topic Re: Humira .... in Wellness

Humira ....

Kitty Galore — Wed, 26 Sep 2018 20:22:08 GMT

my doctor is starting me on Humira wondering if anyone is on it and what are your thoughts? I've been kind of Leary about going on it , but in my case there is nothing else that can help he feels this drug hopefully will. I've been putting him off for awhile now as Injections freak me out !! 🙀. I will go to my primary and her nurse will administer the Injection. It's due to arrive tomorrow and I'm pretty anxious about side effects and all. There are so many ! I have many allergies and sensitive too many types of drugs. Well I guess I'll find out after that ist dose.

would like to hear your experience if your taking this drug . Also if it helped you .

Re: Humira ....

nomar — Wed, 26 Sep 2018 20:29:03 GMT

My husband has been on it for about 3 years now without any side effects that are a problem. His doctor has his liver checked twice a year and so far very good. It has cleared his psoriasis probably 90%. He feels he cannot do without it. Does not want to go back to the horrible skin condition. Good luck to you.

Re: Humira ....

Kitty Galore — Wed, 26 Sep 2018 21:47:19 GMT

@nomar wrote:
My husband has been on it for about 3 years now without any side effects that are a problem. His doctor has his liver checked twice a year and so far very good. It has cleared his psoriasis probably 90%. He feels he cannot do without it. Does not want to go back to the horrible skin condition. Good luck to you.

@nomar I'm glad to hear your husband has done so well on Humira it's wonderful when a drug works for a chronic condition such as psoriasis. I'll be taking it for another condition and teally hope it helps side effect free. Thank you 😺

Re: Humira ....

Stevie Nix — Wed, 26 Sep 2018 21:50:01 GMT

I was on Humera for a few years for RA. No side effects, but it stopped being effective after a time. My dr switched me to Xeljanz.

The injections are no big deal. It's an ejection tube that you hold to a fatty part of yourself - stomach or thigh - and depress a button. It takes a few seconds for the drug to enter. It feels like a pin ******. I think after you have it done at your doctor's office you'll find it is easier to just do it at home.

Good luck!

Re: Humira ....

Sueliz — Wed, 26 Sep 2018 22:20:09 GMT

@Kitty Galore, I've been on Biologics for 14 years, Humira for the last 7 years. I use the auto-inject pen and do it myself weekly along with an injection of Methotrexate. I feel like the Humira does not work as well to control my disease as it once did, but because I also have chronic Uveitis I have to keep taking it.

No side effects at all, I see my Rheumatologist and have bloodwork done every 90 days. Good luck to you, I hope you find relief with it!

Re: Humira ....

grandma2pkmh — Wed, 26 Sep 2018 23:20:27 GMT

@Kitty Galore I have been on Humira for as long as it has been available for my RA. No side effects for me. I to was deathly afraid of needles when I first started but now it's a piece of cake. I use the auto-inject pen and it's so easy. The one thing I will tell you to remember is you need to let the pen come to room temp before using(about 30 min) or it will sting like he**. This is now advised by the makers of Humira.

Re: Humira ....

Kitty Galore — Thu, 27 Sep 2018 01:34:35 GMT

@Sueliz wrote:

@Kitty Galore, I've been on Biologics for 14 years, Humira for the last 7 years. I use the auto-inject pen and do it myself weekly along with an injection of Methotrexate. I feel like the Humira does not work as well to control my disease as it once did, but because I also have chronic Uveitis I have to keep taking it.

No side effects at all, I see my Rheumatologist and have bloodwork done every 90 days. Good luck to you, I hope you find relief with it!

@Sueliz Hi ! That's why My ophthalmologist is putting me on Humira I also have chronic uveitis and Cell Cept is not enough to keep it under control. I have had ozurdex implants but they raise my eye pressure. I would much rather take something that isn't an injection, but if it works then that will be wonderful! How long ha e you had uveitis ? What type do you have ? i haven't met anyone else with uveitis it's certainly can be a scary condition.

Re: Humira ....

Kitty Galore — Thu, 27 Sep 2018 01:40:30 GMT

@grandma2pkmh wrote:
@Kitty Galore I have been on Humira for as long as it has been available for my RA. No side effects for me. I to was deathly afraid of needles when I first started but now it's a piece of cake. I use the auto-inject pen and it's so easy. The one thing I will tell you to remember is you need to let the pen come to room temp before using(about 30 min) or it will sting like he**. This is now advised by the makers of Humira.

