topic Re: Another MRI...(Long) in Wellness

Another MRI...(Long)

Jackhound Mom — Mon, 13 Nov 2017 23:15:06 GMT

I have had 4 boughts of double vision. With the first I had an MRI which found a pinial cyst (tumor) in my brain. After several doctors I was told it had nothing to do with my vision.

Both eyes have given me problems and I'm a newer diabetic but have that under control. After an assault on DH back in June my Trigeminal Neuralgia flaired with the usual facial pain but this time my left eye bulged worse than ever. I had my pressure checked and it was normal.

The pain in my face has calmed down but the eye pain is worce and the vision is worce and it now stays dialated. Last year I was checked for Temporal Arthritis (not sure of spelling) negitive on the blood test.

Today my doc looked at me and seemed worried and ordered another MRI even though my Neurologist said I've had so many sense 2010 I should not have any for a few years. She also ordered another blood test.

Does anoyone know about this eye condition? If so would you mind writing me?

Thank you so much,

Cathy

Re: Another MRI...(Long)

Beth-QVC — Mon, 13 Nov 2017 23:26:38 GMT

This post has been removed by QVC because it is rude to another poster

Re: Another MRI...(Long)

tansy — Tue, 14 Nov 2017 00:34:02 GMT

@Jackhound Mom, I have had two bouts of double vision, which may or may not have been connected to my diabetes. Both times my vision returned to normal in 12 weeks. Visit an ophthalmologist if you haven’t. Mine made a prism for my glasses so I could see normally with them on.

Re: Another MRI...(Long)

SeaMaiden — Tue, 14 Nov 2017 00:44:08 GMT

@Jackhound Mom I can not offer any help as far as your medical issues....but just want to say I hope you get some answers soon and that you get a break from all the “ medical stuff”. I had a couple of years with lots of tests...MRI’s and etc and I know how hard that is on a person.

((Hugs))🙂

Re: Another MRI...(Long)

Jackhound Mom — Tue, 14 Nov 2017 01:09:29 GMT

@tansy wrote:
@Jackhound Mom, I have had two bouts of double vision, which may or may not have been connected to my diabetes. Both times my vision returned to normal in 12 weeks. Visit an ophthalmologist if you haven’t. Mine made a prism for my glasses so I could see normally with them on.

Yes Tansy,

I asked for prism glasses the first time this happened in Ohio in 2010 but the doctor said my vision would continue to change and the RX for prism's would also have to be constantly changed and they were expensive if memory serves. I patched the eye that was pulling inward when I had to se one of everything. Each time this happened it lasted different amounts of time. Thank you for your answer!

Re: Another MRI...(Long)

Jackhound Mom — Tue, 14 Nov 2017 01:14:32 GMT

@SeaMaiden wrote:
@Jackhound Mom I can not offer any help as far as your medical issues....but just want to say I hope you get some answers soon and that you get a break from all the “ medical stuff”. I had a couple of years with lots of tests...MRI’s and etc and I know how hard that is on a person.

((Hugs))🙂

Thank you SeaMaden! Glad you are on the mend. I think I should have looked up that eye condition spelling and posted with it and then maybe someone who knew about it could have answered me. I sometimes make mistakes with posts and titles.

Anyway, I appreciate both answers.

Re: Another MRI...(Long)

sfnative — Tue, 14 Nov 2017 04:12:15 GMT

@Jackhound Mom

So sorry you really have no answers yet.

I'm very concerned about the blown pupil in one of your eyes. That is usually a sign of something in the brain. Won't go into detail, but THIS must be tracked down now.

MRIs are non-ionizing, so no radiation there. What your neuro or present doc should also fold into the mix right now is a contrast CT of your brain. If you're getting nowhere with your current neuro, get a new one specializing in pathology of the brain.

Wishing you well and making strides.

Re: Another MRI...(Long)

gmkb — Tue, 14 Nov 2017 15:16:56 GMT

I strongly suggest making an appointment with a neurologist to rule out a neurological issue. Double vision can be symptomatic of a neurological problem.

i wish you well. I, too, have gone through numerous tests recently and it wears you down.

Re: Another MRI...(Long)

Jackhound Mom — Tue, 14 Nov 2017 12:52:31 GMT

sfnative &gmkb,

Thank you both! I will call my Neurologist. I am waiting for a ref from my insurance co. for the MRI. It takes 7 to 10 days to get. I will write when I find out what is going on.

Re: Another MRI...(Long)

sfnative — Wed, 15 Nov 2017 01:12:10 GMT

@Jackhound Mom

Dear Jackhound Mom,

I was glad to see that at least the insurance wheels are moving to get that MRI. In my humble opinion, when you can get the ear of a neuro specializing in brain issues, please ask about a CT with contrast.

Honestly, since reading your post and writing my little bit, you have been on my mind every day. If any of your symptoms worsen, even by just a little bit, go directly to a hospital with a Level I trauma E.R. (that's Level One). Folks who work in such ERs won't sit on their hands when they see something like your blown pupil and double vision, as these are rather serious symptoms. If you do go to such an ER, be prepared to tell them when the first symptom started, how and when the other symptoms arrived, what treatment, if any, has been prescribed thus far. The more information you can provide the better.

