topic Re: Osteoporosis in Wellness

Osteoporosis

I am still oxox — Sun, 21 Sep 2025 04:05:19 GMT

The more I am learning about it the more upset with the medical world I am getting.

Over the past 5 years I have broken both my wrists and both my hips.

According to what I have read I should some begun sort of treatment with the first break. I am going for a mass of blood work Monday and see the doctor next week. Although the dexa scan was an issue it did show Osteoporosis in my left writs, which was my first wrist. I am very interested in the outcome. Just venting. Thoughts are welcome

Re: Osteoporosis

nrm — Sun, 21 Sep 2025 04:19:20 GMT

@I am still oxox I agree with you regarding my osteoporosis. I had a bone scan in my early 60's which came back at 3.5. My doctor apologized and said that he should have advised the test when I was in my 40's.
I am so sorry that you're going through this. I know that I wished I had known much earlier about the treatments that were available since my doctor said that the treatment wouldn't help me now.

Best to you with your tests.

Re: Osteoporosis

Linmo — Sun, 21 Sep 2025 05:09:05 GMT

@I am still oxox I suffered both a fractured femur and upper arm last year when falling while walking my dog just before my 65th birthday. Even before my dexascan, I was told that I had osteoporosis due to the fractures and was started on monthly evenity injections. My scan showed that I had severe osteoporosis. My last evenity shot is next month and then I'll have another scan in December.

@nrm I question why your doctor would tell you that the treatments wouldn't help you now. Many of my dexascan numbers were worse than -3.5. Evenity not only prevents bone loss, but also builds new bone. My interim blood tests have shown that it is working for me.

Best wishes to you both!

Re: Osteoporosis

SilleeMee — Sun, 21 Sep 2025 12:50:46 GMT

It's very unfortunate that many women don't even know that they have osteoporosis/osteopenia until they break a bone in an accident like falling most likely. I read that somewhere around 80% of older people have no idea that their bones are thinning.

Re: Osteoporosis

juanitalinda — Sun, 21 Sep 2025 14:26:29 GMT

Has anyone had the Dexascan with TBS?

The TBS measures the inner bone quality. The scores tell you how your inner bone, the trabecular bone, is connected. This differs from a T-score, which measures your bone density, or the quantity.

In my case, the Dexascan T-scores showed only mild osteopenia so I wasn't prescribed any medication.

However, after 3 spontaneous fractures, the doctors said I had severe osteoporosis. The outside of my bones are solid, but the insides are not.

Re: Osteoporosis

haddon9 — Sun, 21 Sep 2025 14:31:20 GMT

Check and ask about your vitamin D levels when you get your blood work done. Strong vitamin D levels help with bone strength.

Re: Osteoporosis

Estates — Sun, 21 Sep 2025 14:40:39 GMT

@juanitalinda Thank you for bringing this to our attention. I had my first bone density test in January. All my t scores came back under .1 except for myright femoral neck at 1.2.

It gave me a probability in TRAX .7 and TBS .4 for a hip fracture. .No medication needed at this point. I now have a better understanding of these numbers. I just went back and looked at my test results. My doctor said I don't need another test for 3-5 years but did mention my bones were thinning. That really helped me so thanks again.

Re: Osteoporosis

SilleeMee — Sun, 21 Sep 2025 16:38:10 GMT

My T-scores of my femoral horns were both below -2.5 when my osteoporosis was discovered. Scores we so low that they were actually off the chart. I had hip pains but I never thought it was related to osteop. Thought it was arthritis actually. But after many years Rx drugs, changes to my diet, exercise ...one of my femur horns is now in the osteopenia range but the other side is still osteoporotic with a T-score of -2.5. Better now than before.

Re: Osteoporosis

juanitalinda — Sun, 21 Sep 2025 16:46:37 GMT

@SilleeMee

If I remember correctly, you took Evenity, then Reclast.

I have done the same. Gained almost 20 pounds on Evenity, but it is slowly coming off now.

I am only 4 months post-Reclast infusion and lots of things have changed. My LDL dropped a ton, but unfortunately so did my hair. I might have to consider a wig if this keeps up.

Still ... I have no interest whatsoever in returning to a wheelchair so I will take the side effects and hope for the best.

Re: Osteoporosis

SilleeMee — Sun, 21 Sep 2025 16:51:38 GMT

@juanitalinda

Yes I had the 12-months of Evenity and my bone density went up by 14% which is phenomenal. Then after that it was 2 doses of Prolia...never again with that one. Had side effects. I just got my first Reclast last week. So far so good.