@grandma2pkmh I've read about that in bringing it to room temperature. In fact the nurse ambassador they put me in touch with made sure to tell me that. Right now I'm going to have my primary's nurse give it to me , just the thought of doing it myself scares me to death !!! Maybe in time I can but not right now. I opted for the pre filled Syringe instead of the pen.

Re: Humira ....

Sueliz — Thu, 27 Sep 2018 16:15:55 GMT

@Kitty Galore wrote:
@Sueliz wrote:

@Kitty Galore, I've been on Biologics for 14 years, Humira for the last 7 years. I use the auto-inject pen and do it myself weekly along with an injection of Methotrexate. I feel like the Humira does not work as well to control my disease as it once did, but because I also have chronic Uveitis I have to keep taking it.

No side effects at all, I see my Rheumatologist and have bloodwork done every 90 days. Good luck to you, I hope you find relief with it!
@Sueliz Hi ! That's why My ophthalmologist is putting me on Humira I also have chronic uveitis and Cell Cept is not enough to keep it under control. I have had ozurdex implants but they raise my eye pressure. I would much rather take something that isn't an injection, but if it works then that will be wonderful! How long ha e you had uveitis ? What type do you have ? i haven't met anyone else with uveitis it's certainly can be a scary condition.

Hi @Kitty Galore, I have also never met anyone else with it! I have Posterior Uveitis which was brought on by an autoimmune arthritis ( Ankylosing Spondylitis) that I was diagnosed with in 2004. I'm so fortunate to have a great Opthamologist who specializes in Uveitis, he has saved my eyesight 2x. My last flare started in May and I go next week to see if I can finally stop the steroid drops.

I'm so sorry you have this too, I know how incredibly painful it is. Please don't hesitate to reach out to me if you have any questions or just need to vent. Let me know how the Humira works for you. In April my Rheumatologist had me try Cosentyx for my AS but within 3 weeks I had a major Uveitis flare so back to Humira! Cosentyx doesn't work for Uveitis.

Re: Humira ....

RedTop — Thu, 27 Sep 2018 17:03:09 GMT

My cousins wife took Humira for RA for about 14 months or so, and did well. Right after that 14 month time period, she had large blisters pop out over 70% of her body that were very painful and weepy. The blisters did not go away until after she stopped the Humira. She now takes Xeljanz, and seems to be doing well so far.

Re: Humira ....

Drythe — Thu, 27 Sep 2018 17:17:48 GMT

@Kitty Galore

I was in the clinical trial for Humira. I had a bad reaction, including a break out of shingles that ran through my right eye, which caused the loss of some vision in that eye.

When I was 16 -17 I was diagnosed, so my autoimmune system is pretty bad.

I wish you all the best with your treatments.

Re: Humira ....

Kitty Galore — Sat, 29 Sep 2018 21:43:08 GMT

@Sueliz wrote:
@Kitty Galore wrote:
@Sueliz wrote:

@Kitty Galore, I've been on Biologics for 14 years, Humira for the last 7 years. I use the auto-inject pen and do it myself weekly along with an injection of Methotrexate. I feel like the Humira does not work as well to control my disease as it once did, but because I also have chronic Uveitis I have to keep taking it.

No side effects at all, I see my Rheumatologist and have bloodwork done every 90 days. Good luck to you, I hope you find relief with it!
@Sueliz Hi ! That's why My ophthalmologist is putting me on Humira I also have chronic uveitis and Cell Cept is not enough to keep it under control. I have had ozurdex implants but they raise my eye pressure. I would much rather take something that isn't an injection, but if it works then that will be wonderful! How long ha e you had uveitis ? What type do you have ? i haven't met anyone else with uveitis it's certainly can be a scary condition.

Hi @Kitty Galore, I have also never met anyone else with it! I have Posterior Uveitis which was brought on by an autoimmune arthritis ( Ankylosing Spondylitis) that I was diagnosed with in 2004. I'm so fortunate to have a great Opthamologist who specializes in Uveitis, he has saved my eyesight 2x. My last flare started in May and I go next week to see if I can finally stop the steroid drops.

I'm so sorry you have this too, I know how incredibly painful it is. Please don't hesitate to reach out to me if you have any questions or just need to vent. Let me know how the Humira works for you. In April my Rheumatologist had me try Cosentyx for my AS but within 3 weeks I had a major Uveitis flare so back to Humira! Cosentyx doesn't work for Uveitis.