I know it must be difficult to even read what I'm writing, but if you can, please get out a piece of paper and write down the information in chronological order that I mentioned above. Keep it in your purse.

All the best, be easy on yourself and God Bless.

XXX Rebecca

Edited to add: If you do go to an ER, tell them you have (1) a blown pupil; and, (2) double vision in both eyes. This will get their attention big time.

Re: Another MRI...(Long)

Jackhound Mom — Wed, 15 Nov 2017 14:13:06 GMT

Dear Rebecca,

Thank you so much for your thoughtful post! Right now I do not have double vision, just blury in the left eye, bulging and dialated pupil. Neither of us can say when it became dialated but DH noticed it last week setting across from me at lunch. Yesterday it didn't look as dialated but it still is. I will go to an ER (there are plenty in Tucson) if it gets worce.

I guess I'm just used to eye pain and problems and never get any definative answers.

My new doctor seems to be on top of this and she probably will send me to another Neuro. The Neuro I saw has a great reputation and assured me that the pinal cyst had nothing to do with my continuing eye problems. The eye specialist (last year) did every test and gave me no answers except I had a bubble in one eye. He wanted me to have a needle treatment which I passed on and it resolved on it's onw. My attitude was that this too would resolve as well. I had no idea that a dialated pupil meant brain problems.

My friends here in our over 55 community all pretty much have health problems so no one that knows me seemed concerned. I am gratful to you, an on-line friend to encourage me. I will absolutely let you know how things turn out. Blessings to you and your loved ones!

Cathy

Re: Another MRI...(Long)

Lilysmom — Wed, 15 Nov 2017 14:50:42 GMT

@Jackhound Mom @sfnative, good luck to you with this issue and @sfnative, it's great that you can give support. These things can be pretty scary. Best not to be ignored. Prayers for you @Jackhound Mom. Keep us posted. LM

Re: Another MRI...(Long)

Jackhound Mom — Thu, 16 Nov 2017 01:18:24 GMT

@Lilysmom wrote:
@Jackhound Mom @sfnative, good luck to you with this issue and @sfnative, it's great that you can give support. These things can be pretty scary. Best not to be ignored. Prayers for you @Jackhound Mom. Keep us posted. LM

Thank you so much! I wish you all a very Happy Thanksgiving! I had a quiet, good day. Trying not to think about the possible outcome of my test.

I send blessings to every poster who helps another

Cathy

Re: Another MRI...(Long)

Jackhound Mom — Tue, 21 Nov 2017 16:09:19 GMT

Good Tuesday Morning,

My MRI is today at 3. Please keep a good thought for me, thanks. I'm also having an MRA (never heard of it) it is of the arteries around my bulging left eye.

I'll write when I have some answers and hope this will help someone else down the road.

Cathy

Re: Another MRI...(Long)

Jackhound Mom — Tue, 28 Nov 2017 14:49:43 GMT

Good Morning,

I got an email from the radioligy place and opened it as my doctor's office didn't call me even though they also got the reports. The Pineal cyst hasn't changed-good news! I have vessel Ishemic? Looked it up but I'm not sure what if anything can be done about this. Still don't understand why my eye is buldging and dialated. Maybe my doctor will call me back today. I called here twice yesterday.......

Thank you for your positive thoughts,

Cathy

Re: Another MRI...(Long)

Jackhound Mom — Wed, 29 Nov 2017 21:14:14 GMT

My update is that the MRI & blood work was normal. Now to an eye specialist as the eye is still buldging and dialated, painful and blury vision. Doctor thinks it may be from being diabetic as A1C was still not in the 6-7 range so we are increasing my insulin.

Thank you,

Cathy

Re: Another MRI...(Long)

sfnative — Thu, 30 Nov 2017 02:41:06 GMT

@Jackhound Mom wrote:
Good Morning,

I got an email from the radioligy place and opened it as my doctor's office didn't call me even though they also got the reports. The Pineal cyst hasn't changed-good news! I have vessel Ishemic? Looked it up but I'm not sure what if anything can be done about this. Still don't understand why my eye is buldging and dialated. Maybe my doctor will call me back today. I called here twice yesterday.......

Thank you for your positive thoughts,
Cathy

@Jackhound Mom

Though I copied this post due to the statement in red, I have read beyond it and it's still not clear whether you've had a decent conversation with your physician regarding the radiologist's report. BTW, you should have in your hand a copy of that very report. It is your property; and, you should return to the imaging center to order a copy of the MRI and any other studies dones, as well as corresponding radiologist's reports.

You indicated "vessel Ischemic" above. The term "ischemic" generally means lacking in oxygen, therefore possible loss of functionality at a gross or minisule level. However, when vessel ischemic is written, I'm literally wondering if there is a length, teeny to small that is not functioning at a very low level and may lose function altogether due to lack of oxygen. This does require immediate attention. An example for you if it were in the gut: if someone is diagnosed with a portion of ischemic bowel, a surgeon might very well surgically remove that diseased portion and re-anastamose the two ends together (suture the remaining 2 ends together).

