topic Health Update in Wellness

Health Update

jubilant — Wed, 28 Jun 2023 12:00:39 GMT

I saw a hematologist about the Hepatic Infarction that I have. I told her I was puzzled by this and every doctor I have seen says this is rare and puzzling. I have talked to no one that knows anyone that has had this. The hematologist said she agrees. She said that most people she see's have deep vein thrombosis and this isn't that and she would have to study on it more. She is older and has been a doctor for years and has never come across this before.

Meanwhile, this Friday, I will be having a couple of ultrasounds....one on my abdomen and one on the leg they took my veins for my Quadruple open heart surgery. I have lost some weight but am slowly getting my appetite back. They have put me on Eliquis. It's very expensive but the doctor gave me a 30 day free coupon. After that I'm hoping to switch to something cheaper like warfarin. So far, except for the swelling of my stomach and intestines I haven't had another painful attack like the one that sent me to the emergency room. I'm thankful for that!

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On It — Wed, 28 Jun 2023 12:59:28 GMT

i am so glad you are having improvement and that your doctor is willing to do the research to get to the cause.

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catter70 — Wed, 28 Jun 2023 13:11:00 GMT

Hoping you continue to recover and they find out what's causing your issues.

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Zhills — Wed, 28 Jun 2023 13:31:19 GMT

@jubilant Sure hope that all comes out well and you recover quickly. Prayers for you.

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Terrywu — Wed, 28 Jun 2023 13:59:01 GMT

Sending a prayer and good wishes for a speedy recovery.

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hckynutjohn — Wed, 28 Jun 2023 21:13:32 GMT

@jubilant

Hopefully this doctor can get to the source of this issue. I personally had not known of this.

If you have to stay on Eliquis long term? I suggest you ask your doctor for paper work to fill out to the manufacturer of Eliquis. I have the same issue with Entresto, way out of what I can afford. I filled out the paperwork and got approved, and I now receive it free for 12 months.

After that, I can refile the same and receive the it for another 12 months. If you would have to struggle with this, I would suggest looking into this.

Coumadin/Warfarin is still available and works well. Doctors don't like to prescribe it because involves getting regular Blood Draws to check your INR/ProTime levels.

hckynut 🇺🇸

Re: Health Update

Tissyanne — Wed, 28 Jun 2023 22:29:06 GMT

@hckynutjohn wrote:
@jubilant

Hopefully this doctor can get to the source of this issue. I personally had not known of this.

If you have to stay on Eliquis long term? I suggest you ask your doctor for paper work to fill out to the manufacturer of Eliquis. I have the same issue with Entresto, way out of what I can afford. I filled out the paperwork and got approved, and I now receive it free for 12 months.

After that, I can refile the same and receive the it for another 12 months. If you would have to struggle with this, I would suggest looking into this.

Coumadin/Warfarin is still available and works well. Doctors don't like to prescribe it because involves getting regular Blood Draws to check your INR/ProTime levels.

hckynut 🇺🇸

@jubilant , @hckynutjohn I echo what is said here regarding the Eliquis. My Mom had to take this, and she applied through the social department of the cancer center where her oncologist practiced.

She was approved, and honestly, it surprised me. Each month they had her Eliquis delivered FedEx.

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spiderw — Wed, 28 Jun 2023 22:42:51 GMT

jubliant

As I get older I realize more and more good health is priority. I am not at all familiar with your health issue. I am glad you are following through with treatment and research by your doctor. I wish you the best with healing and recovery and hopefully you will also have answers to your medical concerns. May good health return and put your mind at rest.

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Franklinbell — Thu, 29 Jun 2023 04:20:02 GMT

feel better soon!

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on the bay — Thu, 29 Jun 2023 04:35:45 GMT

@jubilant,

Gosh you have been through so much. I hope your doctors will find what they need to help you.

Though you hope they would know exactly what to do in a w ay I think it is good that that doctor said she would have to study more on it. Like not just guessing you know?

I hope you keep feeling better and then all the way to good!

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jubilant — Thu, 29 Jun 2023 13:50:41 GMT

@hckynutjohn @Tissyanne Thanks for the info on the Eliquis. I appreciate it. I couldn't believe how expensive it is! I will definitely look into it. From what I understand... Eliquis is a 24 hr. pill... in that, if you need emergency surgery, they can do it in a shorter period of time ...whereas with Warfarin the wait would be longer.

Re: Health Update

jubilant — Thu, 29 Jun 2023 14:00:09 GMT

@on the bay wrote:
@jubilant,
Gosh you have been through so much. I hope your doctors will find what they need to help you.
Though you hope they would know exactly what to do in a w ay I think it is good that that doctor said she would have to study more on it. Like not just guessing you know?
I hope you keep feeling better and then all the way to good!

@on the bay I agree about the doctor. She has lots of degrees but was humble enough to admit this one is something she will have to study on. I was impressed. I would prefer to stay close to home. Lot's of people around here get sent to the Cleveland Clinic but I would prefer to be closer to home and the hospital she is affiliated with has a good reputation and is only about a 30 minute drive from us.

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cindyNC — Thu, 29 Jun 2023 14:28:07 GMT

Hope this gets resolved soon for you!

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Marieanne — Thu, 29 Jun 2023 17:12:39 GMT

Prayers for answers and healing.

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gloriajean — Thu, 29 Jun 2023 17:48:12 GMT

Praying for you, Jubilant!!

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hckynutjohn — Thu, 29 Jun 2023 18:45:07 GMT

@jubilant wrote:
@hckynutjohn @Tissyanne Thanks for the info on the Eliquis. I appreciate it. I couldn't believe how expensive it is! I will definitely look into it. From what I understand... Eliquis is a 24 hr. pill... in that, if you need emergency surgery, they can do it in a shorter period of time ...whereas with Warfarin the wait would be longer.

@jubilant

I know from my many years on Coumadin(warfarin) they say it stays in your system for 72 hours. With Lovenox it is 12 hours, thus the injections twice a day.

None of my doctors were able explain to me, in terms I believe, why when on Eliquis, there are no blood draws, to check INR/ProTime numbers.

I know those numbers quite well, because I have been on both deadly ends of them. With my 2 episodes of PE(lung blood clots) from low INR/Protime, and almost bleeding out from high INR/Protime. Had I not been in a building connected to the hospital when my INR spiked, I would have bled out.

Were I to need to be on blood thinners, long term again, I would insist on the one that is monitored, Coumadin/Warfarin. That for the reasons I explained above.

Really hope it all works out well for you. 2🙏

hckynut 🇺🇸