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10-24-2014 03:35 PM
10-24-2014 03:41 PM
Grandma pete's, I take gabapentin, which is the generic Neurontin and have for about six years. I started it for polymyalgia rheumatica at that time. I had chemo last year and now I take it for neuropathy in legs and feet. My dose is 1800 a day, six of the 300 capsules. You can go to 2400 a day. I think they can make me a little tired, but that is all.
Just try them, generic will be cheaper, and see how they work for you. Don't be afraid, they always have to put all the side affects in case. Good luck!
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my edit
10-24-2014 03:47 PM
10-24-2014 03:59 PM
My sister was on a Neurontin patch. It's a heavy pain med. She had to come off it. Research it carefully.
10-24-2014 04:07 PM
10-24-2014 04:20 PM
My husband has peripheral neuropathy and has been prescribed Neurontin, Lyrica, Cymbalta, etc.... He tried them all and did not like the way they made him feel. He was disoriented, dizzy, had no memory of things he just did, and on and on.
He decided not to take any of the meds and live with the pain. His neurologist is okay with it and gave us his cell phone number just in case. He said he has never had a patient like this, who would rather live with pain and no pills. But my husband is tough and can put up with a lot. A few years ago he had a kidney stone and his doctor said he didn't know how he could stand the pain and hubby said "I don't have any pain" - the doctor said "oh yes you do"..... He burned up two lasers trying to break up the stone while in the hospital.....
There are also side effects to this family of drugs so be very careful when taking them..... I hope they help your symptoms. I asked the neurologist if these pills cure or slow down the neuropathy and he said they did not - they just send a message to the brain.... So then, I said why couldn't he just take pain pills and he said "I have no problem with that" and prescribed pain meds, which are still sitting on the shelf three years later...... He won't take them either because he says he doesn't like the way they make him feel.
Everyone is different and there are those who swear by these medications. Just be mindful of the side effects and if you want to put up with them, then at least, give it a try.....
10-24-2014 04:30 PM
My sister took Neurontin and had to get off of it because she began to suffer severe side effects of the drug. She took Neurontin for neuropathy pain.
Neurontin caused my sister to have worse nerve pain(neuropathy) in her hands and feet than what she started with. But the primary reason she came off of the drug is because she began to suffer from short term memory loss -- and she began having seizures. She didn't have problems with her memory or seizures before she began taking Neurontin.
Her neurologist told her that neuropathy and seizures can be side effects of taking Neurontin.
She had a terrible time weaning off of the drug and failed at doing so several times. The final time she weaned herself of Neurontin she did it very slowly, taking about 7 - 8 months to get off of it.
10-24-2014 04:32 PM
Sorry I do not but wanted to say hello grandma petes it has been a long while since I have seen you. Sorry you have so much pain.
10-24-2014 04:42 PM
I was on gabapentin for 3 years when my rheumatologist started me on Lyrica instead. They both work but Lyrica works better for me. My insurance company doesn't like paying for it. They approved it for one year after that I guess I'll go back to gabapentin.
I have had some swelling in my legs from them but nothing major. I have neuropathy but you'd never know it. I absolutely have no pain in my feet now other than from the RA.
I'm also on Cymbalta.
10-24-2014 04:55 PM
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