@Sueliz Hi ! I too am sorry you have to deal with this , please reach out to me as well anytime ! I have intermediate uveitis. Have had it for 5 yrs. I have been on cell Cept for my auto immune condition and have stayed on it as my opthamoligist said it will help with uveitis. I needed to increase but could not tolerate it so now we are adding Humira . I like you have a wonderful

opthamologist , he's young and still loves being a doctor lol. He researches and tries to find solutions to help me better !

How long did it take for you to see results in your sight after starting Humira? Took my first injection so will see how it goes.

Take good care my friend 😀

Re: Humira ....

Blingqueen023 — Sat, 29 Sep 2018 23:41:42 GMT

@Kitty Galore wrote:
my doctor is starting me on Humira wondering if anyone is on it and what are your thoughts? I've been kind of Leary about going on it , but in my case there is nothing else that can help he feels this drug hopefully will. I've been putting him off for awhile now as Injections freak me out !! 🙀. I will go to my primary and her nurse will administer the Injection. It's due to arrive tomorrow and I'm pretty anxious about side effects and all. There are so many ! I have many allergies and sensitive too many types of drugs. Well I guess I'll find out after that ist dose.

would like to hear your experience if your taking this drug . Also if it helped you .

@Kitty Galore I wouldn’t touch that drug with a 50 foot pole. It will give you a lymphoma.

Re: Humira ....

Kitty Galore — Sun, 30 Sep 2018 03:13:10 GMT

@Drythe wrote:
@Kitty Galore

I was in the clinical trial for Humira. I had a bad reaction, including a break out of shingles that ran through my right eye, which caused the loss of some vision in that eye.

When I was 16 -17 I was diagnosed, so my autoimmune system is pretty bad.

I wish you all the best with your treatment
@Drythe wrote:
@Kitty Galore

I was in the clinical trial for Humira. I had a bad reaction, including a break out of shingles that ran through my right eye, which caused the loss of some vision in that eye.

When I was 16 -17 I was diagnosed, so my autoimmune system is pretty bad.

I wish you all the best with your treatments.
@Drythe I'm sorry to hear about your reaction, I do lknow what's it's like to have a reaction to a medication , but nothing like what you had. Was your reaction right away or after years ? Thanks for the good wishes . I'll have to see how it goes for me I guess.

Re: Humira ....

Kitty Galore — Sun, 30 Sep 2018 03:17:31 GMT

@Blingqueen023 wrote:
@Kitty Galore wrote:
my doctor is starting me on Humira wondering if anyone is on it and what are your thoughts? I've been kind of Leary about going on it , but in my case there is nothing else that can help he feels this drug hopefully will. I've been putting him off for awhile now as Injections freak me out !! 🙀. I will go to my primary and her nurse will administer the Injection. It's due to arrive tomorrow and I'm pretty anxious about side effects and all. There are so many ! I have many allergies and sensitive too many types of drugs. Well I guess I'll find out after that ist dose.

would like to hear your experience if your taking this drug . Also if it helped you .
@Kitty Galore I wouldn’t touch that drug with a 50 foot pole. It will give you a lymphoma.

@Blingqueen023 Have you taken Humira? I just wondered. I did read about the possibility of lymphoma along with other side effects. As a doctor once told me. .....there is a little bit of poision in every medication unfortunately..

Re: Humira ....

Blingqueen023 — Sun, 30 Sep 2018 04:49:05 GMT

@Kitty Galore wrote:
@Blingqueen023 wrote:
@Kitty Galore wrote:
my doctor is starting me on Humira wondering if anyone is on it and what are your thoughts? I've been kind of Leary about going on it , but in my case there is nothing else that can help he feels this drug hopefully will. I've been putting him off for awhile now as Injections freak me out !! 🙀. I will go to my primary and her nurse will administer the Injection. It's due to arrive tomorrow and I'm pretty anxious about side effects and all. There are so many ! I have many allergies and sensitive too many types of drugs. Well I guess I'll find out after that ist dose.

would like to hear your experience if your taking this drug . Also if it helped you .
@Kitty Galore I wouldn’t touch that drug with a 50 foot pole. It will give you a lymphoma.
@Blingqueen023 Have you taken Humira? I just wondered. I did read about the possibility of lymphoma along with other side effects. As a doctor once told me. .....there is a little bit of poision in every medication unfortunately..

