrystaltree — Wed, 26 Jun 2019 18:22:55 GMT

I would not wish chronic pain on my worse enemy. It usually takes multiple assessments for multople medical specialities and bunch of scans and imaging procedures. But, hang in there. They'll figure it out and when they do, they can develop a treatment plan. I can relate to not being able to pin point where the pain is. I had that problem with my knee and back pain. I remember the orthopod and the neurologist and the pain specialist could determine if my bad knee was causing my back pain or if my back was causing the knee pain.

Re: UPDATE ON HEADACHES, ETC

sfnative — Wed, 26 Jun 2019 19:39:57 GMT

@dennylilly

I'm so sorry that the imaging center erred in scheduling your MRI. I've had many MRIs and don't think one has ever been mis-scheduled. It's especially concerning when you're in pain.

Though I'm not familiar with your headache history, I would strongly recommend that you seek a consultation with THE headache specialist in your state or region. Yes, that person may be a bit of a drive from you, but worth gold. The reason I say this is that I've had chronic migraine - the same migraine every day since July of 1984 - and every time we've moved have had to do a lot of research to find out who the headache/migraine guru was in my area.

We move to our present city in the summer several years ago and there is no headache specialist here woth a dime, so will be seeking someone 500 miles north from us or return to my migraine doc in La Jolla - expensive to keep flying there, though.

I wish you every good outcome regarding your MRI. My advice to you is to begin assuming that your issue might be migraine, so best would be to start eating "clean." By that I mean nothing out of a box(except clean cereals), no sea salt, nothing with modified starches/proteins, no MSG - as these ingredients cause spikes in already existing pain.

God Bless You in your quest to determine the cause of your pain.

Re: UPDATE ON HEADACHES, ETC

CelticCrafter — Wed, 26 Jun 2019 19:53:38 GMT

They should have called you to tell you the person had gone home for the day. It's not like they didn't know what you were scheduled for. I would have been more than ticked off.

Re: UPDATE ON HEADACHES, ETC

wishmoon — Wed, 26 Jun 2019 20:04:40 GMT

I echo the advice by @sfnative. Headaches are a horrible thing because they're so difficult to diagnose. Men like to think since you're a woman, it goes with the territory. These men (doctors) just don't want to admit their inability to find the reason behind your pain. I've had some luck w/Botox but the neurologist who gave the shots to me had to give them in the back of my neck for them to work. I've had Botox from other doctors that did zip.

Best of luck whatever they should decide. Nobody should be in that continual pain, I'll be thinking of you.

Re: UPDATE ON HEADACHES, ETC

K9buddy — Wed, 26 Jun 2019 20:46:16 GMT

I’m surprised your doctor didn’t give you something for the headaches until you could get to the bottom of what’s causing them.

Re: UPDATE ON HEADACHES, ETC

Shelbelle — Wed, 26 Jun 2019 21:23:58 GMT

My friend has had debilitating headaches for over 40 years, only thing that has helped her is Botox. It was the last thing she could try, and it worked, so far so good. She even tried the Aimovig injections, did nothing

Re: UPDATE ON HEADACHES, ETC

dennylilly — Wed, 26 Jun 2019 21:26:23 GMT

@sfnative wrote:
@dennylilly

I'm so sorry that the imaging center erred in scheduling your MRI. I've had many MRIs and don't think one has ever been mis-scheduled. It's especially concerning when you're in pain.

Though I'm not familiar with your headache history, I would strongly recommend that you seek a consultation with THE headache specialist in your state or region. Yes, that person may be a bit of a drive from you, but worth gold. The reason I say this is that I've had chronic migraine - the same migraine every day since July of 1984 - and every time we've moved have had to do a lot of research to find out who the headache/migraine guru was in my area.

We move to our present city in the summer several years ago and there is no headache specialist here woth a dime, so will be seeking someone 500 miles north from us or return to my migraine doc in La Jolla - expensive to keep flying there, though.

I wish you every good outcome regarding your MRI. My advice to you is to begin assuming that your issue might be migraine, so best would be to start eating "clean." By that I mean nothing out of a box(except clean cereals), no sea salt, nothing with modified starches/proteins, no MSG - as these ingredients cause spikes in already existing pain.

God Bless You in your quest to determine the cause of your pain.

thank you for your response. Can migranes just start all the sudden? Ive never had them before. I got an occasional headache now and then but I started getting these a couple months ago but they were mild and went away quickly so I was not concerned. But they became more frequent and now I have had one every day. I don't wake up with one usually---anyway I appreciate your comment and advice.

