topic NCI Clinical Trials in Rural Areas in Wellness

NCI Clinical Trials in Rural Areas

lolakimono — Mon, 20 Aug 2018 21:48:26 GMT

In case there is anyone hoping for a clinical trial, here is a list of states.

Re: NCI Clinical Trials in Rural Areas

sidsmom — Mon, 20 Aug 2018 22:18:34 GMT

I don’t understand...why the rural focus?

Re: NCI Clinical Trials in Rural Areas

lolakimono — Mon, 20 Aug 2018 22:27:31 GMT

@sidsmom

My guess is that they lack access to treatment options that are common in more populated areas.

Re: NCI Clinical Trials in Rural Areas

NickNack — Mon, 20 Aug 2018 22:35:40 GMT

My friend participated in a clinical trial for knee injections for arthritis. It didn't help her. I guess she got the placebo instead of the actual drug. I don't remember anything except that it didn't work.

Re: NCI Clinical Trials in Rural Areas

151949 — Tue, 21 Aug 2018 20:25:33 GMT

Starting clinical trials of what? A new drug? many new drugs? A new reatment modiality? ?????

Re: NCI Clinical Trials in Rural Areas

151949 — Tue, 21 Aug 2018 20:26:32 GMT

@NickNack I got those injections - had to pay a lot out of pocket too , and they didn't work.

Re: NCI Clinical Trials in Rural Areas

Evie2004 — Wed, 22 Aug 2018 00:11:27 GMT

@151949, probably all that you mentioned, depending on the diagnosis..poor WV, my home state..guess they think they can travel..not sure why they weren’t included in the rural stats.

I recently read on a website that NCI increased their budget to help patients & families that had to travel there..

Re: NCI Clinical Trials in Rural Areas

hckynut — Wed, 22 Aug 2018 02:41:35 GMT

There are 2 people that I know, 1 of which is my older sister, that have had knee injections. I can't think of the name right now, but it involved an injection into the knee, for 3 consecutive weeks. My sister said it has helped her immensely, especially taking care of her horses. She is 84.

The other lady is a friend I met ice skating, and she is 80 years old. I recommended my Sports Med Ortho Doctor friend to her, after she told me she needs her knee replaced. These injections have also helped her a lot, and she had them 3 months ago. Told me for some they last up to 8 months.

She still will need her knee replaced, but this procedure has allowed her to ice skate pain free now, and also to pick the right time to have her knee replaced. Wish I could recall what this is called, sorry. Maybe someone here has had this treatment, and it worked for them, or maybe not. I realize these things are not successful with all patients.

hckynut(john)

Re: NCI Clinical Trials in Rural Areas

Snowpuppy — Thu, 23 Aug 2018 01:30:56 GMT

Not exactly. Read NCORP's site.

This project is aimed at serving minorities and rural residents who are typically underserved.

Here in MI their sites are Royal Oak (Detroit suburb), Grand Rapids and Ann Arbor. None of which are rural. If you are rural, you have to travel.

Re: NCI Clinical Trials in Rural Areas

novamc1 — Thu, 23 Aug 2018 21:15:35 GMT

@lolakimono

I recently saw a map of the MANY counties in Georgia where not one doctor exists, never mind a doctor trained in oncology.

This isn't the story I just read this week, but it gives enough info on the problem.

http://www.georgiahealthnews.com/2014/01/doctor-shortage-acute-rural-areas/

Re: NCI Clinical Trials in Rural Areas

novamc1 — Thu, 23 Aug 2018 21:39:09 GMT

A few bright spots appear on the search for and development of more physicians and better treatment. for people who need it and can't find it.

Hopefully, more wealthy philanthropists like Ken Langone (co-founder of Home Depot) will step up and start a movement.

Few young people can sign up for medical school these days when faced with the daunting student debt load that would be required.

https://www.forbes.com/sites/susanadams/2018/08/16/nyu-makes-medical-school-tuition-free/#6243030ea9d8

Re: NCI Clinical Trials in Rural Areas

novamc1 — Thu, 23 Aug 2018 22:09:35 GMT

And by the way, the only way you can get into a clinical trial with the National Cancer Institute is to have a rare or at least very specific form of the

disease that they happen to be studying on the limited budget granted by Congress.

You don't necessarily live through the experiment..

NCI did not save a friend's sister from a fast-moving cancer. Plus..............

Married to someone retired from helping NCI doctors to program and run the big-data analysis software for clinical trials and who is working the same job voluntarily with NO PAY---to his wife's annoyance and dismay!! LOL!!

Re: NCI Clinical Trials in Rural Areas

151949 — Fri, 24 Aug 2018 12:51:16 GMT

I can't think I'd want to necessarily be given a drug that is only be used on a trial basis. Besides some people who think they are being given the medicine are actually being given a placebo.

Re: NCI Clinical Trials in Rural Areas

novamc1 — Fri, 24 Aug 2018 13:17:36 GMT

@151949

In most cases, I believe, the subjects/patients admitted to participate in this type of program are in a "last resort" state of health.

They will probably die with or without the experimental treatment, but perhaps some of them have a chance that it might prolong life, if not save it.

Re: NCI Clinical Trials in Rural Areas

151949 — Fri, 24 Aug 2018 13:20:44 GMT

@novamc1 When companies do clinical trials they are looking for the best possible outcomes because they want to sell the drug they have put a fortune into developing. They certainly don't want the patient you describe.

Re: NCI Clinical Trials in Rural Areas

novamc1 — Fri, 24 Aug 2018 13:39:09 GMT

@151949Those drug companies are not the National Cancer Institute (part of the National Institutes of Health, a federal research agency funded with your tax dollars)

The OP showed an NCI graphic in the original post. If you wish to discuss drug trials by pharma companies, that might be a separate subject.

Results of drug trials by pharmaceutical companies are reviewed by a separate federal regulatory agency--the Food and Drug Adminsitration.

Re: NCI Clinical Trials in Rural Areas

tends2dogs — Fri, 24 Aug 2018 13:31:36 GMT

@151949 I was under the impression that you never pay a penny when you are in a clinical study. My DH and also my dad and my mom were in clinical studies and never paid a cent. You just have to report any and all effects or noneffects depending on the trial.

Are you sure it was a clinical trial that you were in?

Re: NCI Clinical Trials in Rural Areas

151949 — Fri, 24 Aug 2018 13:44:34 GMT

There are grants given to pay for clinical trials - often whether or not you pay is dependant on your financials. They don't get unlimited funds to hold these trials - they have to stay within a budget. So they aren't going to give away for free to people who have the ability to pay.