@Kitty Galore. No, I’ve never taken Humira, but ‘I was on a new blood thinner at the time that had Lymphoma as a side effect. I took that drug for a year and ended up with a Lymphoma that ‘I had to battle. After that, ‘I won’t take any drug that’s has Lymphoma as a side effect. No way.

Re: Humira ....

Sueliz — Sun, 30 Sep 2018 22:20:12 GMT

@Kitty Galore wrote:
@Sueliz wrote:
@Kitty Galore wrote:
@Sueliz wrote:

@Kitty Galore, I've been on Biologics for 14 years, Humira for the last 7 years. I use the auto-inject pen and do it myself weekly along with an injection of Methotrexate. I feel like the Humira does not work as well to control my disease as it once did, but because I also have chronic Uveitis I have to keep taking it.

No side effects at all, I see my Rheumatologist and have bloodwork done every 90 days. Good luck to you, I hope you find relief with it!
@Sueliz Hi ! That's why My ophthalmologist is putting me on Humira I also have chronic uveitis and Cell Cept is not enough to keep it under control. I have had ozurdex implants but they raise my eye pressure. I would much rather take something that isn't an injection, but if it works then that will be wonderful! How long ha e you had uveitis ? What type do you have ? i haven't met anyone else with uveitis it's certainly can be a scary condition.

Hi @Kitty Galore, I have also never met anyone else with it! I have Posterior Uveitis which was brought on by an autoimmune arthritis ( Ankylosing Spondylitis) that I was diagnosed with in 2004. I'm so fortunate to have a great Opthamologist who specializes in Uveitis, he has saved my eyesight 2x. My last flare started in May and I go next week to see if I can finally stop the steroid drops.

I'm so sorry you have this too, I know how incredibly painful it is. Please don't hesitate to reach out to me if you have any questions or just need to vent. Let me know how the Humira works for you. In April my Rheumatologist had me try Cosentyx for my AS but within 3 weeks I had a major Uveitis flare so back to Humira! Cosentyx doesn't work for Uveitis.
@Sueliz Hi ! I too am sorry you have to deal with this , please reach out to me as well anytime ! I have intermediate uveitis. Have had it for 5 yrs. I have been on cell Cept for my auto immune condition and have stayed on it as my opthamoligist said it will help with uveitis. I needed to increase but could not tolerate it so now we are adding  Humira . I like you have a wonderful
opthamologist , he's young and still loves being a doctor lol. He researches and tries to find solutions to help me better !

How long did it take for you to see results in your sight after starting Humira? Took my first injection so will see how it goes.

Take good care my friend 😀

@Kitty Galore, My eye doc is a younger guy too, love him! I had already been on Humira and Methotrexate for about 4 years when I had my first flare. My doc uses Pred Forte, Durezol and Ilevro drops but because this last flare was so bad I ended seeing a Retina Specialist to have the steroids injected directly into my eye. Thankfully I'm doing better now and hopefully after my appt Tues. I'll be able to stop the drops!

Take care of yourself as well, hope you remain "flare free"!

Re: Humira ....

ccassaday — Sun, 30 Sep 2018 23:42:47 GMT

I was on it. I noticed it helped for awhile then quit working. I take stelara now. Don’t be araid of it. Stelara has made my psoriasis go away. It’s not a big deal to give the shot either. Some people will say they would never take a biological. Buy when you have tried everything else it can be a god send.

Re: Humira ....

Sueliz — Mon, 01 Oct 2018 00:32:33 GMT

@ccassaday wrote:
I was on it. I noticed it helped for awhile then quit working. I take stelara now. Don’t be araid of it. Stelara has made my psoriasis go away. It’s not a big deal to give the shot either. Some people will say they would never take a biological. Buy when you have tried everything else it can be a god send.

You are so right @ccassaday, if it wasn't for biologics I would be in a wheelchair. Glad the Stelara worked for you!

Re: Humira ....

PilatesLover — Tue, 02 Oct 2018 15:56:41 GMT

Not Humira, but I took a very similar TNF inhibitor, Enbrel. They work the same way.

Enbrel was a miracle for me. I can't even tell you how I was suffering before the drug came out. I never had any side effect but relief. After a couple times, the injections were routine. My husband would give them to me in the back of the arm. I think they have the pens now which are better.

I got seven years of relief from it before it conked out on me. I take a new biologic now. I wish you the best.