I did not gain weight from Evenity nor did have hair loss. Are those side effects?

Re: Osteoporosis

juanitalinda — Sun, 21 Sep 2025 16:56:24 GMT

@SilleeMee

Weight gain is not listed as a side effect of Evenity; however on the Mayo Clinic Osteoporosis Connect page many people have remarked about how much weight they gained.

Hair loss is a listed side effect of Reclast.

As to Prolia .... I know some people had no side effects, but others .... OMG ... just terrible.

Hopefully you continue to build bone without any negative side effects. (Seriously ... why can't the side effects be wonderful ... you know .. like luscious eyelashes ... or wrinkle-free skin?)

Re: Osteoporosis

SilleeMee — Sun, 21 Sep 2025 16:58:56 GMT

@juanitalinda

Oh dear. I did not know that hair loss can be a side effect from Reclast. I already have thinning hair with alopecia areata. Now this?! Hope I don't have that side effect from Reclast!

Re: Osteoporosis

SilleeMee — Sun, 21 Sep 2025 17:02:16 GMT

@juanitalinda

When did you notice your hair loss after the Reclast?

Re: Osteoporosis

conlt — Sun, 21 Sep 2025 17:03:13 GMT

This is an interesting topic for me. Last December, I stood up and my foot rolled off of my sandal. I broke my right foot. I had previously been diagnosed with Osteopenia.

My Endocrinologist said because I broke a bone, I am now a candidate for medication to help stop bone loss. So I went on Actonal 1 X per month. My latest bone density shows no change.

So, I believe you are correct, your Osteoporosis should have been addressed.

Re: Osteoporosis

juanitalinda — Sun, 21 Sep 2025 17:12:32 GMT

@SilleeMee

I noticed it about 3-4 months in. I don't think it is a common side effect, but it is documented. I think it affects something like 1 or 2% of the people taking it.

Re: Osteoporosis

SilleeMee — Sun, 21 Sep 2025 17:19:53 GMT

@juanitalinda wrote:
@SilleeMee

I noticed it about 3-4 months in. I don't think it is a common side effect, but it is documented. I think it affects something like 1 or 2% of the people taking it.

@juanitalinda

That's good to know, TG. There is a good side to getting Reclast. It lowers cholesterol, including LDL, which I have had slightly elevated LDL levels in the past but not high enough to get on meds. I just read that it's the cholesterol-lowering part of Reclast that might be associated with hair loss. I found that interesting.

Re: Osteoporosis

juanitalinda — Sun, 21 Sep 2025 17:42:57 GMT

@SilleeMee

I didn't know that the hair loss and LDL-lowering effects could be related.

Thanks.

Re: Osteoporosis

SilleeMee — Sun, 21 Sep 2025 18:03:18 GMT

@juanitalinda wrote:
@SilleeMee

I didn't know that the hair loss and LDL-lowering effects could be related.

Thanks.

@juanitalinda

It lowers both LDL and HDL. Hair loss is associated with low HDL and high LDL. Just to be clear.

Re: Osteoporosis

juanitalinda — Sun, 21 Sep 2025 18:10:36 GMT

@SilleeMee

I just went back and checked. Yes, it lowered my HDL 15%, but since it was high before, I didn't notice.

It lowered by LDL by 50%, which I DID notice right away.

Re: Osteoporosis

MJDinVegas — Mon, 22 Sep 2025 00:25:50 GMT

Hello, sisters in osteoporosis! I was diagnosed 1.5 years ago now after having had osteopenia two years prior to that. My mom had osteoporosis and MS and we have autoimmune in the family. I've taken Prolia successfully for 1.5 years and will get my fourth shot in July 2026 with my next scan next July or so.

I was never a candidate for Fosamax as one of the side effects is the possible progression of Barrett's Esophagus to esophageal cancer ; I also have Barrett's.

Unfortunately, they were unable to use scans of my hips to diagnose osteoporosis as both have been replaced (2004 and 2008; I was only 49 at the time of the first one). Presumably this was all from osteoarthritis but now I wonder if both weren't active agents in the hip replacements.

Thankful that I'm still able to be active, walking 4.5 miles 4-5 times a week and keep up with a 4.5 year old who's still all puppy all the time.

Ive never broken a bone and hope to escape this life without ever having done so. LOL

Hang in there, @I am still oxox . 🙏