If it were me, I'd seek clarification from your physicians as to what the radiologist meant by using the terms "vessel ischemic" and to which anatomic structure and where it is located. Also, to what degree is the structure - vessel? - affected? If it is moderate or greater, then one would naturally think about surgical intervention.

It appears you're finally going to see an ophthalmologist!!! Frankly, I'm surprised your doc didn't refer you previously, given that your symptoms haven't abated. Make sure you bring along the radiologist's report and a copy of all imaging studies, even if the ophthalmology works within the same healthcare system. You never know when systems will go down. With a CD, they are just stick it in a laptop and study the images without issue.

All the best of luck to you and God Bless.

Re: Another MRI...(Long)

Pooky1 — Thu, 30 Nov 2017 11:44:59 GMT

i have had many mri and had double vision. double vision was my first thing i had before my ms dioagnonsis. i allso have prisms in my eye glass lenses. i allso have not sure of the name but the eptic nerve splits into witch like when i get tired my vision will start to double. prism total fixes the double vision. good luck with what your going thru. hope you get answers and you get better.

Re: Another MRI...(Long)

Jackhound Mom — Thu, 30 Nov 2017 14:27:55 GMT

@sfnative wrote:

@Jackhound Mom wrote:
Good Morning,

I got an email from the radioligy place and opened it as my doctor's office didn't call me even though they also got the reports. The Pineal cyst hasn't changed-good news! I have vessel Ishemic? Looked it up but I'm not sure what if anything can be done about this. Still don't understand why my eye is buldging and dialated. Maybe my doctor will call me back today. I called here twice yesterday.......

Thank you for your positive thoughts,
Cathy
@Jackhound Mom

Though I copied this post due to the statement in red, I have read beyond it and it's still not clear whether you've had a decent conversation with your physician regarding the radiologist's report. BTW, you should have in your hand a copy of that very report. It is your property; and, you should return to the imaging center to order a copy of the MRI and any other studies dones, as well as corresponding radiologist's reports.

You indicated "vessel Ischemic" above. The term "ischemic" generally means lacking in oxygen, therefore possible loss of functionality at a gross or minisule level. However, when vessel ischemic is written, I'm literally wondering if there is a length, teeny to small that is not functioning at a very low level and may lose function altogether due to lack of oxygen. This does require immediate attention. An example for you if it were in the gut: if someone is diagnosed with a portion of ischemic bowel, a surgeon might very well surgically remove that diseased portion and re-anastamose the two ends together (suture the remaining 2 ends together).

If it were me, I'd seek clarification from your physicians as to what the radiologist meant by using the terms "vessel ischemic" and to which anatomic structure and where it is located. Also, to what degree is the structure - vessel? - affected? If it is moderate or greater, then one would naturally think about surgical intervention.

It appears you're finally going to see an ophthalmologist!!! Frankly, I'm surprised your doc didn't refer you previously, given that your symptoms haven't abated. Make sure you bring along the radiologist's report and a copy of all imaging studies, even if the ophthalmology works within the same healthcare system. You never know when systems will go down. With a CD, they are just stick it in a laptop and study the images without issue.

All the best of luck to you and God Bless.

Thank you for the thoughtful answer! When I saw my doctor yesterday she said what I have is "normal" for my age. A copy also was sent to my Neuro. I see my NP pain managment today who also worked in Neurology and I plan to ask her opinion as well.

This thought has walked through my mind and I asked a past Neuro while in Lexington if I was not a candidate for surgery (for the pinial cyst) because of my age or because my insurance which is Tricare Standard. This is the insurance DH earned from his 22 years of active duty in the Army. Could that be it? The doctor I asked gave me a " non answer " and DH was just as confused as I was.

I have all my past CT's & MRI's but haven't requested a copy of this last one but I will. It can be viewed by any medical staff on line because Radioligy LTD is accessable here.

My referral to the eye specialist should be here in a few days and maybe then I will have an answer.

Blessings and gratitude to all who took the time to write to me and I hope I can be of help to others in the same way.

Cathy

Re: Another MRI...(Long)

Jackhound Mom — Thu, 30 Nov 2017 14:33:11 GMT

@Pooky1 wrote:
i have had many mri and had double vision. double vision was my first thing i had before my ms dioagnonsis. i allso have prisms in my eye glass lenses. i allso have not sure of the name but the eptic nerve splits into witch like when i get tired my vision will start to double. prism total fixes the double vision. good luck with what your going thru. hope you get answers and you get better.

Dear Pooky,

Thank you for writing to me and I am glad you have found a solution for your double vision! I was told in the past that I could not have prism glasses because my vision keeps changing as it corrects. I plan to ask this new eye doctor if that is true. Different doctors have different opinions and I may have been told the wrong thing.

My double vision right now is in distance but close up it isn't there. It's my left eye and if I look to my left everything splits no matter if it is close or far away. So wierd.

Blessings to all,

Cathy