topic Re: Anyone dealing with Ulcerative Colitis with problems in Wellness

Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Tue, 06 Jan 2026 01:06:29 GMT

I was diagnosed in 2024. Made changes and thought I was doing good considering. December was due for colonoscopy. Test results revealed flare up totally inflammation. Currently on steroids, need to do stool test and blood work.I had absolutely no symptoms of any problems. No fever, no changes in bathroom schedule , no cramps or pain. Totally confused.

My gastro doctor was doing the colonoscopy but during prep made comments that I wasn't helping them get me in position for the test.I had just finished my two eye cataract surgery. I haven't seen him in a year because all appointments was with his nurse practitioner. Ready to look for another doctor.

Re: Anyone dealing with Ulcerative Colitis with problems

Mom2Dogs — Tue, 06 Jan 2026 01:32:03 GMT

@SouthernBee Sorry you are dealing with this issue, and the fact you don't have any symptoms seems odd.

I don't have any advise, as I don't have this issue but wondering about the comment about your doctor mentioning you were 'not helping getting in to position' for the colonoscopy...you were awake during the procedure?

Re: Anyone dealing with Ulcerative Colitis with problems

pdlinda — Tue, 06 Jan 2026 01:46:31 GMT

@SouthernBee My opinion is LISTEN TO YOUR BODY! If the doctor's reccommendations /diagnostics DON'T MATCH YOUR EXPERIENCE WITH YOUR CONDITION, get another opinion.

If it were me, I would get all my med records from this doctor and find another to review your case.

Re: Anyone dealing with Ulcerative Colitis with problems

LuvSoCal — Tue, 06 Jan 2026 04:58:25 GMT

@SouthernBee I can't offer any advice but I'm interested in your condition because I know someone who suffers from this and he was told that he would require some sort of intravenous treatments for the rest of his life and he's only 30!

May I ask how you keep your symptoms under control? Do you have a very restrictive diet?

Re: Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Tue, 06 Jan 2026 12:02:26 GMT

@Mom2Dogs : Thank you.
My doctor has no understanding of me. I have low back and hip problems. Very difficult for me to roll over or pull my self in a higher position on the bed. The anesthesiologist and nurse was trying to get me in the correct position for the colonoscopy. I am a breast cancer survivor and mastectomy done on the right side and told never to have IV on this side. Doctor doesn't agree with this and stated the IV on the left side more difficult to position me for the colonoscopy. Plus the blood pressure cuff on the left side was tangled with the IV. The anesthesiologist was rolling me over on my back to untangle everything when my doctor was entering the area to do the colonoscopy. He was aggravated and snapped at me, anesthesiologist and nurse. The anesthesiologist stated : She is disabled and just had two surgeries in November and needing extra help.

In recovery the doctor quickly stated had detected grey areas and biopsies done and mentioned another medical issue that I didn't know. My husband was in the waiting room and I assumed my doctor talked with him but DH said : "no".

This doctor with my 2024 colonoscopy acted the same way. 2024/ 2025 was a lot of medical issues for me. I was in the process of changing my primary care doctor after 35 years. This year will be changing gastro doctors. Hope this isn't tool much info.

Re: Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Tue, 06 Jan 2026 12:04:05 GMT

@pdlinda : Thank you. Totally agree and will be doing this.

Re: Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Tue, 06 Jan 2026 12:14:27 GMT

@LuvSoCal : This is so sad about your young friend. He will need a very dedicated and compassionate medical team.

Everyone is different and needs to find what works for them. I have been under a lot of stress. I can't stand up and doing a lot of cooking and ordering food. In 2024, I was making and eating a lot of salads, and vegetables, protein. I tried the home delivery prepared food but didn't find anything for all my food issues. Every thing is expensive but I need to do more research for better nutrition.

Re: Anyone dealing with Ulcerative Colitis with problems

tansy — Tue, 06 Jan 2026 14:46:45 GMT

At least the nurse was confident enough to talk back to that clod of a gastroenterologist.

I would not go back to him but might doublecheck the advice about the no IV on the right side🤷‍♀️

Re: Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Tue, 06 Jan 2026 15:29:10 GMT

@tansy :Thank you. I will be seeing my primary care doctor tomorrow and have a long list of questions including the one for IVS on the right side.

