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Valued Contributor
Posts: 679
Registered: ‎01-07-2014

_Not an easy sale from washing machine thread

No she's not ok. Neither are we. Within 5 hours of angioplasty & stent her bp and hr dropped. Hr erratic. Internal bleeding in abdomen. Mom very tiny. Veins & arteries thin. 2nd central line for transfusion. Lots of cpr because she wasn't stable enough for ct scan to find bleeding source. Finally went down for CT with emergency surgery & cardiac teams. Now wait. I've had 2 anxiety attacks. Put her on three shuls' Mishaberach lists. Two rabbis have come. Fell apart this morning. Was able to fake calm until the heart attack call. I'm the one who's been calling 911 lately with what were misdiagnosed as food poisoning and vagal irritation from migraines. She's only 68 and was in good health. Women in waiting room talking about funeral reception parties.
Esteemed Contributor
Posts: 6,095
Registered: ‎09-02-2011

Re: _Not an easy sale from washing machine thread

I am here, rac71...............

Just did come in and read . So very glad you came over. PLEASE tell me -exactly how she is doing, at this time. 68 is NOT old, especially after telling me she has been in good health.

Do not fall apart......... You are making yourself very weak and mentally non functioning. PLEASE LISTEN TO ME.......take the (Xs). Can you tell me if 0.25, .50 or 1mg.

The shunt is put in because the veins/ arteries are so collasped...that is also because of blood loss. .........Now they have to keep her VERY QUIET........She has to gain back her strength..........

The CT was done to PIN POINT exactly where the orgin of bleeding is coming from.

When the IVs were started that will hydrate her from any blood loss.........this is typical and always done.

There is always, in a group setting of prayers, when church friends hear about a family member or friend being in this condition.........IT'S WONDERFUL and I, too will be HERE praying. God knows who this is. I have a strong faith and prayer constantly.........

My husband almost died NOVEMBER - one year ago, having a stroke, then developing some mysterious infection that ANTIBIOTICS would not eradicate the bacteria-UNTIL a blood culture growth was done for 24 hours+, then the TEAM at the medical center started with this particular antibiotic and prayers were heard.

I WILL STOP AND WAIT FOR ANY REPLIES.......IT'S LATE WHERE I AM, BUT WILL BE BACK AFTER ANY WORD. Okay? Don't give up on me....I am with you~

Keep focusing on the great health mom had.......that's a big plus. I have been through this many times with patients and my family............I KNOW IT IS OVERWHELMING

Smile_Naes

Esteemed Contributor
Posts: 6,095
Registered: ‎09-02-2011

Re: _Not an easy sale from washing machine thread

*rac71->........................ Please see gloriajean's thread. `AMONG FRIENDS`

I am truly sorry about the time. We are here for you.

_Naes

Esteemed Contributor
Posts: 6,095
Registered: ‎09-02-2011

Re: _Not an easy sale from washing machine thread

...bumping this UP** for those** who will know a little more in what, and when I found this out.-

_Naes

Valued Contributor
Posts: 679
Registered: ‎01-07-2014

Re: _Not an easy sale from washing machine thread

Please forgive any formatting glitches, I am on an iPad. _Naes, my dad had two stents, the first before coated stents were on the market. One of his cousins works on the technology to create them and they were still in the early FDA phases when my dad decided to go ahead with an LAD bypass because of the continued need for delta and gamma radiation to clear tissue growth. My best friend had a quadruple bypass not too long before that.

Basically, my mom's veins are very thin and narrow, so the emergency Cath and angioplasty seems to have punctured a groin vein or artery. The CT didn't show anything other than a blood-filled abdomen; there was too much internal bleeding. Last night the pressure became too extreme for her ventilator to work. So her abdomen has an open would with a vacuum but it appears the bleeding did stop yesterday. She's been on lower temperature and medically induced coma because of some of the complications, need for manual CPR, etc. Tonight they started raising her temperature. And in the morning they will look at the 24 hour EEG and her surgical and ICU team will decide to either repeat the CT to locate the bleed source or poke around to find it surgically to seal it.