Re: UPDATE ON HEADACHES, ETC

dennylilly — Wed, 26 Jun 2019 21:28:23 GMT

@CelticCrafter wrote:
They should have called you to tell you the person had gone home for the day. It's not like they didn't know what you were scheduled for. I would have been more than ticked off.

Unfortunately the scheduler made the mistake of what kind I was scheduled for. Very upsetting, annoying and everything else. I was so relieved to not live with this much longer and now its a week away.... yes I am pretty mad they made the mistake but nothing I can do but be a big girl and deal....

Re: UPDATE ON HEADACHES, ETC

dennylilly — Wed, 26 Jun 2019 21:30:20 GMT

@K9buddy wrote:
I’m surprised your doctor didn’t give you something for the headaches until you could get to the bottom of what’s causing them.

She told me to use Flonase. I stopped using it because it can CAUSE headaches but I may try it again tomorrow. I have also tried Excedrin which always takes care of my infrequent headaches, but it does not touch these.

Re: UPDATE ON HEADACHES, ETC

Drythe — Wed, 26 Jun 2019 21:42:00 GMT

@dennylilly

I am sorry for the confusion, and your pain, not to mention the added stress of not knowing.

Yes, in my experience Migraines can start out of nowhere, mine did. Suddenly one day, BANG - excruciating pain, bad vision in RT eye, shooting pain from back of neck to eye, unstoppable vomiting, every 20 minutes, dizziness, light and motion intolerance.

After 6 months I found to THE headache Neurologist in my area, who is also the smartest person I have ever met, and I know some very smart people. What a life changer he has been!

Hope you find help VERY soon.

Re: UPDATE ON HEADACHES, ETC

Drythe — Wed, 26 Jun 2019 21:44:37 GMT

Oh, My Gosh, @sfnative !

I can not even imagine how you cope.

Best Wishes To You.

Re: UPDATE ON HEADACHES, ETC

PamfromCT — Wed, 26 Jun 2019 23:35:49 GMT

@dennylilly, I hope you find an explanation and treatments for your headache as soon as possible. I know it is hard, but all these tests are so scary. It is easy to think the worst. But the scenarios range from migraine or cluster headaches, etc. I am so hoping for the best and praying for you.

Re: UPDATE ON HEADACHES, ETC

speedy girl — Wed, 26 Jun 2019 23:36:43 GMT

Do you take any pain killers for your headaches? I noticed that when I eased up on taking Advil, my pain got a little better. I think they said I was getting rebound headaches. Not totally gone but somewhat better. But I will for sure keep you in my prayers as daily pain is so awful.

Re: UPDATE ON HEADACHES, ETC

PamfromCT — Wed, 26 Jun 2019 23:40:45 GMT

@sfnative, I am so sorry for all you continue to go through. It would be wonderful if you could find someone to help you close to home. Take care. I wish you well.

Re: UPDATE ON HEADACHES, ETC

K9buddy — Thu, 27 Jun 2019 01:07:54 GMT

@dennylilly wrote:
@K9buddy wrote:
I’m surprised your doctor didn’t give you something for the headaches until you could get to the bottom of what’s causing them.
She told me to use Flonase. I stopped using it because it can CAUSE headaches but I may try it again tomorrow. I have also tried Excedrin which always takes care of my infrequent headaches, but it does not touch these.

I agree with you that the Flonase was a bad suggestion on your doctor’s part. There are oral medications that she could have given you for your headaches. I get migraines and take Maxalt. Maybe Flonase is for a sinus infection but I can’t see what good it will be for your headaches. Are you seeing a neurologist or is your doctor just a GP?

Re: UPDATE ON HEADACHES, ETC

ROMARY — Thu, 27 Jun 2019 01:20:14 GMT

Make sure your sheets and pillow cases aren't loaded with scents and chemicals re: dryer sheets and strong laundry detergents.

They can cause allergies which could lead to headaches.

Happened to me many years ago.

Finally, by accident at the doc's office, I found the 'culprit', so to speak.

My migraines were caused from a reaction (histamines) to chemicals, scents, etc., etc.

A quarter of a straight anti-histamine pill (Ben*dryl and various store brands) worked.

I was told that it would put a stop to the histamine build-up which, if left too long, caused my extreme headaches.

In my case, it was always a delayed reaction.

That is, the next day after being exposed to the trigger.

Well, it sure worked, and wish I would have known years prior to finding out that important info.