Re: Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Tue, 06 Jan 2026 15:59:01 GMT

Hi Y'all: Really confused. Is it just me or was everything just changed on the forums to a different style and or whatever? Hope that I'm not stuck in : The Twlight Zone😳😳😳😮😮

Re: Anyone dealing with Ulcerative Colitis with problems

wagirl — Tue, 06 Jan 2026 16:00:24 GMT

@SouthernBee ---YES---I'd be looking for a different dr ASAP!! What a total jerk!! And being me--I would also complain to AMA or whoever about how horrible you were treated. No excuse for that--

what forum changes????

Re: Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Tue, 06 Jan 2026 16:01:12 GMT

@wagirl : Thank you. Totally agree and DH in process of filing complaint.

Re: Anyone dealing with Ulcerative Colitis with problems

Mom2Dogs — Tue, 06 Jan 2026 17:33:46 GMT

@SouthernBee Gosh, what an ordeal! I have a colonoscopy scheduled in another week or so....In the past I don't recall anything from the time I am wheeled into the procedure room until I wake up back in my 'bed'.

Good luck to you and yes, I would be looking for another doctor. You could make a complaint with the place that did the procedure.

Re: Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Tue, 06 Jan 2026 19:29:02 GMT

@Mom2Dogs : Thank you. Totally agree. Dealing with a lot of things and changes . Can't finish one issue without something else. I know that is life but need to rant sometimes.

Re: Anyone dealing with Ulcerative Colitis with problems

Still Raining — Wed, 07 Jan 2026 15:25:06 GMT

Sorry they were rude and did not take note of your restrictions. Very unsettling.

Perhaps it would be useful to have an visit prior just to confirm the plans? I have to do with a Mammo due to my shoulder.

It also could be that he thought you were out of and could not hear him mumbling. Once when I was having a bone rebroken, the last thing I heard was the surgeon yelling "Not THAT saw!" 😬

Hope next time is smoother.

Re: Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Wed, 07 Jan 2026 22:26:44 GMT

@Still Raining : Thank you and totally agree and understand. I was still awake and trying to be put in the correct position for the colonoscopy. I saw and hear everything in the room.

That had to be scary to hear your doctor say that about the wrong saw.
I had a lot of orthopedic surgery because of cerebral palsy.

Re: Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Wed, 07 Jan 2026 22:41:35 GMT

@LuvSoCal @tansy @wagirl @Mom2Dogs @Still Raining . Hope that I included everyone that has helped me.
Woke up this morning to get ready for my doctor appointment. My face was swollen round and very beet red all over including my arms and not feeling great.

The nurse practitioner was very good and listening. Blood pressure spiked. She said both were side effects of the steroids. Everything returned to normal during the office visit. I asked her about blood pressure, blood work and IV's for my breast cancer right side. She stated that my doctor would recommend "no" because of all my medical issues and didn't want to risk adding another problem. Stated only if it was a medical emergency just once to do the right arm. I totally agree.

I told her about my issues with my current gastroenterology and please start referrals for a new doctor. I hate changes but this one is necessary.

I appreciate all your help. Enjoy your evening.❤️

Re: Anyone dealing with Ulcerative Colitis with problems

wagirl — Thu, 08 Jan 2026 00:01:57 GMT

@SouthernBee --how horrible for you!!! Geez--seems like the things that are SUPPOSED to help-- make you feel miserable before and if , they kick in !! I too, am a breast cancer survivor --mastectomy and lymph nodes removed on my left side so I have all that stuff done on my right arm. However--my preference for using my right arm and NOT my left arm is in my records., so that if I am not able to tell them, they will see it online. Glad your nurse prac listened and very glad you are going to find another gastro guy. If there is one thing I learned from all the cancer zombie stuff--is that it is up to me to take control as much as I can!!! Those medical people---work for me !!! Hope you get to feeling better!! Keep us posted!!

Re: Anyone dealing with Ulcerative Colitis with problems

SouthernBee — Thu, 08 Jan 2026 13:11:39 GMT

@wagirl : Totally agree and understand.

We really have to speak up about our medical history. I have stressed for all this information to well documented and followed.

I took a very long nap yesterday.

Then DH had phone call about a medical fraud issue that he is fighting with his insurance company. I took notes for him while he was talking on the phone. Trying to help him keep everything well documented. Medical test was done in another city using his name and insurance information. DH hasn't been to that city for any test. None of his doctors ordered the test. Very important to read all statements and details received.

I appreciate you and everyone's help.

Re: Anyone dealing with Ulcerative Colitis with problems

Still Raining — Thu, 08 Jan 2026 14:37:54 GMT

@SouthernBee

You go girl!!!! Knocked this one out of the park!