I consulted with my own doc about getting and taking Xanax (25mg). She called me back twice after hours and asked me to tell her everything that was going on. I have a WONDERFUL internist and a very open trusting relationship with her. Took two yesterday over 6 hours on an empty stomach. Finally ate late last night.

This morning, I learned that when my brother got into town and he and my dad went back to the hospital last night, they played "boys are best" and removed me as my mother's contact entirely. Their wristbands banned me from ICU without one of them escorting me, and they tried to kick me out of the family meeting. I'm the caretaker. I'm the one who's been monitoring and documenting her symptoms, seeing to her post ER care in the past few weeks, making sure she ate carefully, and the one who's called 911 every single time. Eventually, my dad's BIG mistake downed on him and he tried to throw a tantrum to make up for it. I'm the one getting the blame. The charge nurse told me repeatedly how grateful and appreciative I should be that she is breaking the wristband rule without a wrist and, how secretive it should be, etc. By the fourth repeat insinuating I was the problem, I asked her to stop, that we needed to stay positive n this room so my mother heard no negativity, and any further discussion would create anger. What I chose not to disclose was my intense desire to take her face in my hand and smash her head against the nearest wall for blaming me for my father's misbehavior. But I stayed big and contained my growing rage; may I never be that snarky to a parent or student.

I also asked the neurologist a number of questions as my SPED profession has me working with and testing a variety of young people with a variety of brain injuries and cognitive damage. We brought in a variety of her CDs and I put an Israeli music disc for her. Tomorrow, I will switch to klezmer. I also called the rabbis and made arrangements for one of them to join us at the meeting to I had an ally. It was fascinating to hear what an expert my younger brother has miraculously become regardingmy mother's condition as he hadn't been around until he flew in last night. As perfect as my dad and brother believe my brother to be, I'm the one my dad asks about household chore questions. I got him started doing laundry for the first time in 28 years on my mom's Maytag washer tonight. I understand more than people think I do, and I am glad to now know that her urgent manual CPR that supposedly was for 60+ minutes yesterday morning was really only 14 minutes. The CCU doctor embellished excessively. All the ways they said she was already dead/brain dead were untrue.

Esteemed Contributor
Posts: 6,095
Registered: ‎09-02-2011

Re: _Not an easy sale from washing machine thread

HI rac!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!~!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

So, the experts were telling you, `mom was brain *d*`.......That is the very reason EXPERT is not in my vocabulary

When a family knows very little about a situation, as in this one, members take on another behavior. I have seen it time after time ----------after time, even with one situation in my family, but that had a lot to do with having power of attorney. I surmise dad had been gifted with the decision making~ -??)

People skills, as YOURSELF and 'families'. Your credentials tells all. You should definitely would be the one, the main one knowing what has been going on pre hospital-what is being done now, and you are not in any way 'the blame'. Families strike out at each when they become afraid and frustrated, Everyone apparently loves mom, but men (usually) peak at their highest stupidity quite quickly when an emergency arises, especially when the female caregiver can and will work along with the doctors...something like handing over a document trail from either... memory or notes written'YOURS', to convince the medical team to entertain the mere thought ...She Know Enough To Give Us A Clue { or a male in some cases} that can interact as an advocate, and you certainly are this.

In your profession, you know the little rules set forth with the format and goals not always having expectation AT discipline.

The one key point is I do understand where your position is, certainly with talking about the music. Yes the music that you speak of is definitely like like a goal to have musical instruments actually singing..as a human voice. What a created idea, i.e., Itzhak Perlman's In the Fiddler's House. It lights the soul. it lifts the soul...melody to pickle it and pepper it-Nice experience for mom~ You know best.

I asking asking a simple question about the (X), that is a very low (mg), so you can understand how this will calm the entire system to calm, as I have read you are eating. Continue on with this course of a routine, until you are more concerned with your well being; it will do what you would think, as the impossible, and just staying in an altercation mode.

BUT! I do understand how THIS could happen. That could have been me.

Your doctor appears to be a Gem~

Now, I am following this as you tell me. I am approaching a finer outcome than you were yesterday. I will go further in with this since the time can be for the next post after this one_>.....continuing on-----_Naes

Esteemed Contributor
Posts: 6,095
Registered: ‎09-02-2011

Re: _Not an easy sale from washing machine thread

Did the surgeon/doctors ever mention LIMA-LAD?

I will go back to mom's good health pre-heart attack. In fact patients having LAD (by pass) shows great improvement. Survived rates...for the heart attack patient /survivor-.

The medical team has to monitor her blood pressure and keep it at normal. That's why the temperature intervention, now.

When the angioplasty through the groin, the surgeon cuts into the femoral artery (groin)-that can be up to 4/10ths of an an inch (diameter). Since the operation is over- the surgeon closes the incision ( in the artery) and applies {size of a small watch} applying compression closure "devices" TO STOP THE BLEED. .............The left (anterior) descending coronary artery- The LAD typically subtends 50% of the ventricular myocardail (muscle of the heart) mass. The angiography reveals any coronary ( obstructions) in non-LAD vessels stent. This tells me mom had a ..........myocardial infarction.

I will await further updates.

Please read *gloriajean's* prayer request. WHAT A WONDERFUL FRIEND WE HAVE WITH HER CONCERN AND PRAYERS, ALONG WITH EACH BEAUTIFUL PERSON ON THIS LOVING FORUM.

We love {#emotions_dlg.wub}you, our prayers are never ending for mom and for your strength, ` to be well and focused in`, ..........as the professionl that you are.

From all of us. God Bless rac '71' our true friend~ Hugs~ and soft tender hands holding yours~

_Naes

Esteemed Contributor
Posts: 6,109
Registered: ‎04-14-2013

Re: _Not an easy sale from washing machine thread

My thoughts are with you.

Cogito ergo sum
Valued Contributor
Posts: 679
Registered: ‎01-07-2014

Re: _Not an easy sale from washing machine thread

Well crud. I typed a whole response and it vanished! Not cool.
Valued Contributor
Posts: 679
Registered: ‎01-07-2014

Re: _Not an easy sale from washing machine thread

My mother has woken. She has speech recognition/understanding, and can move her extremities on command and at will. Held onto my hand a lot today. Yanked her other hand out of my dad's when he started scolding me 'just because' and wouldn't let him hold it again for a while. Bleeder was located and sealed off, and her abdomen has been closed. Night nurse Charlotte says it looked good during a dressing change. Charlotte asked us to leave, so I pad up and went. After receiving a scolding text from my brother about overstaying/overtaxing Mom, I asked Charlotte directly when I called to check in if I had been a problem and to please tell me the truth. I wasn't; my dad was. Why my brother decided I needed the reprimand...sh--head flew out of my mouth several times tonight. The day nurse had me moisten her lips with the tube stuff. My dad scolded me for that, too. And yet when she does eventually get home, he'll dump all the care on me. His way of "taking care of her" is to wear headphones so the TV doesn't bug her and fixing TV dinners for himself. Completely oblivious to her need for nourishment. He insisted I teach him how to do laundry. Won't read the washer, detergent, or garment label instructions himself or put the laundry baskets away. Still fussed at me afterwards because I didn't tell him to use bleach. This Dreft/dryer ball girl only uses bleach when absolutely necessary and rarely hot water. Not everything in that basket was bleach-able. Sorry, long stream of consciousness post. The EEG wires and ventilator may be removed sometime tomorrow. Thank you for your kindness and emotional support. I have a far bigger friend-in-need network than I ever realized. Even one battling stage 4 melanoma (8 tumors in 3 organs)! Puts to shame my dad's comments that my mom and I are close out of pity for my lack of a boyfriend/partner/spouse in my 40s. That is mostly on purpose.